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A feeling of not being alone: Patients' with COPD experiences of a group-based self-management education with a digital website. A qualitative study.
School of Health Sciences, Skövde University, Skövde (SWE).
University West, Department of Health Sciences, Section for nursing - graduate level. FoU-centrum Skaraborg - R&D Centre Skaraborg, Region Västra Götaland, Skövde (SWE). (LOVHH)ORCID iD: 0000-0002-9945-8008
School of Health Sciences, Skövde University, Skövde (SWE); Research and Development Centre, Skaraborg Hospital, Skövde.
2024 (English)In: Nursing Open, E-ISSN 2054-1058, Vol. 11, no 4, article id e2153Article in journal (Refereed) Published
Abstract [en]

AIM: To describe patients' with chronic obstructive pulmonary disease (COPD) experiences of group-based self-management education with a digital website.

DESIGN: A qualitative approach with a phenomenologicalmethod. Patients participating in an earlier study, with self-experience of COPD as a special competence, were involved as research partners at the design of this study.

METHODS: Eleven individual and two group interviews with five participants in each group were conducted.

RESULTS: Group-based self-management education with a digital website supports learning. Sharing experiences with others in similar situations creates security and reduces the feeling of being alone. Based on questions and discussion in the group, and through self-reflection, general information is transformed into useful knowledge and understanding of one's own situation. COPD information on the website provides an opportunity to gain knowledge continuously based on needs that contributes to learning. This research has demonstrated that adapting learning activities to individual learning styles increases sustainability of learning. Sharing experiences reduces feelings of loneliness. It is therefore important to create spaces for sharing experiences and in-depth reflection that support learning over time.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2024. Vol. 11, no 4, article id e2153
Keywords [en]
COPD team, eHealth, patient involvement, phenomenology, self‐management, sustainable learning
National Category
Nursing Psychiatry
Research subject
NURSING AND PUBLIC HEALTH SCIENCE, Nursing science
Identifiers
URN: urn:nbn:se:hv:diva-21585DOI: 10.1002/nop2.2153ISI: 001205658800001PubMedID: 38641867Scopus ID: 2-s2.0-85191031229OAI: oai:DiVA.org:hv-21585DiVA, id: diva2:1926154
Note

CC-BY 4.0

We would like to thank the Research and Development Centre at Skaraborg Hospital Skövde, Sweden and the Skaraborg Institute, Sweden for their support (Dnr. 19/1034)

Available from: 2025-01-10 Created: 2025-01-10 Last updated: 2025-09-30

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Andersson, Susanne

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