Change search
Refine search result
1 - 29 of 29
CiteExportLink to result list
Permanent link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Rows per page
  • 5
  • 10
  • 20
  • 50
  • 100
  • 250
Sort
  • Standard (Relevance)
  • Author A-Ö
  • Author Ö-A
  • Title A-Ö
  • Title Ö-A
  • Publication type A-Ö
  • Publication type Ö-A
  • Issued (Oldest first)
  • Issued (Newest first)
  • Created (Oldest first)
  • Created (Newest first)
  • Last updated (Oldest first)
  • Last updated (Newest first)
  • Disputation date (earliest first)
  • Disputation date (latest first)
  • Standard (Relevance)
  • Author A-Ö
  • Author Ö-A
  • Title A-Ö
  • Title Ö-A
  • Publication type A-Ö
  • Publication type Ö-A
  • Issued (Oldest first)
  • Issued (Newest first)
  • Created (Oldest first)
  • Created (Newest first)
  • Last updated (Oldest first)
  • Last updated (Newest first)
  • Disputation date (earliest first)
  • Disputation date (latest first)
Select
The maximal number of hits you can export is 250. When you want to export more records please use the Create feeds function.
  • 1.
    Bay, Annika
    et al.
    Department of Nursing, Umeå University, Umeå (SWE).
    Berghammer, Malin
    University West, Department of Health Sciences, Section for nursing - graduate level.
    Burström, Åsa
    Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm (SWE).
    Holstad, Ylva
    Department of Nursing, Umeå University, Umeå (SWE).
    Christersson, Christina
    Department of Medical Sciences, Cardiology, Uppsala University, Uppsala (SWE).
    Dellborg, Mikael
    Department of Molecular and Clinical Medicine, Sahlgrenska University Hospital, Gothenburg (SWE).
    Trzebiatowska-Krzynska, Aleksandra
    Department of Cardiology and Department of Medicine and Health Sciences, Linköping University, Linköping (SWE).
    Sörensson, Peder
    Department of Medicine, Solna, Karolinska Institutet, Stockholm (SWE).
    Thilén, Ulf
    Department of Clinical Sciences, Cardiology, Lund University, Lund (SWE).
    Johansson, Bengt
    Department of Surgical and Perioperative Sciences, Umeå University, Umeå (SWE).
    Symptoms during pregnancy in primiparous women with congenital heart disease.2024In: Scandinavian Cardiovascular Journal, ISSN 1401-7431, E-ISSN 1651-2006, Vol. 58, no 1, article id 2302135Article in journal (Refereed)
    Abstract [en]

    Background: As more women with congenital heart disease (CHD) are reaching childbearing age, it becomes more common for their symptoms to be evaluated during pregnancy. However, pregnancy-related symptoms are similar to those caused by heart disease. This study investigated the prevalence of factors associated with symptoms during pregnancy in women with CHD.

    Methods: The national birth register was searched for primiparous women with CHD who were registered in the national quality register for patients with CHD.

    Results: Symptoms during the third trimester were reported in 104 of 465 evaluated women. The most common symptom was palpitations followed by dyspnea. Factors associated with symptoms were tested in a univariable model; higher NYHA classification (>1) (OR 11.3, 95%CI 5.5-23.2), low physical activity (≤3 h/week) (OR 2.1 95%CI 1.3-3.6) and educational level ≤ 12 years (OR 1.9 95%CI 1.2-3.0) were associated with having symptoms. In multivariable analysis, low physical activity level (OR 2.4 95%CI 1.2-5.0) and higher NYHA class (OR 11.3 95%CI 5.0-25.6) remained associated with symptoms during pregnancy. There were no cases with new onset of impaired systemic ventricular function during pregnancy.

    Conclusion: Symptoms during pregnancy are common in women with CHD but are often already present before pregnancy. Because ordinary symptoms during pregnancy often overlap with symptoms of heart disease, it is important to know if symptoms were present before pregnancy and if they became worse during pregnancy. These results should be included in pre-pregnancy counselling and considered in the monitoring during pregnancy.

