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  • 1.
    Alsen, Pia
    et al.
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - avancerad nivå.
    Thörn, Susanna
    Primary Health Care, Sollentuna, Sweden.
    Nordqvist, Linnea
    Primary Health Care, Munkedal, Sweden.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - avancerad nivå.
    Men’s Experience of Difficulties during First Year Following Myocardial Infarction: Not OnlyFatigue2016Ingår i: Health, ISSN 1949-4998, Vol. 8, s. 1654-1667Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Recovery from a myocardial infarction (MI) can be a very difficult process and some patients are also stricken by fatigue. The aim of the study was to describe the difficulties experienced by men with fatigue during the first year following their MI. The study was conducted using qualitative content analysis of semi-structured interviews with nine men in working age (mean age: 55 years) with verified fatigue (≥12 of 20 on the Multidimensional Fatigue Scale with a mean of 17) one year after their MI. During the first year after the MI the men suffering from fatigue experienced various difficulties in terms of both themselves and the care received. The analysis generated three themes with difficulties described by the interviewed men. 1) Going through involuntary change: not recognizing their body and the inability to recognize themselves. 2) Lacking individualized care: To be denied satisfactory health care treatment and to be denied respectful treatment. 3) Not being seen in the light of the social context: The MI affects the whole family and caregivers do not pay attention to the family. In order to make both the patient and relatives feel secure and cared for, it is essential that caregivers be aware of the importance of providing individualized care over time with particular attention for the patient’s social context.

  • 2.
    Anberg Högeryd, Susanne M.
    et al.
    NU-sjukvården, Trollhättan.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för vårdvetenskap på avancerad nivå.
    Dahlborg Lyckhage, Elisabeth
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för vårdvetenskap på avancerad nivå.
    Expert midwives’ experiences of security in their professional practice: I’m the captain of a jet2014Ingår i: International Journal of Nursing and Midwifery, E-ISSN 2141-2456, Vol. 6, nr 2, s. 16-23Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Obstetric units have become larger, with patients being knowledgeable and demanding. Also, established team works at maternity wards require that midwives are secure in their role. A descriptive study with a phenomenological approach was used. A maternity unit in a hospital located in Western Sweden was chosen. Five expert midwives with vast experience of obstetric care who worked in a maternity unit were interviewed. Data were collected by audio-taped interviews. The data were analysed by means of Giorgi’s phenomenological method. The results showed that security was constituted by an inherent sense of security as well as confidence in self and in life. Education and practical group training in the workplace provided theoretical knowledge and practical experience. Support for others in the working team and open communication also constituted security. Also, clear leadership, guidelines and routines provided a framework and had a positive effect on expert midwives’ sense of security. When security was absent, midwife became worried, the joy and harmony diminished. In order to ensure midwife security and ultimately safe patient care, it was important to allow time for rest, to reflect on and evaluate their work. Expert midwives can create the prerequisites for their professional security. Several constituents combine to shape midwives’ sense of professional security; an inherent sense of security, own knowledge and experience, team collaboration, visible and clear leadership.

  • 3.
    Bengtsson, Jonas
    et al.
    Colorectal Unit, Sahlgrenska University Hospital/Östra, Gothenburg,.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Lindholm, Elisabet
    Colorectal Unit, Sahlgrenska University Hospital/Östra, Sahlgrenska Academy,.
    Öreland, Tom
    University of Oslo : Institute of Clinical Medicine.
    Börjesson, Lars
    Colorectal Unit, Sahlgrenska University Hospital/Östra, Sahlgrenska Academy,.
    Sexual function after failed ileal pouch-anal anastomosis2011Ingår i: Journal of Crohn's and Colitis, ISSN 1873-9946, Vol. 5, nr 5, s. 407-414Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background and Aims

    Failure of ileal pouch-anal anastomosis (IPAA) occurs in around 10% of the patients. Compared to patients with functioning pouches, health related quality of life is deteriorated after failure. Sexual function in patients with pouch failure is however poorly studied.

    The aim was to study sexual function in patients with pelvic pouch failure; patients with functioning pouches were used as controls. The hypothesis was that patients with pouch failure have worse sexual function.

    Methods

    36 patients with pouch failure were compared with 72 age and sex-matched controls with ulcerative colitis and functioning pouches. The patients answered a set of questionnaires concerning sexual function (Female Sexual Function Index [FSFI] and International Index of Erectile Function [IIEF]), body image (BIS-scale) and health-related quality of life (SF-36).

    Results

    Both women and men with pouch failure scored lower than controls in the FSFI and IIEF questionnaires. However, none of the observations were statistically significant. The scores in the failure group (for both sexes) were below the cut-off level for sexual dysfunction. Scores for the BIS instrument were significantly lower for both sexes in the failure group. Women and men in the failure group scored lower than the controls in all domains of the SF-36, however statistically significant only for the social function domain in men.

    Conclusions

    The hypothesis, that a failed IPAA is associated with worse sexual function, was not confirmed. Compared to patients with functioning pouches, patients with pouch failure have inferior body image.

  • 4.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för specialistsjuksköterskeutbildning.
    Bukaortascreening in och ut på fem minuter: Hur upplevs undersökningsförfarandet av de screenade och av personalen2010Konferensbidrag (Refereegranskat)
    Abstract [sv]

    Etiska aspekter vid screening av bukaortaaneurysm - en delutvärdering vid införandet i Västra Götaland

     

    Regionstyrelsen har beslutat om införande av screening av 65-åriga män för buk-aortaaneurysm (fortsättningsvis benämnt AAA) i Västra Götalandsregionen. Syftet är, i likhet med andra screeningundersökningar, att ställa diagnos i ett tidigt skede, redan innan sjukdomen har börjat ge symtom. Utvärderarna, liksom den helt övervägande delen av de kallade och intervjuade medarbetarna, anser att detta är en riktig satsning. Utvärderingsgruppen ställer sig således bakom införandet och huvuddragen i genomförandet av AAA screening i Västra Götalandsregionen. De kunskaper vi har om screening i allmänhet och AAA i synnerhet indikerar helt enkelt att det vore oetiskt att inte screena denna grupp personer. Det finns dock en risk för oro och ångest i samband med förfarandet. Det är därför viktigt att minimera negativa upplevelser hos de kallade. Utvärderingen är gjord med detta som utgångspunkt och har således ansatsen att finna förbättringsmöjligheter i det framväxande förfarandet.

