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  • 1.
    Flensner, Gullvi
    et al.
    University West, Department of Nursing, Health and Culture, Division of Advanced Nursing. University West, Department of Nursing.
    Ek, Anna-Christina
    Söderhamn, Olle
    University West, Department of Nursing, Health and Culture, Division of Advanced Nursing.
    Reliability and validity of the Swedish version of the Fatigue Impact Scale (FIS).2005In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 12, no 4, p. 170-180Article in journal (Refereed)
    Abstract [en]

    Fatigue is a complex phenomenon that, for those not affected, is hard to understand. To achieve better assessments, caregivers need reliable and valid tools. The aim of this study was to investigate the reliability and validity of the Swedish version of the Fatigue Impact Scale (FIS) among working-aged individuals diagnosed with multiple sclerosis (MS), as well as in a comparative group randomly selected from the general population in the same geographical area. Both individuals with MS ( n =161) and individuals recruited from the general population ( n =194) participated in the study. A questionnaire was used for the data collection. The data were analysed using non-parametric statistical methods. Reliability of FIS was addressed by item-to-item and item-to-total correlations. Concurrent validity was tested for by analysing correlations between the FIS and general questions, and construct validity by investigation of differences in the FIS scores between known groups. The FIS was found to be homogenous, with item-to-total correlation coefficients of 0.42 ≤ r s ≤0.86 ( p [ABSTRACT FROM AUTHOR]

  • 2.
    Flensner, Gullvi
    et al.
    University West, Department of Nursing, Health and Culture, Division of Advanced Nursing.
    Ek, Anna-Christina
    University West, Department of Nursing, Health and Culture.
    Söderhamn, Olle
    University West, Department of Nursing, Health and Culture, Division of Advanced Nursing.
    Reply to commentary on "Reliability and validity of the Swedish version of the Fatigue Impact Scale (FIS)"2006In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 13, no 2, p. 134-Article in journal (Refereed)
  • 3.
    Söderqvist, Helena
    et al.
    The Sahlgrenska Academy at University of Gothenburg, Department of Health and Rehabilitation , Institute of Neuroscience and Physiology , Sweden..
    Eklund, Kajsa
    The Sahlgrenska Academy at University of Gothenburg, Department of Health and Rehabilitation , Institute of Neuroscience and Physiology , Sweden..
    Hedman Ahlström, Britt
    University West, Department of Health Sciences, Section for health promotion and care sciences. The Vårdal Institute, Swedish Institute for Health Sciences , Lund , Sweden.
    Wentz, Elisabet
    The Vårdal Institute, Swedish Institute for Health Sciences , Lund , Sweden.
    The caregivers' perspectives of burden before and after an internet-based intervention of young persons with ADHD or autism spectrum disorder.2017In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 24, no 5, p. 383-392Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Everyday life in a family with a young person with attention-deficit/hyperactivity disorder (ADHD) and/or autism spectrum disorder (ASD), is multifaceted and may be a burden to the caregivers. The aim was to explore experiences of the caregiver situation, and how they were affected when the young persons received Internet-Based Support and Coaching (IBSC).

    METHOD: A multiple descriptive case design was used. Ten caregivers of 10 young persons with ADHD and/or ASD participated, and completed a questionnaire, measuring caregiver burden. Three analysis methods were used; statistical analysis of the caregivers' scores, case reports and qualitative content analysis of an open question.

    RESULTS: Most of the caregivers never had to provide hands-on help with primary ADL, and were able to cope with the young person's problems. The caregivers' role required patience. They had major worries about the future, when they would no longer be around to provide support. After the intervention, there was no common trajectory for all caregivers; their situation either remained unchanged, improved or deteriorated.

    CONCLUSIONS: The caregiver's burden is more or less complex when the young person undergoes the transition into adulthood. The caregiver burden decreased in some families following the young person's participation in IBSC.

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