    Download full text (pdf)
    fulltext
  • 2.
    Bay, Annika
    et al.
    Umeå University, Public Health and Clinical Medicine, Umeå, Sweden.
    Berghammer, Malin
    University West, Department of Health Sciences, Section for nursing - graduate level.
    Lamas, K
    Umeå University, Nursing, Umeå, Sweden.
    Sandberg, Camilla
    Umeå University, Public Health and Clinical Medicine, Umeå, Sweden.
    Johansson, Bengt
    Umeå University, Public Health and Clinical Medicine, Umeå, Sweden.
    Facilitators and barriers for physical activity in adults with congenital heart disease2018In: European Heart Journal, ISSN 0195-668X, E-ISSN 1522-9645, Vol. 39, no suppl_1, p. 1120-1121, article id ehy566.P5433Article in journal (Refereed)
    Abstract [en]

    Background: A majority of adults with congenital heart disease (CHD) have reduced exercise capacity and do not reach the recommended level of physical activity. A physically active lifestyle is essential to maintain health and counteract acquired cardiovascular disease. This study illuminates aspects that may be relevant for performing physical activity.Purpose: To describe facilitators and barriers for physical activity in adults with CHD.Methods: Semi-structured interviews were performed individually with fourteen adults (age 19–68 years, women=7) with complex CHD. The interviews were analyzed using qualitative content analysis.Results: Aspects that may enable or inhibit physical activity were found in two domains; Facilitators and Barriers, which both consisted of four categories physical, psychological, psychosocial and environmental aspects (Table 1).

  • 3.
    Bay, Annika
    et al.
    Umeå University, Department of Public Health and Clinica Medicine, Sweden.
    Lämås, Kristina
    Umeå University, Department of Nursing, Umeå, Sweden.
    Berghammer, Malin
    University West, Department of Health Sciences, Section for nursing - graduate level. Department of Paediatrics, The Queen Silvia Children’s Hospital .
    Sandberg, Camilla
    Umeå University, Department of Public Health and Clinical Medicine, Sweden; Umeå University, Department of Community Medicine and Rehabilitation, Physiotherapy, Umeå, Sweden.
    Johansson, Bengt
    Umeå University, Department of Public Health and Clinical Medicine, Umeå, Sweden.
    Enablers and barriers for being physically active: experiences from adults with congenital heart disease2021In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 20, no 3, p. 276-284Article in journal (Refereed)
    Abstract [en]

    Background: In general, adults with congenital heart disease have reduced exercise capacity and many do not reach the recommended level of physical activity. A physically active lifestyle is essential to maintain health and to counteract acquired cardiovascular disease, therefore enablers and barriers for being physically active are important to identify.

    Aim: To describe what adults with complex congenital heart diseases consider as physical activity, and what they experience as enablers and barriers for being physically active. Methods: A qualitative study using semi-structured interviews in which 14 adults with complex congenital heart disease (seven women) participated. The interviews were analysed using qualitative content analysis.

    Results: The analysis revealed four categories considered enablers and barriers - encouragement, energy level, approach and environment. The following is exemplified by the category encouragement as an enabler: if one had experienced support and encouragement to be physically active as a child, they were more positive to be physically active as an adult. In contrast, as a barrier, if the child lacked support and encouragement from others, they had never had the opportunity to learn to be physically active.

    Conclusion: It is important for adults with congenital heart disease to have the opportunity to identify barriers and enablers for being physically active. They need knowledge about their own exercise capacity and need to feel safe that physical activity is not harmful. This knowledge can be used by healthcare professionals to promote, support and eliminate misconceptions about physical activity. Barriers can potentially be transformed into enablers through increased knowledge about attitudes and prerequisites. © The European Society of Cardiology 2020.

    Download full text (pdf)
    fulltext
  • 4.
    Berghammer, Malin
    et al.
    University West, Department of Health Sciences, Section for nursing - graduate level.
    Johansson, B.
    Umea University, Department of Public Health and Clinical Medicine, Umea, Sweden.
    Mattson, E.
    Karolinska University Hospital, Department of Cardiology, Stockholm, Sweden.
    Moons, P.
    The Sahlgrenska Academy at Gothenburg University, Institute of health and caring sciences, Gothenburg, Sweden;.
    Dellborg, M.
    University of Gothenburg, Institute of medicine, Sahlgrenska Academy, Gothenburg, Sweden.
    Exploration of disagreement between the patient’s self reported limitations and limitations assessed by caregivers in adults with congenital heart disease2018In: European Heart Journal, ISSN 0195-668X, E-ISSN 1522-9645, Vol. 39, no Suppl 1, article id 2406Article in journal (Refereed)
    Abstract [en]