     

    Under 2009 kallades 10 361 män och av dessa avstod 14,5 % . Till SU/Östra och SU/Mölndal avstod ca 20 % att komma medan de som kallades till SÄS, SKAS och NU avstod i mindre utsträckning (ca 11 %).

     

    Förbättringsförslagen i rapporten bygger på enkätsvar, telefonintervjuer från såväl de som kom som de som uteblev. Det genomfördes också fokusgruppsintervjuer med den personalen som undersökte de kallade (ST-läkare, sjuksköterskor och biomedicinska analytiker) på de kliniskt fysiologiska mottagningarna vid Sahlgrenska universitetssjukhuset Mölndal och Östra, Kungälvs sjukhus (röntgen), Södra Älvsborgs sjukhus (SÄS), Norra Älvsborgs sjukhus (NÄL) och Skaraborgs sjukhus (SkaS).

    Kort om resultaten

    De kallade och personalen var i allmänhet positiva till att sjukvården gjorde screeningundersökning av 65-åriga män. Kallelse och informationsbrev upplevdes av de flesta som bra. Avståndet till screeningorten påverkade inte deltagandet i screeningen negativt trots kommentarer om lång resväg. De som hade längst resväg undersöktes på NÄL och SkaS. Att få ett påminnelsebrev gjorde att flera som glömt eller var bortresta kunde undersökas. Egenavgiften (100 kr) hade inte betydelse för deltagandet. Undersökningen medförde inga obehag och gick snabbt (5 min). Undersökningens korta tid kunde dock vara ett besvär för den som behövde mer omfattande information eller omhändertagande. Informationen om undersökningen var bra men besked om hur vanligt tillståndet var och normalgränserna saknades av de undersökta.

     

    Av dem som avstod från undersökning förekom fysisk psykisk sjukdom eller handikapp som orsak till att det var svårt eller omöjligt att undersökas. Flera hade negativa attityder till massundersökningar och som exempel angavs svininfluensa-vaccinationen för inställningen. Andra orsaker till att man avstod var inställningen ”det drabbar inte mig”. Några hade dålig erfarenhet av sjukvård eller läkarskräck. Det förekom också transportproblem, som att man inte hade egen bil. Den största andel som avstod bodde i Göteborgsregionen (22 %).

     

    Screeningpersonalen upplevde att de flesta var positiva och nöjda med informationen i kallelsen, förutom att man trodde att hela bukaortaavsnittet skulle undersökas. Personalen fick påpekanden från män att egenavgiften (100 kr) utgjorde ett problem för dem som inte hade internet då en betalningsavgift tillkommer. Speciell tid var avsatt för undersökningarna, på två ställen på kvällstid för att det skulle vara lättare med parkering. Ofta räckte undersökningstiden till (5 min) men ibland, om undersökningen var mer komplicerad eller om någon hade svårt att röra sig eller behövde prata, upplevdes tiden för kort.  Principen var att det skulle ges besked om bukaorta var normal eller förstorad, men beskedet gavs på olika sätt, en del fick muntligt besked, andra också skriftligt. Några fick reda på måttet när det var normalt men inte om det var förstorat. Vid upptäckt av vidgad aorta skulle personalen faxa uppgifter till kärlkirurgen i Göteborg. Personalen upplevde att de inte hade klara besked på hur informationen till patienten skulle ges om vidgad aorta upptäcktes. Det var även osäkert om och när patienten skulle bli omhändertagen både beroende på tillgång till mottagningstid till kärlkirurg och beroende på hur stor vidgning aorta hade.

     

    Utvärderingsgruppen har reflekterat över de etiska aspekterna av screeningen. Gruppen anser att tillvägagångssättet visat sig vara hållbart och föreslår endast förbättringar av förfarandet och rekommendationer om alternativa förhållningssätt.

    Sammanfattning av etiska reflektioner vid bukaortascreeningen i Västra    Götaland

    • Information och undersökning byggde på ett rationalistiskt perspektiv där 65-åriga män ansågs vara friska, svensktalande och utan hjälpbehov.
    • Vid komplicerad undersökning eller vidgad aorta var det brist på tidsmarginal vilket innebar att kravet på ett fullgott omhändertagande riskerade att inte kunna uppfyllas.
    • Förfarandet vid beskedet av mätresultat, både skriftligt och muntligt, var inte samstämmiga mellan screeningorterna.
    • Yrkeskategori som inte var utbildad för eller hade erfarenhet av omhändertagande vid besked kunde skapa oro och ångest.
    • Beskeden till männen om och när läkarkontakt skulle fås varierade.
    • Osäkerhet och frustration över att inte ha tillgång till läkare/psykolog fanns bland screeningpersonalen.
  • 5.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Livskvalitet och sexualitet efter stomioperation2010Konferensbidrag (Refereegranskat)
    Abstract [sv]

    Fysiska och psykiska besvär kan påverka hälsan och i förlängningen sexualiteten. Ett exempel är patienten som har diarréer, ont i magen och förlorar vikt och energi orsakat av en inflammatorisk tarmsjukdom.  Medan att ha en cancer i colon eller rektum ger oftast inga besvärliga symtom, inte i början. Men för patienten med cancer påverkar behandlingen i form av strålning, kirurgi och cytostatika bla. sexualiteten.

    Det är viktigt att sjuksköterskan är medveten om patienten påverkas även sexuellt. Sjuksköterskan kan vanligtvis prata med patienten om privata saker som tex. avföringsvanor och om döden. Sjuksköterskan skall även ges information om sexualiteten, och frågor skall kunna ställas av patienten och eventuell partner. Sexualiteten betyder olika mycket för olika personer och vid olika tidpunkter i livet. Att negligera patientens behov om att prata om detta eller resonera som att de får någon annan ta upp om (läkaren) är inte rätt. Människan är en sexuell varelse.

