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  • 1.
    Nordin, Annika
    et al.
    Department of Quality improvement and Leadership, Jönköping Academy of Improvement of Health and Welfare, Jönköping University School of Health and Welfare, Jonkoping (SWE).
    Kjellstrom, Sofia
    Department of Quality improvement and Leadership, Jönköping Academy of Improvement of Health and Welfare, Jönköping University School of Health and Welfare, Jonkoping (SWE).
    Robert, Glenn
    Department of Quality improvement and Leadership, Jönköping Academy of Improvement of Health and Welfare, Jönköping University School of Health and Welfare, Jonkoping (SWE); Division of Methodologies, Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King's College London, London (GBR).
    Masterson, Daniel
    g University School of Health and Welfare, Jonkoping (SWE).
    Areskoug Josefsson, Kristina
    g University School of Health and Welfare, Jonkoping (SWE).
    Measurement and outcomes of co-production in health and social care: a systematic review of empirical studies2023In: BMJ Open, E-ISSN 2044-6055, Vol. 13, no 9, p. e073808-e073808Article in journal (Refereed)
    Abstract [en]

    Background: Co-production is promoted as an effective way of improving the quality of health and social care but the diversity of measures used in individual studies makes their outcomes difficult to interpret.

    Objective: The objective is to explore how empirical studies in health and social care have described the outcomes of co-production projects and how those outcomes were measured.

    Design and methods: A scoping review forms the basis for this systematic review. Search terms for the concepts (co-produc* OR coproduc* OR co-design* OR codesign*) and contexts (health OR 'public service* OR "public sector") were used in: CINAHL with Full Text (EBSCOHost), Cochrane Central Register of Controlled trials (Wiley), MEDLINE (EBSCOHost), PsycINFO (ProQuest), PubMed (legacy) and Scopus (Elsevier). There was no date limit. Papers describing the process, original data and outcomes of co-production were included. Protocols, reviews and theoretical, conceptual and psychometric papers were excluded. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses guideline was followed. The Mixed Methods Appraisal Tool underpinned the quality of included papers.

    Results: 43 empirical studies were included. They were conducted in 12 countries, with the UK representing >50% of all papers. No paper was excluded due to the Mixed Methods Quality Appraisal screening and 60% of included papers were mixed methods studies. The extensive use of self-developed study-specific measures hampered comparisons and cumulative knowledge-building. Overall, the studies reported positive outcomes. Co-production was reported to be positively experienced and provided important learning.

    Conclusions: The lack of common approaches to measuring co-production is more problematic than the plurality of measurements itself. Co-production should be measured from three perspectives: outputs of co-production processes, the experiences of participating in co-production processes and outcomes of co-production. Both self-developed study-specific measures and established measures should be used. The maturity of this research field would benefit from the development and use of reporting guidelines.

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  • 2.
    Suutari, Anne-Marie
    et al.
    The Jönköping Academy for Improvement of Health and Welfare, School of Health and Welfare, Jönköping University, Jönköping (SWE); Department of Internal Medicine and Geriatrics, the Highland Hospital (Höglandssjukhuset), Region Jönköping County, Eksjö (SWE).
    Thor, Johan
    The Jönköping Academy for Improvement of Health and Welfare, School of Health and Welfare, Jönköping University, Jönköping (SWE).
    Nordin, Annika
    The Jönköping Academy for Improvement of Health and Welfare, Jönköping University, Jönköping (SWE).
    Areskoug Josefsson, Kristina
    University West, Department of Health Sciences, Section for health promotion and care sciences. The Jönköping Academy for Improvement of Health and Welfare, Jönköping University, Jönköping (SWE)Department of Behavioral Science, Oslo Metropolitan University, Oslo (NOR).
    Improving heart failure care with an Experience-Based Co-Design approach: what matters to persons with heart failure and their family members?2023In: BMC Health Services Research, E-ISSN 1472-6963, Vol. 23, no 1, p. 1-17, article id 294Article in journal (Refereed)
    Abstract [en]

    Background

    Heart failure is a chronic heart condition. Persons with heart failure often have limited physical capabil‑ity, cognitive impairments, and low health literacy. These challenges can be barriers to healthcare service co-design with family members and professionals. Experience-Based Co-Design is a participatory healthcare quality improve‑ment approach drawing on patients’, family members’ and professionals’ experiences to improve healthcare. The over‑all aim of this study was to use Experience-Based Co-Design to identify experiences of heart failure and its care in a Swedish cardiac care setting, and to understand how these experiences can translate into heart failure care improve‑ments for persons with heart failure and their families.

    Methods

    A convenience sample of 17 persons with heart failure and four family members participated in this single case study as a part of an improvement initiative within cardiac care. In line with Experienced-Based Co-Design meth‑odology, feld notes from observations of healthcare consultations, individual interviews and meeting minutes from stakeholders’ feedback events, were used to gather participants’ experiences of heart failure and its care. Refexive thematic analysis was used to develop themes from data.

    Results

    Twelve service touchpoints, organized within fve overarching themes emerged. The themes told a story about persons with heart failure and family members struggling in everyday life due to a poor quality of life, lack of support networks, and difculties understanding and applying information about heart failure and its care. To be recognized by professionals was reported to be a key to good quality care. Opportunities to be involved in healthcare varied, Further, participants’ experiences translated into proposed changes to heart failure care such as improved information about heart failure, continuity of care, improved relations, and communication, and being invited to be involved in healthcare.

    Conclusions

    Our study fndings ofer knowledge about experiences of life with heart failure and its care, trans‑lated into heart failure service touchpoints. Further research is warranted to explore how these touchpoints can be addressed to improve life and care for persons with heart failure and other chronic conditions

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