    Background: The New York Heart Association (NYHA) classification is applied in a wide spectrum of heart diseases including adult patients with congenital heart disease (ACHD). The NYHA-class assessment is often based on the evaluation by the caregiver, but to what extent it correlates with the patient's view of their function is not fully known.Purpose: To investigate the relation between the patient's self-reported physical limitations, symptoms, other heart defect related factors and NYHA-class assessed by the caregiver.Methods: Eligible patients (n=333, age 39.2±13.6 years) were identified and randomly selected from the national registry for CHD. All of the patients completed a standardized questionnaire measuring different PRO-domains. By combing self-reported data with registry data including NYHA-class, analyses of agreement of physical limitations were performed.Results: Almost 30% of the patients rated their limitations higher compared to the NYHA-class estimated by the caregiver. Patients with self-reported limitations and their NYHA-class underestimated by caregivers, more often reported symptoms, anxiety, lower health and worked fewer hours/week compared to other patients with CHD. There were no differences regarding sex, type of symptoms, prescribed medications, or complexity of cardiac lesion. In patients without self-reported limitations agreement with NYHA-class estimated by caregivers was 97%.Conclusion: Adult patients with CHD and self-reported limitations may not be correctly identified by the care-giver. Instruments for patient reported outcomes might improve the assessment of physical limitations and could further improve the correctness in evaluating the patient's status.

  • 5.
    Bjälkefur, Kerstin
    et al.
    Department of health and social care, Lidköping, Sweden.
    Nasic, Salmir
    Research and Development Centre, Skaraborg Hospital, Skövde, Sweden.
    Bertholds, Eric
    Tibro Health care centre, Närhälsan Tibro, Sweden.
    Jood, Katarina
    Sahlgrenska Academy at University of Gothenburg, Institute of Neuroscience and Physiology, Department of Clinical Neuroscience, Gothenburg, Sweden; Department of Neurology, the Sahlgrenska University Hospital, Gothenburg, Sweden.
    Rejnö, Åsa
    University West, Department of Health Sciences, Section for nursing - graduate level. Department of Medicine, Skaraborg Hospital Skövde, Skövde, Sweden.
    Self-rated health over the first five years after stroke2020In: BMC Neurology, E-ISSN 1471-2377, Vol. 20, no 1, article id 389Article in journal (Refereed)
    Abstract [en]

    Background: Self-rated health (SRH) focuses on the patient’s own perception, and represents an important patient-reported outcome. The aim was to investigate SRH one to 5 years after stroke, follow the development over time and search for factors associated with SRH. Methods: Consecutive stroke patients admitted to Stroke Units at the Skaraborg Hospital, Sweden were included 2007–2009 (n = 2190). Patient-reported outcomes were collected annually over 5 years using a postal questionnaire. SRH was assessed by the question about general health from SF-36. Factors associated with SRH were investigated by multiple logistic regression analysis. Results: Response-rate was > 90% at all time points. Overall, 40.2, 41.9, 40.7, 45.0 and 46.3% of the patients reported good SRH, 1 to 5 years after stroke. Performance in activities of daily living (ADL) was strongly associated with good SRH; 49.8 and 14.7% after 1 year in independent and dependent survivors respectively, p < 0.001. In independent survivors 1 year after stroke, good SRH was positively associated with female sex (OR = 2.0; p = < 0,001), physical activity (OR = 2.14; p = < 0,001), car driving (OR = 2.25; p = < 0,001), and negatively associated with age (OR = 0.99; p = < 0,001), pain (OR = 0.49; p = < 0,001), depression (OR = 0.30; p = < 0,001), and self-perceived unmet care needs (OR = 0.39; p = < 0,001). In dependent survivors, depression (OR = 0.23; p = < 0,001) and age (OR = 0.96; p = < 0,05), were negatively associated with good SRH 1 year after stroke. Similar patterns were observed throughout the follow-up. Conclusion: The proportion stroke survivors reporting their health as good is slightly increasing over time. After stroke, SRH is associated with pain, depression, ability to perform activities and self-perceived unmet care needs, indicating that efforts to support stroke survivors in the chronic phase after stroke should concentrate on targeting these factors. © 2020, The Author(s).

    Download full text (pdf)
    fulltext
  • 6.
    Brink, Eva
    et al.
    University West, Department of Nursing, Health and Culture, Divison of Caring Sciences, postgraduate level.
    Alsén, Pia
    University West, Department of Nursing, Health and Culture, Divison of Caring Sciences, undergraduate level.
    Cliffordson, Christina
    University West, Department of Nursing, Health and Culture, Divison for Health, Culture and Educational Sciences.
    Validation of the Revised Illness Perception Questionnaire (IPQ-R) in a sample of persons recovering from myocardial infarction – the Swedish version.2011In: Scandinavian Journal of Psychology, ISSN 0036-5564, E-ISSN 1467-9450, Vol. 52, no 6, p. 573-579Article in journal (Refereed)
    Abstract [en]