  • 6.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Patients experience of fast track: ”operates on Tuesday and getting home at Thursday2008Ingår i: 17th Biennial Congress of the World Council of Enterostomal Therapists, Ljubljana, 2008, 2008Konferensbidrag (Refereegranskat)
    Abstract [en]

    Background

    Today is length of staying at the hospital only some days even after large surgery. In the literature it is well-known how many days the patients stayed at hospital, how much pain they had after surgery and how many days they felt sick. But we didn't know the patients experienced the first hours at the nursing ward after surgery and who get through the first time at home after early getting home.

     

    Aim

    The aim was to describe patients experience of ”early getting home” after intestine surgery.

     

    Patients and method

    Seven women and three men who had been operated with large intestine surgery was included in the study. They was stay between two and four days after surgery at the hospital. After the patient getting home a nurse had a telephone call after a couple of days. They have a visit at outpatient clinic visit by three to five weeks later at the surgeon. At the same time interviews were making about 30 minute, the interview was typewriter exactly. The analyse method was on data was phenomenology.

     

    Result

    The patients felt trust to the caregivers, but the strongest supports were experienced from the relatives who had involved and engaged in their situation. The study showed that all patients trusted in caring, staff and doctors but they also said that they didn’t ha any other choice. The patients experienced the treatment from the nursing staff often as good. Throw the caregivers attention the patients felt that they had been seen and felt confirmed. The patients experienced fear and worry which come from loosing their control over the situation. The patients described health was the same as quality of life, to be with family or to have friends and be active in life.

     

    Conclusion

    All patients who had relatives support at home experienced their early getting home as positive. The following telephone call home from nurses were imported and was a part of satisfaction, but the largest support they had were the relatives who had involved in their situation.

  • 7.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Rektalcancer och sexualitet2009Ingår i: Patientkanalen, ISSN 1403-7149, nr 2, s. 12-14Artikel i tidskrift (Övrig (populärvetenskap, debatt, mm))
  • 8.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Sexualitet och fertilitet vid inflammatorisk tarmsjukdom2008Övrigt (Övrigt vetenskapligt)
  • 9.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Stomiteknik- och terapi i ett historiskt perspektiv2008Ingår i: Stomi- och tarmopererad : Ett helhetsperspektiv, Lund: Studentlitteratur , 2008, s. 17-22Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 10.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    To be an ostomate or not to be, is the question!2012Konferensbidrag (Refereegranskat)
  • 11.
    Berndtsson, Ina
    et al.
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Carlsson, Eva
    Persson, Eva
    Framtida forskning2008Ingår i: Stomi- och tarmopererad: Ett helhetsperspektiv, Lund: Studentlitteratur , 2008, s. 217-222Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 12.
    Berndtsson, Ina
    et al.
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Carlsson, Eva
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Persson, Eva
    School of Health Sciences, University of Borås, Borås.
    Lindholm, Elisabet
    Colorectal Unit, Sahlgrenska University Hospital/Östra, Sahlgrenska Academy,.
    Long-Term Adjustment to Living With an Ileal Pouch-Anal Anastomosis2011Ingår i: Diseases of the Colon & Rectum, ISSN 0012-3706, E-ISSN 1530-0358, Vol. 54, nr 2, s. 193-199Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    PURPOSE: The aim of this study was to describe long-term adjustment to life with an ileal pouch-anal anastomosis after surgery for ulcerative colitis, to investigate the relationship of pouch function to adjustment, and to explore factors affecting quality of life.

    METHODS: A total of 369 patients treated between 1982 and 1993 were included in the study. Questionnaires designed to assess bowel (pouch) function (Oresland score) and disease-specific adjustment (Swedish version of the Ostomy Adjustment Scale), plus open-ended questions regarding quality of life, were sent by mail. Open-ended questions were analyzed with qualitative content analysis.

    RESULTS: A total of 252 patients (84%) returned the disease-specific adjustment questionnaire (141 males/111 females); median age, 51 (range, 26-77) years; median follow-up, 15 (range, 10-21) years after construction of the ileal pouch-anal anastomosis. High adjustment ratings were found for all statements, with the maximum median score of 6 on 28 of the 36 items. Items with the lowest ratings (median score, 5) pertained to things one would do if not for the IPAA, feeling free to travel, ability to enjoy sexual activities, comfort with body image, ability to laugh about awkward situations, confidence in the appliance, and whether the surgery helped with decisions on what things are most important in life. Participants with the lowest adjustment scores had low bowel function scores (P < .0001). Open-ended quality of life questions were answered by 150 patients (59.5%). The most important areas for quality of life were health, family, restroom access, and friends. Five categories emerged from the qualitative content analysis: living a "normal" life, food restrictions, physical limitations, influence of restroom access on social life, and being dependent on medical care.

    CONCLUSIONS: Most participants had adjusted well to life with an ileal pouch-anal anastomosis and considered life to be normal. Good public restrooms were important for quality of life. Improving pouch function may help patients adjust to the postoperative state, but deeper understanding of reasons for poor adjustment despite good pouch function is needed.

  • 13.
    Berndtsson, Ina
    et al.
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Lindholm, E
    Oresland, T
    Börjesson, L
    Long-term outcome after ileal pouch-anal anastomosis: function and health-related quality of life2007Ingår i: Diseases of the Colon & Rectum, ISSN 0012-3706, E-ISSN 1530-0358, Vol. 50, nr 10, s. 1545-52Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    PURPOSE: This study was designed to investigate long-term pouch function and health-related quality of life in a single, large cohort of patients with ileal pouch-anal anastomosis for ulcerative colitis. METHODS: Data from 370 patients were included in the study. Thirty-nine patients (11 percent) did not have a functioning pouch (failures) but were included in the health-related quality of life analyses. Pouch function (Oresland score) and health-related quality of life (Short Form-36) were evaluated by postal questionnaires. A total of 88 percent of the patients with a functioning ileal pouch-anal anastomosis returned the questionnaires vs. 76 percent of the failures. Median follow-up time after ileal pouch-anal anastomosis was 15 years vs. 11 years after failure. An age-matched and gender-matched reference sample (n = 286) was randomly drawn from the Swedish Short Form-36 database. RESULTS: Median bowel frequency was six per 24 hours: 76 percent emptied the reservoir at night, 23 percent had urgency, 12 percent had evacuation difficulties, and 17 percent experienced soiling during the day. Fifty-two percent of the males and 32 percent of the females suffered from soiling at night. More than one-half of the patients had occasional perianal soreness, 6 percent considered the pouch to be a social handicap, and 94 percent were satisfied with their pouch. Patients with a functioning ileal pouch-anal anastomosis did not differ from the reference sample on any Short Form-36 domain, except for a reduced score in General Health (P = 0.02). Pouch function was positively correlated to health-related quality of life. Patients with pouch failure had reduced health-related quality of life in most domains. CONCLUSIONS: Patients' satisfaction is high and functional outcome is good after ileal pouch-anal anastomosis. Poor pouch function affects health-related quality of life negatively. Patients with failure after ileal pouch-anal anastomosis are substantially limited in a variety of health-related quality of life domains.

