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‘Because otherwise she’s not doing her job – if she doesn’t listen’: children’s and parents’ views on participation in the assessment process according to the Swedish Disability ActAlternativ titel: För annars sköter hon inte sitt jobb – om hon inte lyssnar’: Barns och föräldrars syn på delaktighet i bedömningsprocessen enligt Lag om stöd och service till vissa funktionshindrade
University West, Department of Social and Behavioural Studies, Division of Social Work and Social Pedagogy. (FBU)ORCID iD: 0000-0002-5435-1637
University West, Department of Social and Behavioural Studies, Division of Social Work and Social Pedagogy. (FBU)
DART Centre for AAC and AT, Sahlgrenska University Hospital, Göteborg (SWE).
Department for social and behavioral studies, University West, Trollhättan, Sweden. (FBU)
2024 (English)In: European Journal of Social Work, ISSN 1369-1457, E-ISSN 1468-2664, p. 1-16Article in journal (Refereed) Epub ahead of print
Abstract [en]

Social workers often experience difficulties involving children in the assessment process for disability support, but we know less about how children and their parents experience meeting with social workers in a statutory practicing context. This study examines how increased participation can be possible for children with disabilities throughout the Swedish Disability Act (SDA) assessment process. Eleven children and twelve parents were interviewed, using Talking Mats with the children. Malterud’s phenomenological method was used for analysing the data. Children feel they are listened to, but they need support expressing what they find difficult, and believe Augmentative and Alternative Communication can support their understanding. When planning a meeting, children need information beforehand to be involved in the planning. Parents believe that children should be involved in decision-making; hence, their own involvement is needed. Many children who are eligible for SDA interventions would be able to speak for themselves later in life if introduced to actively participating in assessment processes at a younger age. Accordingly, it becomes important that children with disabilities, together with parents and social workers, also gain experience in talking about sensitive topics. This may, in the long term, alleviate parents’ worries and uncertainty about how to protect their children.

Abstract [sv]

Socialsekreterare upplever ofta svårigheter att involvera barn i utredningsprocessen enligt Lagen om stöd och service till vissa funktionshindrade (LSS). Vi vet dock ganska lite om hur barn och deras föräldrar upplever mötet med socialsekreterare i en myndighetskontext. Denna studie undersöker hur ökat delaktighet genom hela utredningsprocessen kan möjliggöras för barn med funktionsnedsättning. Elva barn och tolv föräldrar intervjuades. Samtalsmatta användes när barnen intervjuades. I analysen av materialet använde vi Malteruds fenomenologiska metod för systematisk textkondensering. Barn upplever att de blir lyssnade på, men behöver stöd för att uttrycka sina svårigheter, exempelvis genom Alternativ och Kompletterande Kommunikation. När ett möte planeras behöver barn information i förväg om vad som kommer att hända samt vara delaktiga i planeringen. Föräldrar anser att barn ska vara delaktiga i utredningsprocessenen, men att deras eget engagemang också behövs. Många barn som är berättigade till LSS-insatser skulle kunna tala för sig själva senare i livet om de introducerades till att aktivt delta i utredningsprocesser i yngre ålder. Därför blir det viktigt att barn med funktionsnedsättning, tillsammans med föräldrar och socialsekreterare, också får erfarenhet av att prata om känsliga ämnen. Detta kan på lång sikt lindra föräldrars oro och osäkerhet hur de ska skydda sina barn.

Place, publisher, year, edition, pages
2024. p. 1-16
Keywords [en]
Children; Disability; Participation; Assessment process; Talking Mats (TM)
Keywords [sv]
Barn; funktionsnedsättning; delaktighet; utredningsprocess; Samtalsmatta
National Category
Social Work
Research subject
Child and Youth studies
Identifiers
URN: urn:nbn:se:hv:diva-22519DOI: 10.1080/13691457.2024.2407858OAI: oai:DiVA.org:hv-22519DiVA, id: diva2:1907606
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2020- 01335Available from: 2024-10-23 Created: 2024-10-23 Last updated: 2024-10-23

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Björquist, ElisabetPersson, Stina

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1920212223242522 of 27
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