    When people’s health is threatened, they generally develop illness perceptions to make sense of their illness. The Illness Perception Questionnaire (IPQ-R), developed by Moss-Morris et al (2002), has been widely used in many countries to measure such representations. However, since studies in this crucial research area are lacking in Sweden a Swedish version of IPQ-R was validated with a focus on the seven subscales: timeline acute/chronic, timeline cyclical, consequences, personal control, treatment control, illness coherence and emotional representations. Using confirmatory factor analysis, the aim of the present study was to validate the internal structure of the Swedish version in a sample of 202 persons (144 men and 58 women) who had been diagnosed with myocardial infarction four months earlier. Additionally, inter-correlations among the seven subscales and external concurrent validity were also investigated. The results of confirmatory factor analysis revealed that, in line with the English version of the IPQ-R, the specified seven-factor model had a satisfactory fit. One item was however not considered reliable and was therefore excluded from the instrument. The internal consistency (Cronbach’s alpha coefficients) and the inter-factor correlations were relatively similar to those reported in the validation study of the original English IPQ-R. In tests of concurrent validity, the seven IPQ-R subscales were, as hypothesized, mainly associated with external variables. To conclude, the Swedish version of the IPQ-R’s seven dimensions, with one item removed, (total 37 items) was found to be a reliable and valid measure of illness perception.

  • 7.
    Brink, Eva
    et al.
    University West, Department of Nursing, Health and Culture, Division of Health and Culture.
    Grankvist, Gunne
    University West, Department of Social and Behavioural Studies, Division of Psychology and Organisation Studies.
    Associations between depression, fatigue, and life orientation in myocardial infarction patients2006In: Journal of Cardiovascular Nursing, ISSN 0889-4655, Vol. 21, no 5, p. 407-411Article in journal (Other academic)
  • 8.
    Brink, Eva
    et al.
    University West, Department of Nursing, Health and Culture, Division of Advanced Nursing.
    Grankvist, Gunne
    University West, Department of Social and Behavioural Studies, Division of Psychology and Organisation Studies.
    Karlson, Björn W
    Sahlgrenska University, Division of Cardiology.
    Hallberg, Lillemor R M
    Halmstad University, School of Social and Health Sciences.
    Health-related quality of life in women and men one year after acute myocardial infarction2005In: Quality of Life Research, ISSN 0962-9343, E-ISSN 1573-2649, Vol. 14, no 3, p. 749-57Article in journal (Refereed)
    Abstract [en]

    The purpose of the present study was, first, to detect possible changes in health-related quality of life (HRQL) over time and, second, to predict HRQL at 1 year based on measures made 1 week and 5 months after a first-time acute myocardial infarction. There was an improvement in HRQL at 1 year, as measured by the questionnaire 36-item Medical Outcomes Study Short-Form (SF-36), for both men and women as compared with the assessment 5 months after the acute myocardial infarction. However, the pattern was somewhat different for women and men. Women mainly reported increased scores on scales reflecting better mental health, whereas men, on the whole, demonstrated higher scores in the physical health domain. Depression (HAD) and fatigue were identified as early predictors of lower HRQL at the 1-year follow-up. Our conclusion is that early assessment of fatigue and depression is worthwhile, as they may indicate decreased HRQL in men and women 1 year after first-time myocardial infarction.