  • 14.
    Berndtsson, Ina
    et al.
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Persson, Eva
    Carlsson, Eva
    Sexualitet och fertilitet2008Ingår i: Stomi- och tarmopererad: Ett helhetsperspektiv, Lund: Studentlitteratur , 2008, 1:1, s. 187-208Kapitel i bok, del av antologi (Övrig (populärvetenskap, debatt, mm))
  • 15.
    Carlsson, E.
    et al.
    Institute for Care and Health Sciences, University of Gothenburg, Sahlgrenska University Hospital.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Hallén, A. M.
    Colorectal Unit, Sahlgrenska University Hospital.
    Lindholm, E.
    Colorectal Unit, Sahlgrenska University Hospital.
    Persson, E.
    University of Borås,School of Health Sciences .
    Concerns and quality of life before surgery and during the recovery period in patients with rectal cancer and an ostomy2010Ingår i: Journal of Wound, Ostomy and Continence Nursing, Vol. 37, nr 6, s. 654-661Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    PURPOSE: Rectal cancer is the most common reason for a person to undergo ostomy surgery. The aim of this study was to assess concerns and health-related quality of life (HRQOL) before surgery and during the first 6 months following ostomy surgery in the presence of rectal cancer. SUBJECTS AND SETTINGS: The sample comprised 57 patients at a university hospital in Gothenburg, Sweden. Their median age was 66 years (range, 30-87); 35 men and 22 women participated in the study. METHODS: Participants prospectively answered questionnaires preoperatively, and at 1, 3, and 6 months postoperatively.Concerns were assessed using the rating form of the Inflammatory Bowel Disease Patient Concerns, and HRQOL was evaluated using the 36-Item Short Form Health Survey. Results were compared with population norms. RESULTS: Participants expressed concerns associated with developing cancer, being a burden on others, and related to the uncertain nature of disease. Health-related quality of life scores dropped significantly in 6 of 8 domains when preoperative scores were compared to those obtained 1 month postoperatively, but scores improved at 6 months. There were significant differences between preoperative study group scores and population norms on physical and emotional role function, social function, and for mental health domains. Significant differences persisted when population norms were compared to study group scores 6 months following surgery on all these domains except mental health. Participants identified good relations with significant others, social and leisure activities, psychological issues, and health as important for maintaining QOL. Obstacles to maintaining QOL included fatigue, pain, illness-induced limitations in life, and worries over what their new life would entail. CONCLUSION: Surgical management of rectal cancer raises concerns and profoundly impairs QOL during the first several postoperative months. © 2010 Wound, Ostomy and Continence Nurses Society.

  • 16. Carlsson, Eva
    et al.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Hälsa och sjukdom2008Ingår i: Stomi- och tarmopererad: Ett helhetsperspektiv, . Lund: Studentlitteratur , 2008, s. 151-174Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 17. Carlsson, Eva
    et al.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Persson, Eva
    Stomibandagering.2008Ingår i: Stomi- och tarmopererad: Ett helhetsperspektiv, Lund: Studentlitteratur , 2008, s. 69-82Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 18.
    Dahlborg Lyckhage, Elisabeth
    et al.
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för vårdvetenskap på avancerad nivå.
    Gardvik, Anna
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för vårdvetenskap på avancerad nivå.
    Karlsson, Helena
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för vårdvetenskap på avancerad nivå.
    Törner Mulari, Jenny
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för vårdvetenskap på avancerad nivå.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Young Women With Anorexia Nervosa2015Ingår i: SAGE Open, ISSN 2158-2440, E-ISSN 2158-2440, Vol. 5, nr 1Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The aim of this study was to describe how young women living with self-identified anorexia narrate about their lives by blogging. Thirteen Swedish blogs were chosen and analyzed by means of qualitative content analysis. The results described falling ill, the illness itself, and the path to recovery. Low self-esteem, depressed state of mind, and self-destructive behavior were typical signs at the start of the illness. The women’s lives were characterized by a need for controlling their body by tormenting it and by the illness demanding all their concentration and energy. The women suffered from the feeling of being a disappointment to their family members. The illness was like an enemy that had to be defeated with the help of family members, health care professionals, and by means of therapy. A turning point occurred when the women felt at their worst or had tired of the illness and could concentrate on something other than their body and the eating disorder. Suffering from self-identified anorexia was described as experiencing low self-esteem. The illness took all of the women’s time and energy. For a turning point to be reached, the women needed support from family, friends, and health care professionals, including the use of distractions.

