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  • 1.
    Bergbom, Ingegerd
    et al.
    University of Gothenburg, Institute of Health and Care Sciences at the Sahlgrenska Academy, Gothenburg, Sweden.
    Karlsson, Veronika
    University West, Department of Health Sciences, Section for nursing - undergraduate level.
    Ringdal, Mona
    University of Gothenburg, Institute of Health and Care Sciences at the Sahlgrenska Academy, Gothenburg, Sweden.
    Developing and evaluating an instrument to measure Recovery After INtensive care: the RAIN instrument2018In: BMC Nursing, ISSN 1472-6955, E-ISSN 1472-6955, Vol. 17, no 1, article id 5Article in journal (Refereed)
    Abstract [en]

    Measuring and evaluating patients' recovery, following intensive care, is essential for assessing their recovery process. By using a questionnaire, which includes spiritual and existential aspects, possibilities for identifying appropriate nursing care activities may be facilitated. The study describes the development and evaluation of a recovery questionnaire and its validity and reliability.

  • 2.
    Ringnér, Anders
    et al.
    Umeå University, Department of Nursing,SE-901 87 Umeå, Sweden.
    Björk, Maria
    School of Health Sciences, Jönköping University, CHILD Research Group, Department of Nursing Science, Box 1026, SE-551 11 Jönköping, Sweden.
    Olsson, Cecilia
    Karlstad University, Department of Health Sciences, SE-651 88 Karlstad, Sweden..
    Hällgren Graneheim, Ulla
    University West, Department of Health Sciences, Specialist Nursing programme. University West, Department of Health Sciences, Section for nursing - graduate level. Umeå University, Department of Nursing, SE-901 87 Umeå, Sweden.
    Person-centred information to parents in paediatric oncology (the PIFBO study): A study protocol of an ongoing RCT.2015In: BMC Nursing, ISSN 1472-6955, E-ISSN 1472-6955, Vol. 14, article id 69Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Parents of children with cancer experience a demanding situation and often suffer from psychological problems such as stress. Trying to coping with the complex body of information about their child's disease is one factor that contributes to this stress. The aim of this study is to evaluate an intervention for person-centred information to parents of children with cancer that consists of four sessions with children's nurses trained in the intervention method.

    METHODS/DESIGN: This is a multi-centre RCT with two parallel arms and a 1:1 allocation ratio. The primary outcome is illness-related parental stress. Secondary outcomes are post-traumatic stress symptoms, anxiety, depression, satisfaction with information, expected and received knowledge, and experiences with health care providers. A process evaluation is performed to describe experiences and contextual factors. Data are collected using web questionnaires or paper forms according to the parents' preference, audio recording of the intervention sessions, and qualitative interviews with parents and the intervention nurses.

    DISCUSSION: Few studies have evaluated information interventions for parents of children with cancer using large multi-centre RCTs. This intervention is designed to be performed by regular staff children's nurses, which will facilitate implementation if the intervention proves to be effective.

    TRIAL REGISTRATION: Clinical trials NCT02332226 (December 11, 2014).

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