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  • 1.
    Björquist, Elisabet
    et al.
    University West, Department of Social and Behavioural Studies, Division of Social Pedagogy and Sociology. University West, Department of Social and Behavioural Studies, Division of Social Work and Social Pedagogy. Department of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.
    Nordmark, Eva
    Department of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.
    Hallström, Inger
    Department of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.
    Living in transition: experiences of healthand well-being and the needs of adolescents with cerebral palsy2015In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214, Vol. 41, no 2, p. 258-65Article in journal (Refereed)
    Abstract [en]

    BACKGROUND:

    Transition to adulthood for adolescents in general is a multifaceted process, and for adolescents with cerebral palsy (CP) it also involves transition from child- to adult-oriented support. CP entails a variety and combination of disabilities, which in association with external factors may make the transition to adult health services difficult. The aim of this study was to gain a deeper understanding of how adolescents with CP experience their own health, well-being and need of support during their transition to adulthood.

    METHODS:

    An inductive qualitative approach was used based on interviews with 12 adolescents with CP aged 17-18 years and living in Sweden. Manifest and latent content analysis was used for the analysis of data.

    RESULTS:

    The results are described in the main theme 'Living in transition and looking forward to being an adult, but not feeling ready yet and being in need of further support'. Five subthemes highlight the adolescents' experiences of belonging to a family, of the importance of friends and love, of managing daily activities, being surrounded by support and having hopes for the future.

    CONCLUSIONS:

    Interviews with adolescents with CP provide valuable information for the planning of transition programmes and for the support of adolescents with disabilities who are in the transition to adult living. According to the adolescents in this study, the support should be flexible and not be fixed to biological age. Personal, individualized information and support was desired by the adolescents in order to be able to manage their own transition. One option to facilitate transition is the stepping-stone of being close to parents or staff members during the first phase, after leaving the parental home.

  • 2. Boström, P.K.
    et al.
    Broberg, M.
    Hwang, Philip
    University West, Department of Social and Behavioural Studies, Division of Psychology and Organisation Studies.
    Parents' descriptions and experiences of young children recently diagnosed with intellectual disability2010In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214, Vol. 36, no 1, p. 93-100Article in journal (Refereed)
    Abstract [en]

    Aim: The aim of the present study was to explore the variation of parents' descriptions and experiences of their child that was recently identified to have an intellectual disability (ID). Methods: The study applied interpretative phenomenological analysis and analysis of narrative style looking at content and form of parental narratives. Data was collected from nine fathers and eight mothers through semi-structured interviews within 6 months following diagnosis. Results: Analysis revealed three factors indicating the parents' level of processing: (1) emotional expressions regarding the child - varying between limited (distanced or idealized) and balanced/affectionate; (2) experience of the disability - varying between preoccupation and acceptance; and (3) time orientation - varying in terms of flexibility and temporal focus. Conclusions: Although parents of children with ID describe negative emotions in relation to the child and the disability, most of these parents also describe positive emotions that seemed to balance the negative experiences. © 2009 The Authors. Journal compilation © 2009 Blackwell Publishing Ltd.

  • 3.
    Bratt, Ewa-Lena
    et al.
    University of Gothenburg, Institution of Health and Care Sciences, Gothenburg, Sweden..
    Burström, Å
    Karolinska Institute, Institution for Women's and Children's Health, Stockholm, Sweden..
    Hanseus, K
    Department of Pediatric Cardiology, Skåne University Hospital, Lund, Sweden.
    Rydberg, A
    Umeå University, Department of Clinical Sciences, Pediatrics, Umeå, Sweden..
    Berghammer, Malin
    University West, Department of Health Sciences, Section for nursing - graduate level. Department of Pediatrics, The Queen Silvia Children's Hospital, Gothenburg, Sweden.
    Do not forget the parents: Parents' concerns during transition to adult care for adolescents with congenital heart disease2018In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214, Vol. 44, no 2, p. 278-284Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Growing up with congenital heart disease (CHD) often means transfer to adult care and lifelong medical follow-up. An optimal transition process usually involves a multipart collaboration between the patient, their parents and other family members, and the healthcare providers. Taking an active role while knowing when it is time to step aside can be difficult for all the concerned parties, even the healthcare professionals. The aim of the present study therefore, was to explore parents' expectations and needs during their adolescent's transition to adult care.

    METHOD: Semi-structured interviews were conducted with 18 parents of 16 adolescents (aged 13-18 years) with CHD in 4 pediatric cardiology settings in Sweden. The interviews were analysed with qualitative content analysis.

    RESULTS: The analysis resulted in 2 main themes: (a) Feeling secure-the importance of being prepared and informed. This theme focused on the need to be prepared and informed about transition and future transfer to adult care. (b) Recognizing when to hand over at the right time. This theme addressed the process of handing over the responsibility from the parent to the adolescents and contained handing over from pediatric care to adult care.

    CONCLUSION: Being prepared and informed about the upcoming transition process was essential. The parents underlined the importance of being involved in the transition planning for gradually handing over responsibility to the adolescent. They also considered establishing contact with the adult healthcare team before transfer as important and needed to be assured that CHD-related information of importance for the young person's daily life would be given.

  • 4.
    Sorbring, Emma
    et al.
    University West, Department of Social and Behavioural Studies, Division of Psychology and Organisation Studies.
    Palmérus, Kerstin
    Göteborg University.
    Children's beliefs about the importance of gender in transgression situations2004In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214, Vol. 30, no 1, p. 39-50Article in journal (Refereed)
    Abstract [en]

    OBJECTIVE: In previous research, several variables are shown to have an impact on children's perception of gender. The aim of this study was to examine the relation between discipline methods and the child's beliefs about the importance of gender in transgression situations. METHODS: In this study, variables such as type of siblings, socioeconomic status, child's sex, parental values and shared responsibility are controlled for. Two hundred and five 8-year-old children in Sweden were interviewed about discipline methods in five transgression situations and their parents were asked to fill in a battery of questions. RESULTS: The results show that harsher discipline methods, such as behaviour modification, physical restraint and physical punishment, relate to stronger beliefs about the importance of gender in transgression situations.

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