  • 9.
    Callus, Edward
    et al.
    Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy (ITA); Università degli Studi di Milano, Department of Biomedical Sciences for Health, Milan, Italy (ITA).
    Pagliuca, Silvana
    Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy (ITA).
    Boveri, Sara
    Scientific Directorate, IRCCS Policlinico San Donato, Milan, Italy (ITA).
    Ambrogi, Federico
    University of Milan, Department of Clinical Sciences and Community Health, Milan, Italy (ITA).
    Luyckx, Koen
    KU Leuven School Psychology and Development in Context, KU Leuven, Leuven, Belgium (BEL); UNIBS, University of the Free State, Bloemfontein, South Africa (ZAF).
    Kovacs, Adrienne H
    University of Toronto, Toronto Congenital Cardiac Center for Adults, Peter Munk Cardiac Center, University Health Network, Toronto, Canada (CAN); Oregon Health & Science University, Knight Cardiovascular Institute, Portland, Oregon (USA).
    Apers, Silke
    KU Leuven Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium (BEL).
    Budts, Werner
    Division of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium (BEL); KU Leuven Department of Cardiovascular Sciences, KU Leuven, Leuven, Belgium (BEL).
    Enomoto, Junko
    Toyo University, Department of Education, Tokyo, Japan (JPN).
    Sluman, Maayke A
    University of Amsterdam, Coronel Institute of Occupational Health, Amsterdam UMC, Amsterdam, the Netherlands (NLD); Department of Cardiology, Jeroen Bosch Hospital, 's Hertogenbosch, the Netherlands (NLD).
    Wang, Jou-Kou
    National Taiwan University Hospital, Department of Pediatrics, Taipei, Taiwan (TWN).
    Jackson, Jamie L
    Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, Ohio (USA).
    Khairy, Paul
    Université de Montréal, Adult Congenital Heart Center, Montreal Heart Institute, Montreal, Canada (CAN).
    Cook, Stephen C
    Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, Grand Rapids, Michigan (USA).
    Chidambarathanu, Shanthi
    Pediatric Cardiology, Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), Chennai, India (IND).
    Alday, Luis
    Division of Cardiology, Hospital de Niños, Córdoba, Argentina (ARG).
    Eriksen, Katrine
    Adult Congenital Heart Disease Center, Oslo University Hospital - Rikshospitalet, Oslo, Norway (NOR).
    Dellborg, Mikael
    University of Gothenburg, Centre for Person-Centred Care (GPCC), Gothenburg, Sweden; Adult Congenital Heart Unit, Sahlgrenska University Hospital/Östra, Gothenburg, Sweden; Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg, Sweden.
    Berghammer, Malin
    University West, Department of Health Sciences, Section for nursing - graduate level. University of Gothenburg, Centre for Person-Centred Care (GPCC), Gothenburg, Sweden; Department of Paediatrics, Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.
    Johansson, Bengt
    Umeå University, Department of Public Health and Clinical Medicine,Umeå, Sweden.
    Mackie, Andrew S
    University of Alberta, Division of Cardiology, Stollery Children's Hospital, Edmonton, Canada (CAN).
    Menahem, Samuel
    Monash University, Monash Heart, Monash Medical Centre, Melbourne, Australia (AUS).
    Caruana, Maryanne
    Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass, Malta (MLT).
    Veldtman, Gruschen
    Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, (USA).
    Soufi, Alexandra
    Department of Cardiac Rehabilitation, Médipôle Lyon-Villeurbanne, Lyon, France (FRA).
    Fernandes, Susan M
    Adult Congenital Heart Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care, Palo Alto, California (USA).
    White, Kamila
    Washington University, Adult Congenital Heart Disease Center (USA); University of Missouri, Barnes Jewish Heart & Vascular Center, Saint Louis, Missouri (USA).
    Kutty, Shelby
    University of Nebraska, Adult Congenital Heart Disease Center Medical Center/Children's Hospital and Medical Center, Omaha, Nebraska (USA); Taussig Heart Center, Johns Hopkins School of Medicine, Baltimore, Maryland (USA).
    Moons, Philip
    KU Leuven - University of Leuven, KU Leuven Department of Public Health and Primary Care, Leuven, Belgium(BEL); Centre for Person-Centred Care (GPCC), Gothenburg, Sweden; University of Gothenburg, Institute of Health and Care Sciences, Gothenburg, Sweden; University of Cape Town, Department of Paediatrics and Child Health, South Africa (ZAF).
    Phenotypes of adults with congenital heart disease around the globe: a cluster analysis.2021In: Health and Quality of Life Outcomes, ISSN 1477-7525, E-ISSN 1477-7525, Vol. 19, no 1, article id 53Article in journal (Refereed)
    Abstract [en]

    OBJECTIVE: To derive cluster analysis-based groupings for adults with congenital heart disease (ACHD) when it comes to perceived health, psychological functioning, health behaviours and quality of life (QoL).

    METHODS: This study was part of a larger worldwide multicentre study called APPROACH-IS; a cross sectional study which recruited 4028 patients (2013-2015) from 15 participating countries. A hierarchical cluster analysis was performed using Ward's method in order to group patients with similar psychological characteristics, which were defined by taking into consideration the scores of the following tests: Sense Of Coherence, Health Behavior Scale (physical exercise score), Hospital Anxiety Depression Scale, Illness Perception Questionnaire, Satisfaction with Life Scale and the Visual Analogue Scale scores of the EQ-5D perceived health scale and a linear analogue scale (0-100) measuring QoL.

    RESULTS: 3768 patients with complete data were divided into 3 clusters. The first and second clusters represented 89.6% of patients in the analysis who reported a good health perception, QoL, psychological functioning and the greatest amount of exercise. Patients in the third cluster reported substantially lower scores in all PROs. This cluster was characterised by a significantly higher proportion of females, a higher average age the lowest education level, more complex forms of congenital heart disease and more medical comorbidities.

    CONCLUSIONS: This study suggests that certain demographic and clinical characteristics may be linked to less favourable health perception, quality of life, psychological functioning, and health behaviours in ACHD. This information may be used to improve psychosocial screening and the timely provision of psychosocial care.

