Objective
This study aimed to explore patients’ experiences of how to live a full life with type 2 diabetes and to identify their needs for learning and support within contemporary diabetes care.
Design
A qualitative descriptive design was used, involving 15 individual face-to-face interviews, which were analysed through quantitative content analysis. The Consolidated Criteria for Reporting Qualitative Studies was followed.
Setting
Three primary healthcare centres situated in both rural and urban areas of Western Sweden.
Participants
Fifteen informants (eight men and seven women) diagnosed with type 2 diabetes, who had experience with contemporary diabetes care in primary health care, were interviewed.
Results
Informants’ descriptions of their experiences were summarised into the following main theme: A wish to be exposed to multidimensional learning, flexible support, and professional recognition as a capable person. This theme was constructed and conceptualised by the sub-themes 1) wanting genuine partnership and flexible learning, 2) being aware of standards and finite resources, and 3) reorienting one’s outlook on life.
Conclusion
The results show that a patient’s resources and needs should form the basis of their diabetes care. Diabetes specialist nurses who can integrate multidimensional learning into continuity-driven practice and collaborate with active patients are desired. Patients should be seen as capable and resourceful in learning about their illness. Generally, the patients asked for greater opportunities to discuss their emotions and increased eHealth contacts when learning about the challenges of living with diabetes. Patients identified diabetes specialist nurses as essential, knowledgeable, and trustworthy partners in contemporary diabetes care.
2024.
Diabetes specialist nurse, eHealth, primary health care, patient experiences, professional-patient relations, work-integrated learning