  • 19.
    Emilsson, Maria
    et al.
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - avancerad nivå.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - avancerad nivå.
    Gustafsson, Per A
    Linköping University, Department of Clinical and Experimental Medicine and Department of Child and Adolescent Psychiatry, Center for Social and Affective Neuroscience, Linköping , Sweden..
    Horne, Robert
    University College London, Centre for Behavioural Medicine, UCL School of Pharmacy, London , UK.
    Marteinsdottir, Ina
    Linnæus University, Department of Medicine and Optometry Faculty of Health and Life Sciences, , Kalmar , Sweden.
    Reliability and validation of Swedish translation of Beliefs about Medication Specific (BMQ-Specific) and Brief Illness Perception Questionnaire (B-IPQ) for use in adolescents with attention-deficit hyperactivity disorder.2019Ingår i: Nordic Journal of Psychiatry, ISSN 0803-9488, E-ISSN 1502-4725Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Objectives: The purpose of this study was to assess the reliability and validity of Swedish translations of the Beliefs about Medicines Questionnaire-Specific (BMQ-Specific) and Brief Illness Perception Questionnaire (B-IPQ) for use in adolescents with ADHD. Methods: Forward and backward translations of the BMQ-Specific and B-IPQ scales to Swedish were conducted and reviewed by adolescents with ADHD and professionals. The validity and reliability of both questionnaires were investigated in a cross-sectional study of 101 adolescents (13-17 years) on a long-term prescription of ADHD medication recruited from two child and adolescent psychiatric outpatient clinics in Sweden. Results: Regarding the BMQ-Specific, principal component analysis (PCA) loadings confirmed the previously defined components of Specific-Necessity and Specific-Concern. The PCA for B-IPQ revealed two components, the first one, B-IPQ Consequences, captured questions regarding perceptions of the implication of having ADHD (items 1, 2, 5, 6 and 8) and the second one, B-IPQ-Control, the perceptions of the capability to manage the ADHD disorder (items 3, 4 and 7). The Cronbach alpha coefficients for BMQ-Specific-Necessity scale was α = 0.80, for BMQ-Specific-Concern scale α = 0.75, B-IPQ Consequences α = 0.74 and for B-IPQ-Control α = 0.44. Conclusions: The present results prove the Swedish translation of BMQ-Specific and B-IPQ to be valid and reliable for utilization in adolescents with ADHD. The PCA confirmed the original components for BMQ-Specific and the recent findings of two main B-IPQ components describing emotional and cognitive implications versus the capability for self-care maintenance of ADHD.

  • 20.
    Emilsson, Maria
    et al.
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för specialistsjuksköterskeutbildning.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Lötvall, Jan
    Krefting Research center.
    Millqvist, Eva
    Department of Internal Medicine/Respiratory Medicine and Allergology, Sahlgrenska University Hospital.
    Lundgren, Jesper
    Instutionen för Psykologi, Göteborgs universitet.
    Johansson, Åke
    Avdelning för lung medicin Central sjukhuset Skövde.
    Brink, Eva
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning. Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för specialistsjuksköterskeutbildning.
    The Influence of personality traits and beliefs about medicines on adherence to asthma treatment2011Ingår i: Primary Care Respiratory Journal, ISSN 1471-4418, E-ISSN 1475-1534, Vol. 20, nr 2, s. 141-147Artikel, forskningsöversikt (Refereegranskat)
    Abstract [en]

    Aim:To explore the influence of personality traits and beliefs about medicines on adherence to treatment with asthma medication.

    Methods:Respondents were 35 asthmatic adults prescribed controller medication. They answered questionnaires about medication adherence, personality traits, and beliefs about medicines.

    Results:In gender comparisons, the personality traits “Neuroticism” in men and “adherence to medication” were associated with lower adherent behaviour. Associations between personality traits and beliefs in the necessity of medication for controlling the illness were identified. Beliefs about the necessity of medication were positively associated with adherent behaviour in women. In the total sample, a positive “necessity-concern” differential predicted adherent behaviour.

    Conclusion:The results imply that personality and beliefs about medicines may influence how well adults with asthma adhere to treatment with asthma medication.

  • 21.
    Emilsson, Maria
    et al.
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för vårdvetenskap på avancerad nivå.
    Gellerstedt, Martin
    Högskolan Väst, Institutionen för ekonomi och it, Avd för juridik, ekonomi, statistik och politik.
    Skyvell Nilsson, Maria
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för vårdvetenskap på grundnivå.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för vårdvetenskap på avancerad nivå.
    Johansson, Kristina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för hälsa, kultur och pedagogik.
    Pennbrant, Sandra
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för vårdvetenskap på avancerad nivå.
    Pedagogical challenges in nurse education: a case study focusing on the completion rate in theoretical education at a Swedish University2014Ingår i: Vol. 6, nr 11, s. 14 s.-Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: The purpose of this survey was to relate completion rate and results on national clinical final examinations to student’s admission background and examination results for nursing and medical courses.

    Methods: The research data were based on a quantitative case study, with 286 nursing students, using statistical analysis.

    Results: The programme's overall completion rate was 76%, i.e. almost one out of four students did not complete the programme. The higher students' upper secondary/high school grades, the fewer attempts they needed to pass the nursing and medical courses exams (p<0.001). The average examination attempts needed to pass courses in medical science was significantly greater than the number needed to pass courses in nursing science (p<0.001). In a multivariate analysis both upper secondary/high school grades and average examination attempts needed to pass were significant predictors for national clinical final examination score.

    Conclusion: In sum, upper secondary/high school grades and examination attempts needed, especially for courses in medical science, may be regarded as important indicators of achieved knowledge and skills which are tested in the national final examination.

  • 22.
    Emilsson, Maria
    et al.
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - avancerad nivå.
    Gellerstedt, Martin
    Högskolan Väst, Institutionen för ekonomi och it, Avd för informatik.
    Skyvell Nilsson, Maria
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - avancerad nivå.
    Johansson, Kristina
    Högskolan Väst, Institutionen för individ och samhälle, Avdelningen för psykologi, pedagogik och sociologi.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - avancerad nivå.
    Pennbrant, Sandra
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - grundnivå.
    Pedagogical challenges in nurse education: A Case Study Focusing on the Completion Rate in Theoretical Education at a Swedish University2014Konferensbidrag (Refereegranskat)
  • 23.
    Johansson, Ann-Caroline
    et al.
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur.
    Axelsson, Malin
    Malmo University, Department of Care Science, Faculty of Health and Society..
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Brink, Eva
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning. Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för specialistsjuksköterskeutbildning.
    Illness perceptions in relation to experiences of contemporary cancer care settings among colorectal cancer survivors and their partners2014Ingår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 9, artikel-id 23581Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Illness is constituted by subjective experiences of symptoms and their psychosocial consequences. Illness perceptions concern people’s lay beliefs about understandings and interpretation of a disease and expectations as to disease outcome. Our knowledge about illness perceptions and coping in relation to the cancer care context among persons with colorectal cancer (CRC) and their partners is incomplete. The aim of the present study was to explore illness perceptions in relation to contemporary cancer care settings among CRC survivors and partners. The present research focused on illness rather than disease, implying that personal experiences are central to the methodology. The grounded theory method used is that presented by Kathy Charmaz. The present results explore illness perceptions in the early recovery phase after being diagnosed and treated for cancer in a contemporary cancer care setting. The core category outlook on the cancer diagnosis when quickly informed, treated, and discharged illustrates the illness perceptions of survivors and partners as well as the environment in which they were found. The cancer care environment is presented in the conceptual category experiencing contemporary cancer care settings. Receiving treatment quickly and without waiting was a positive experience for both partners and survivors; however partners experienced the information as massive and as causing concern. The period after discharge was being marked by uncertainty and loneliness, and partners tended to experience non-continuity in care as more problematic than the survivor did. The results showed different illness perceptions and a mismatch between illness perceptions among survivors and partners, presented in the conceptual category outlook on the cancer diagnosis. One illness perception, here presented among partners, focused on seeing the cancer diagnosis as a permanent life-changing event. The other illness perception, here presented among survivors, concentrated on leaving the cancer diagnosis behind and moving forward. The importance of illness perceptions among survivors, and the differences in illness perceptions between survivors and partners, should be recognized by healthcare professionals to achieve the goals of person-centered contemporary cancer care.