  • 10.
    Casteigt, Benjamin
    et al.
    Montreal Heart Institute, Université de Montréal, Montreal (CAN).
    Samuel, Michelle
    KU Leuven Department of Public Health and Primary Care, University of Leuven, Leuven (BEL).
    Laplante, Laurence
    Montreal Heart Institute, Université de Montréal, Montreal (CAN).
    Shohoudi, Azadeh
    Montreal Heart Institute, Université de Montréal, Montreal (CAN).
    Apers, Silke
    KU Leuven Department of Public Health and Primary Care, University of Leuven, Leuven (BEL).
    Kovacs, Adrienne H.
    Knight Cardiovascular Institute, Oregon Health & Science University, Portland (USA).
    Luyckx, Koen
    KU Leuven—University of Leuven, Psychology and Development in Context, Leuven (BEL); UNIBS, University of the Free State, Bloemfontein (ZAF).
    Thomet, Corina
    Center for Congenital Heart Disease, Inselspital—Bern University Hospital, University of Bern, Bern (CHE).
    Budts, Werner
    Division of Congenital and Structural Cardiology, University Hospitals Leuven (BEL); Department of Cardiovascular Sciences, KU Leuven, Leuven (BEL); .
    Enomoto, Junko
    Department of Adult Congenital Heart Disease, Chiba Cardiovascular Center, Chiba (JPN).
    Sluman, Maayke A.
    Department of Cardiology, Jeroen Bosch Hospital, Hertogenbosch (NLD); Coronel Institute for Occupational Health, Academic Medical Centre, Amsterdam (NLD).
    Lu, Chun-Wei
    Department of Pediatrics, National Taiwan University Hospital, Taipei (TWN).
    Jackson, Jamie L.
    Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus (USA).
    Cook, Stephen C.
    Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, Grand Rapids (USA).
    Chidambarathanu, Shanthi
    Frontier Lifeline Hospital (Dr. K.M. Cherian Heart Foundation), Chennai (IND).
    Alday, Luis
    Division of Cardiology, Hospital de Niños, Córdoba (ARG).
    Eriksen, Katrine
    Department of Cardiology, Oslo University Hospital—Rikshospitalet, Oslo (NOR).
    Dellborg, Mikael
    Adult Congenital Heart Unit, Sahlgrenska University Hospital/Östra, Sahlgrenska Academy, University of Gothenburg, Gothenburg (SWE).
    Berghammer, Malin
    University West, Department of Health Sciences, Section for nursing - graduate level. Centre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg (SWE).
    Johansson, Bengt
    Department of Public Health and Clinical Medicine, Umeå University, Umeå (SWE).
    Mackie, Andrew S.
    Division of Cardiology, Stollery Children’s Hospital, University of Alberta, Edmonton (CAN).
    Menahem, Samuel
    Monash Medical Centre, Monash University, Melbourne (AUS).
    Caruana, Maryanne
    Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass (MLT)).
    Veldtman, Gruschen
    Adult Congenital Heart Disease Center, Cincinnati Children's Hospital, Cincinnati (USA).
    Soufi, Alexandra
    Department of Congenital Heart Disease, Louis Pradel Hospital, Lyon (FRA).
    Fernandes, Susan M.
    Department of Pediatrics and Medicine, Stanford University School of Medicine, Palo Alto (USA).
    White, Kamila
    Adult Congenital Heart Disease Center, Washington University and Barnes Jewish Heart & Vascular Center, and University of Missouri, Saint Louis (USA).
    Callus, Edward
    Clinical Psychology Service, IRCCS Policlinico San Donato, Milan (ITA); Department of Biomedical Sciences for Health, Università degli Studi di Milano, Milan (ITA).
    Kutty, Shelby
    Adult Congenital Heart Disease Center, University of Nebraska Medical Center/Children's Hospital & Medical Center, Omaha (USA).
    Brouillette, Judith
    Montreal Heart Institute, Université de Montréal, Montreal (CAN).
    Moons, Philip
    KU Leuven—University of Leuven, Department of Public Health and Primary Care, Leuven (BEL); Belgium Institute of Health and Care Sciences, University of Gothenburg, Gothenburg (SWE); Department of Paediatrics and Child Health, University of Cape Town, Cape Town (ZAF).
    Khairy, Paul
    Montreal Heart Institute, Université de Montréal, Montreal (CAN).
    Atrial arrhythmias and patient-reported outcomes in adults with congenital heart disease: An international study2021In: Heart Rhythm, ISSN 1547-5271, E-ISSN 1556-3871, Vol. 18, no 5, p. 793-800Article in journal (Refereed)
    Abstract [en]

