Background: Ostomy surgery refers to surgical procedures that reroute the elimination process of the bowel and alters the usual form of elimination. There are different reasons why a person gets a ostomy, depending on the reason for the surgery. The number of persons living with ostomys in Sweden is unknown. However, the reaction to intestinal diversion surgery can be a devastating experience. Living with a ostomy for a longer period may affect the individual. Nurses are important members of the health care team and have a significant role in caring for patients with ostomy.

Aim: The aim was to describe experiences living with a permanent ostomy.

Method: A qualitative litterature-based design was used in the study. CINAHL and PubMed databases were used to search qualitative articles. Articles were analyzed and reviewed by the five-step method in Friberg.

Results: The result is based on ten qualitative articles. After making the analysis three main themes and nine sub-themes were identified. The three main themes were: the altered body appearance, the changing of daily life and interference with anticipated return to normal. The sub- themes were: fear, anxiety, disgrace and irritated skin, body image, acceptance, independence, daily activities, diet, impact on relationships, supporting, loneliness and isolation.

Conclusion: Having a ostomy is a major event and it affects personal self-concept and restricts their lives in various ways. Nurses need to provide education, support advice and referral for specialist help if required to promote health and reduce suffering.