  • 24.
    Johansson, Ann-Caroline
    et al.
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - avancerad nivå.
    Axelsson, Malin
    Malmö University, Department of Care Science, Faculty of Health and Society, Malmö, Sweden.
    Grankvist, Gunne
    Högskolan Väst, Institutionen för individ och samhälle, Avdelningen för psykologi, pedagogik och sociologi.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - avancerad nivå.
    Brink, Eva
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - avancerad nivå.
    Symptoms, Illness Perceptions, Self-Efficacy and Health-Related Quality of Life Following Colorectal Cancer Treatment2018Ingår i: Open Journal of Nursing, ISSN 2162-5336, E-ISSN 2162-5344, Vol. 8, nr 9, s. 591-604Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Introduction: Lower health-related quality of life (HRQoL) is associated with fatigue, poor mental and poor gastrointestinal health during the first three months after colorectal cancer (CRC) treatment. Research indicates that maintaining usual activities has a positive impact on HRQoL after treatment for CRC. Illness perceptions have been associated with HRQoL in other cancer diseases, and self-efficacy has been associated with HRQoL in gastrointestinal cancer survivors. Our knowledge about illness perceptions and self-efficacy in relation to maintaining everyday activities and HRQoL following CRC treatment is incomplete. Aim: To explore associations between HRQoL, fatigue, mental health, gastrointestinal health, illness perceptions and self-efficacy in relation to maintaining everyday activities, three months after surgical CRC treatment. A further aim was to test the Maintain Function Scale in a CRC population. Method: The study was cross-sectional. Forty-six persons participated. Data were collected using questionnaires. Descriptive and analytical statistics were used. Results: Persons who were more fatigued, depressed, worried, and had more diarrhea were more likely to report lower HRQoL. Increased fatigue and diarrhea were associated with decreased HRQoL. Concerning illness perceptions, persons who reported negative emotions and negative consequences of CRC were more likely to report lower HRQoL. Persons scoring higher on self-efficacy were more likely to report higher HRQoL. Increased self-efficacy was associated with increased HRQoL. The Maintain Function Scale was suitable for assessing self-efficacy in relation to maintaining everyday activities. Conclusions: Nursing support to improve self-efficacy and illness perceptions and to minimize symptoms during recovery should have a favorable impact on HRQoL.

  • 25.
    Johansson, Ann-Caroline B
    et al.
    University of Gothenburg, Institute of Health and Care Sciences, Sahlgrenska Academy, Gothenburg, Sweden.
    Axelsson, Malin
    Malmö University, Department of Care Science, Faculty of Health and Society, Malmö, Sweden.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Brink, Eva
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för specialistsjuksköterskeutbildning.
    Self-Reorientation Following Colorectal Cancer Treatment: A Grounded Theory Study2015Ingår i: Open Nursing Journal, ISSN 1874-4346, E-ISSN 1874-4346, Vol. 9, s. 25-32Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    After colorectal cancer (CRC) treatment, people reorganize life in ways that are consistent with their understanding of the illness and their expectations for recovery. Incapacities and abilities that have been lost can initiate a need to reorient the self. To the best of our knowledge, no studies have explicitly focused on the concept of self-reorientation after CRC treatment. The aim of the present study was therefore to explore self-reorientation in the early recovery phase after CRC surgery. Grounded theory analysis was undertaken, using the method presented by Charmaz. The present results explained self-reorientation as the individual attempting to achieve congruence in self-perception. A congruent self-perception meant bringing together the perceived self and the self that was mirrored in the near environs. The results showed that societal beliefs and personal explanations are essential elements of self-reorientation, and that it is therefore important to make them visible.

  • 26.
    Jonsson, Åsa
    et al.
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för specialistsjuksköterskeutbildning.
    Ottosson, Sandra
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för specialistsjuksköterskeutbildning.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning. Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för specialistsjuksköterskeutbildning.
    Jag vet inte riktigt vad jag ska göra med svaret…: En intervjustudie om distriktssköterskors erfarenheter av att samtala med patienter om alkohol2013Ingår i: Vård i Norden, ISSN 0107-4083, E-ISSN 1890-4238, Vol. 33, nr 3, s. 4-8Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: Nurses should work from health perspective and have profound knowledge of what affects public health. Through dialogue with patients, nurses have an essential role to illustrate patients drinking behavior and illuminate the effects of alcohol on health.

    Aim: The aim of this study was to illuminate the district nurses experiences of dialogue with patients concerning alcohol.

    Method: Eight district nurses were interviewed at experiences of dialogue with patients concerning alcohol.

    Findings: Three themes were interpreted, as feeling of security in reassuring to know that there had time, have sufficient knowledge and to find a good opportunity to talk about alcohol. Personal values attitude affected the dialogue Patient’s responsibility for the dialogue when the patient herself not asked at alcohol was it no conversation or if the patient signaled that they did not want to talk about alcohol ended the dialogue.