    Background Atrial arrhythmias (ie, intra-atrial reentrant tachycardia and atrial fibrillation) are a leading cause of morbidity and hospitalization in adults with congenital heart disease (CHD). Little is known about their effect on quality of life and other patient-reported outcomes (PROs) in adults with CHD. Objective The purpose of this study was to assess the impact of atrial arrhythmias on PROs in adults with CHD and explore geographic variations. Methods Associations between atrial arrhythmias and PROs were assessed in a cross-sectional study of adults with CHD from 15 countries spanning 5 continents. A propensity-based matching weight analysis was performed to compare quality of life, perceived health status, psychological distress, sense of coherence, and illness perception in patients with and those without atrial arrhythmias. Results A total of 4028 adults with CHD were enrolled, 707 (17.6%) of whom had atrial arrhythmias. After applying matching weights, patients with and those without atrial arrhythmias were comparable with regard to age (mean 40.1 vs 40.2 years), demographic variables (52.5% vs 52.2% women), and complexity of CHD (15.9% simple, 44.8% moderate, and 39.2% complex in both groups). Patients with atrial arrhythmias had significantly worse PRO scores with respect to quality of life, perceived health status, psychological distress (ie, depression), and illness perception. A summary score that combines all PRO measures was significantly lower in patients with atrial arrhythmias (-3.3%; P = .0006). Differences in PROs were consistent across geographic regions. Conclusion Atrial arrhythmias in adults with CHD are associated with an adverse impact on a broad range of PROs consistently across various geographic regions.

  • 11.
    Gellerstedt, Martin
    et al.
    University West, School of Business, Economics and IT, Division of Computer Science and Informatics.
    Bång, Angela
    University College of Borås, Prehospital Research Centre of Western Sweden.
    Andréasson, Emma
    University West.
    Johansson, Anna
    University West.
    Herlitz, Johan
    Sahlgrenska University Hospital,, The Prehospital Research Centre of Western Sweden, Institute of Medicine, Department of Molecular and Clinical Medicine,.
    Does sex influence the allocation of life support level by dispatchers in acute chest pain?2010In: American Journal of Emergency Medicine, ISSN 0735-6757, E-ISSN 1532-8171, Vol. 28, no 8, p. 922-7Article in journal (Refereed)
    Abstract [en]

    AIM: The aim of this study was to evaluate (a) the differences between men and women in symptom profile, allocated life support level (LSL), and presence of acute myocardial infarction (AMI), life-threatening condition (LTC), or death and (b) whether a computer-based decision support system could improve the allocation of LSL. PATIENTS: All patients in Göteborg, Sweden, who called the dispatch center because of chest pain during 3 months (n = 503) were included in this study. METHODS: Age, sex, and symptom profile were background variables. Based on these, we studied allocation of LSL by the dispatchers and its relationship to AMI, LTC, and death. All evaluations were made from a sex perspective. Finally, we studied the potential benefit of using a statistical model for allocating LSL. RESULTS: The advanced life support level (ALSL) was used equally frequently for men and women. There was no difference in age or symptom profile between men and women in relation to allocation. However, the allocation of ALSL was predictive of AMI and LTC only in men. The sensitivity was far lower for women than for men. When a statistical model was used for allocation, the ALSL was predictive for both men and women. Using a separate model for men and women respectively, sensitivity increased, especially for women, and specificity was kept at the same level. CONCLUSION: This exploratory study indicates that women would benefit most from the allocation of LSL using a statistical model and computer-based decision support among patients who call for an ambulance because of acute chest pain. This needs further evaluation.

  • 12.
    Gellerstedt, Martin
    et al.
    University West, School of Business, Economics and IT, Divison of Law, Economics, Statistics and Politics. University West, School of Business, Economics and IT, Divison of Informatics.
    Rawshani, Nina
    Department of Emergency Medicine, University of Gothenburg, Göteborg, Sweden.
    Herlitz, Johan
    The Pre-hospital Research Centre of Western Sweden, Prehospen, University College of Borås, Borås, Sweden, Department of Medicine, University of Gothenburg, Göteborg, Sweden.
    Bång, Angela
    The Pre-hospital Research Centre of Western Sweden, Prehospen, University College of Borås, Borås, Sweden.
    Gelang, Carita
    The Pre-hospital Research Centre of Western Sweden, Prehospen, University College of Borås, Borås, Sweden, Department of Ambulance and Prehospital Emergency Care, University of Gothenburg, Göteborg, Sweden.
    Andersson, Jan-Otto
    Department of Ambulance and Prehospital Emergency Care, Skaraborg, Sweden.
    Larsson, Anna
    The Pre-hospital Research Centre of Western Sweden, Prehospen, University College of Borås, Borås, Sweden.
    Rawshani, Araz
    Department of Medicine, University of Gothenburg, Göteborg, Sweden.
    Could prioritisation by emergency medicine dispatchers be improved by using computer-based decision support?: A cohort of patients with chest pain2016In: International Journal of Cardiology, ISSN 0167-5273, E-ISSN 1874-1754, Vol. 220, p. 734-738Article in journal (Refereed)
    Abstract [en]