    Conclusion: The experience of safety in the work situation, personal attitudes towards alcohol affected the district nurse´s attitudes and abilities to accomplish dialogue with patients concerning alcohol. It was remarkable that the responsibility for the content of the dialogue in several occasions was submitted to patients. The district nurses want guidelines and procedures for working with alcohol issues.

  • 27.
    Lindholm, Elisabet
    et al.
    Sahlgrenska University Hospital,Colorectal Unit.
    Persson, Eva
    University of Borås, School of Health Sciences.
    Carlsson, Eva
    Sahlgrenska Academy, University of Gothenburg, Institute for Care and Health Sciences.
    Hallén, Ann-Marie
    Sahlgrenska University Hospital,Colorectal Unit.
    Fingren, Jeanette
    Sahlgrenska University Hospital,Colorectal Unit.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Ostomy-Related Complications After Emergent Abdominal Surgery: A 2-Year Follow-up Study.2013Ingår i: Journal of Wound, Ostomy and Continence Nursing (WOCN), ISSN 1071-5754, E-ISSN 1528-3976, Vol. 40, nr 6, s. 603-610Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    PURPOSE: The aim of this study was to prospectively evaluate ostomy-related complications and describe ostomy configuration in patients undergoing acute abdominal surgery.

    SUBJECTS AND SETTING: The study sample comprised 144 patients with a median age of 67 years (IOR: 53.5-78 years) who underwent an intestinal ostomy as part of an acute abdominal surgical procedure. The research setting was the surgical and gynecological clinics at the Sahlgrenska University Hospital in Gothenburg, Sweden.

    METHODS: Ostomy configuration, diameter, height, and the presence of stomal and peristomal complications were assessed by a WOC nurse 1 to 2 times while in hospital, once at the ostomy outpatient clinic 2 weeks after discharge, and at 3, 6, 12, and 24 months following ostomy creation.

    RESULTS: The types of ostomies evaluated were end colostomy (58%), end ileostomy (18%), loop ileostomy (17%), and loop colostomy (7%). Most stomal or peristomal complications occurred within 1 year after surgery (31 of 57; 54.4%). Necrosis, separation, and stenosis were most common in patients with an end colostomy. Peristomal skin complications occurred in 45% of subjects during the first 6 months after surgery. The ostomy's diameter decreased significantly during the hospital course and over the first 2 weeks following hospital discharge in patients with end colostomy (P < .0001), end ileostomy (P < .0081), loop ileostomy (P = .008), and loop colostomy (ns). Patients with a low ostomy had peristomal skin problems ranging between 21% and 57% over this time period. The frequency of using a pouching system that incorporated convexity was highest in the case of loop ileostomy, used in 67% at 6 months.

    CONCLUSION: During the first 2 weeks after discharge, the physical configuration of the ostomy evolves and the pouching system must be frequently adjusted by a WOC nurse. Stomal and peristomal complications are prevalent during the first 2 postoperative years and especially during the first 6 months.

  • 28.
    Nordqvist, L.
    et al.
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur.
    Thorn, S.
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur.
    Alsén, Pia
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för vårdvetenskap på grundnivå. Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - avancerad nivå.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Difficulties experienced by men during the first year after their myocardial infarction and fatigue2015Ingår i: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 14, nr S1, s. S46-S46, artikel-id 125Artikel i tidskrift (Refereegranskat)
  • 29.
    Persson, E.
    et al.
    University of Borås, School of Health sciences.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Carlsson, E.
    Göteborg University, The Sahlgrenska Academy, Institute of Health and Care Sciences.
    Hallén, A. M.
    Sahlgrenska University Hospital.
    Lindholm, E.
    Sahlgrenska University Hospital.
    Stoma-related complications and stoma size – a 2-year follow up2010Ingår i: Colorectal Disease, ISSN 1462-8910, E-ISSN 1463-1318, Vol. 12, nr 10, s. 971-976Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Abstract Aim The purpose of the study was to prospectively describe stoma configuration and evaluate stoma-related complications and their association with possible risk factors. Method All elective patients (n = 180) operated on with a formation of colostomy, ileostomy or loop-ileostomy between 2003 and 2005 were included in the study. Follow up took place on the ward postoperatively and five times during 2 years after discharge. On these occasions the diameter and height of the stoma were recorded. Complications such as peristomal skin problems, necrosis, leakage caused by a low stoma, stenosis, granuloma formation, prolapse and peristomal hernia formation were evaluated. Results Most complications occurred 2 weeks after discharge; 53% of patients with colostomies, 79% with loop-ileostomies and 70% of patients with end-ileostomy had one or more complications. The most common complication was skin problems and it was most common in patients with end-ileostomies (60%) and loop-ileostomies (73%). Postoperatively at ward review, the most common complication was necrosis, which occurred in 20% of patients with a colostomy. Granuloma formation was most frequent in colostomies. Almost all patients with an end-ileostomy and loop-ileostomy with a height lower than 20 mm had leakage and skin problems as had half of the patients with a colostomy height lower than 5 mm. Conclusion To prevent stoma-related complications, it is important to produce an adequate height of the stoma, with early and regular follow ups and adjustment of the appliance. To work closely in collaboration with the colorectal surgeons is of utmost important to provide feedback and in turn, to improve stoma outcome.

  • 30. Persson, Eva
    et al.
    Berndtsson, InaHögskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.Carlsson, Eva
    Stomi- och tarmopererad: Ett helhetsperspektiv2008Samlingsverk (redaktörskap) (Övrigt vetenskapligt)
  • 31.
    Persson, Eva
    et al.
    School of Health Sciences, University of Borås.
    Lindholm, Elisabet
    Colorectal Unit, Sahlgrenska University Hospital / Östra, Sahlgrenska Academy.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Lundstam, Ulf
    Colorectal Unit, Sahlgrenska University Hospital / Östra, Sahlgrenska Academy.
    Hultén, Leif
    Colorectal Unit, Sahlgrenska University Hospital / Östra, Sahlgrenska Academy.
    Carlsson, Eva
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg.
    Experiences of living with increased risk of developing colorectal and gynaecological cancer in individuals with no identified gene mutation2012Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 26, nr 1, s. 20-27Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: In most families with familial cancers, mutations have not been demonstrated; thus, healthy individuals cannot be tested for mutation status. As a consequence, many persons at risk of familial cancer live with an unknown, but presumably high, risk of developing cancer.Aim: The aim of this study was to describe individuals’ perceptions of living with an increased isk of colorectal and gynaecologic cancer where the gene mutation is unknown.Methods: Interviews were conducted with 30 individuals with familial colorectal cancer. These ersons have no known mutation and therefore should be considered presumptive carriers. In onnection with the interviews, all participants were offered to take part in a surveillance programme consisting of a colonoscopy and gynaecological examinations. The interview ranscriptions were analysed by the use of qualitative content analysis.Results: Two themes emerged from the analyses: first, living under a threat with two ubthemes, threat awareness and distancing oneself from the threat. The second theme, living with uncertainty, was divided into four subthemes: influencing one’s family, being on the safe side, facing emotions evoked by examinations and trust and disappointment to the medical services.Conclusion: These persons live with a lifelong uncertainty with a varying intensity depending on what happens throughout the life trajectory. They have no diagnosis or patient group to elate to; therefore, the entire situation is often perceived as abstract. Thus, providing nformation and counselling needs to be more deeply elucidated, and we need to address both ituational and existential ways of uncertainty. This will, however, require professionals of all disciplines to understand the meaning of uncertainty and help ensure that its adverse effects re decreased with adequate nursing interventions.

  • 32.
    Pettersson, Monica
    et al.
    Sahlgrenska University Hospital, Department of Vascular Surgery.
    Gedda, Birgitta
    Primary Health Care Fyrboda, Research and Development Unit.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för omvårdnad, hälsa och kultur, Avd för sjuksköterskeutbildning.
    Experiences of Screening for Abdominal Aortic Aneurysm: In and Out on Five Minutes2014Ingår i: Health, ISSN 1949-4998, E-ISSN 1949-5005, Vol. 6, s. 1385-1395Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: The purpose of AAA screening is to prevent rupture and mortality. Screening for life-threatening diseases is a double-edged sword. The aim of this study is to describe 65-year-old men's experiences of health related quality of life and anxiety after screening for Abdominal Aortic Aneurysm, and experiences of information and reasons for not participating. Methods: 368 men answered Short Form 36 (SF-36), and anxiety and depression scale (HAD). 72 telephone interviews were conducted with the participants and 77 with those who declined to take part in the screening programme. Results: The SF-36 domains of Physical Function and Role limitations due to emotional health problems were significantly better for men who had undergone screening compared to a matched population. Compared to non-smokers, smokers had lower values in the SF-36 domains of general health perceptions, social functioning, role limitations due to emotional health problems and mental health. 80% of patients did not experience any form of anxiety/panic in connection with the screening invitation. Of the men who did not participate, 56% stated that they would like to be screened or had already undergone the examination. Conclusion: The men who underwent the investigation were healthier in some of the SF-36 domains than the general population. The participants did not experience any great anxiety before the screening and despite the short duration of the examination.

  • 33.
    Tengelin, Ellinor
    et al.
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - avancerad nivå. Jönköping University, School of Health and Welfare, Jönköping, Sweden.
    Bülow, Pia H
    University of the Free State, Department of Social Work, Bloemfontein, South Africa.Jönköping University, School of Health and Welfare, Jönköping, Sweden.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - avancerad nivå.
    Dahlborg Lyckhage, Elisabeth
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - avancerad nivå.
    Norm-Critical Potential in Undergraduate Nursing Education Curricula: A Document Analysis2019Ingår i: Advances in Nursing Science, ISSN 0161-9268, E-ISSN 1550-5014, Vol. 42, nr 2, s. E24-E37Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The documents and literature that regulate nursing education are based on certain values and knowledge, and the underlying power in the curriculum raises the question of how health care professionals are molded during the course of their education. Norm criticism is a concept with its roots in critical pedagogy and gender and queer studies, emphasizing the origins as well as the consequences of marginalization, power, and knowledge of what is generally accepted as "normal" and "true." Norm criticism is used in this article to analyze the documents and literature underlying a nursing program in Sweden, which are shown to include a sometimes politically correct rhetoric, but one lacking a firm basis in social justice values.

  • 34.
    Tengelin, Ellinor
    et al.
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - avancerad nivå.
    Cliffordson, Christina
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen for hälsopromotion och vårdvetenskap.
    Dahlborg Lyckhage, Elisabeth
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - avancerad nivå.
    Berndtsson, Ina
    Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen för omvårdnad - avancerad nivå.
    Constructing the Norm-critical awareness scale: A scale for use in educational contexts promoting awareness of prejudice, discrimination, and marginalisation2019Ingår i: Equality, Diversity and Inclusion, ISSN 2040-7149, E-ISSN 2040-7157Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Purpose: Healthcare professionals' conscious or unconscious norms, values and attitudes have been identified as partial explanations of healthcare inequity. Norm criticism is an approach that questions what is generally accepted as "normal" in society, and it enables professionals to identify norms that might cause prejudice, discrimination and marginalisation. In order to assess norm-critical awareness, a measurement scale is needed. The purpose of this paper is to develop a scale for measuring norm-critical awareness. Design/methodology/approach: The scale-development process comprised a qualitative item-generating phase and a statistical reduction phase. The item pool was generated from key literature on norm criticism and was revised according to an expert panel, pilot studies and one "think aloud" session. To investigate the dimensionality and to reduce the number of items of the scale, confirmatory factor analysis was performed. Findings: The item-generation phase resulted in a 46-item scale comprising five theoretically derived dimensions revolving around function, consequences, identity, resistance and learning related to norms. The item-reduction phase resulted in an instrument consisting of five dimensions and 20 items. The analyses indicated that a summary score on the scale could be used to reflect the broad dimension of norm-critical awareness. Originality/value: The Norm-critical awareness scale comprises five theoretically derived dimensions and can be used as a summary score to indicate the level of norm-critical awareness in educational contexts. This knowledge is valuable for identifying areas in greater need of attention. © 2019, Emerald Publishing Limited.

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