    Background: To evaluate whether a computer-based decision support system could improve the allocation of patients with acute coronary syndrome (ACS) or a life-threatening condition (LTC). We hypothesised that a system of this kind would improve sensitivity without compromising specificity. Methods: A total of 2285 consecutive patients who dialed 112 due to chest pain were asked 10 specific questions and a prediction model was constructed based on the answers. We compared the sensitivity of the dispatchers' decisions with that of the model-based decision support model. Results: A total of 2048 patients answered all 10 questions. Among the 235 patients with ACS, 194 were allocated the highest prioritisation by dispatchers (sensitivity 82.6%) and 41 patients were given a lower prioritisation (17.4% false negatives). The allocation suggested by the model used the highest prioritisation in 212 of the patients with ACS (sensitivity of 90.2%), while 23 patients were underprioritised (9.8% false negatives). The results were similar when the two systems were compared with regard to LTC and 30-day mortality. This indicates that computer-based decision support could be used either for increasing sensitivity or for saving resources. Three questions proved to be most important in terms of predicting ACS/LTC, [1] the intensity of pain, [2] the localisation of pain and [3] a history of ACS. Conclusion: Among patients with acute chest pain, computer-based decision support with a model based on a few fundamental questions could improve sensitivity and reduce the number of cases with the highest prioritisation without endangering the patients.

  • 13.
    Hedemalm, Azar
    University West, Department of Nursing, Health and Culture, Division of Advanced Nursing. University West, Department of Health Sciences, Section for nursing - graduate level.
    Vård av patient med utländsk härkomst som har hjärtsjukdom2012In: Kardiologisk omvårdnad / [ed] Fridlund, Bengt; Malm, Dan; Mårtensson, Jan, Lund: Studentlitteratur AB, 2012, 2, p. 303-322Chapter in book (Other academic)
  • 14.
    Hummel, Kevin
    et al.
    Department of Pediatrics, University of Utah, Salt Lake City, Department of Pediatric Cardiology, Boston Children's Hospital, Boston (USA).
    Whittaker, Sarah
    International Consortium for Health Outcomes Measurement, Cambridge (USA).
    Sillett, Nick
    International Consortium for Health Outcomes Measurement, Cambridge (USA).
    Basken, Amy
    Pediatric Congenital Heart Association, Madison,Conquering CHD, Madison (USA) .
    Berghammer, Malin
    University West, Department of Health Sciences, Section for nursing - graduate level. Queen Silvia Children Hospital/Sahlgrenska University Hospital, Gothenburg (SWE).
    Chalela, Tomás
    Fundacion Cardiofantil, Bogota (COL).
    Chauhan, Julie
    All India Institute of Medical Sciences, New Delhi (IND).
    Garcia, Luis Antonio
    Kardias A.C. Foundation, Mexico City (MEX).
    Hasan, Babar
    Department of Pediatrics, Aga Khan University, Karachi City (PAK).
    Jenkins, Kathy
    Department of Pediatric Cardiology, Boston Children's Hospital, Boston (USA).
    Ladak, Laila Akbar
    Department of Pediatrics, Aga Khan University, Karachi City (PAK) Susan Wakil School of Nursing, The University of Sydney, Sydney (AUS).
    Madsen, Nicolas
    Department of Cardiology, Cincinnati Children's Hospital, Cincinnati (USA).
    March, Almudena
    Kardias A.C. Foundation, Mexico City (MEX).
    Pearson, Disty
    Department of Pediatric Cardiology, Boston Children's Hospital, Boston (USA).
    Schwartz, Steven M
    Department of Cardiology, The Hospital for Sick Children, Toronto (CAN).
    St Louis, James D
    Department of Surgery, Medical College of Georgia, Augusta (USA).
    van Beynum, Ingrid
    Department of Pediatric Cardiology, Erasmus Medical Centre, Rotterdam, Sophia Children's Hospital, Rotterdam (NLD).
    Verstappen, Amy
    Global Alliance for Rheumatic and Congenital Hearts, Philadelphia (USA).
    Williams, Roberta
    Department of Cardiology, Children's Hospital Los Angeles (USA).
    Zheleva, Bistra
    Children's HeartLink, Minneapolis (USA).
    Hom, Lisa
    Department of Cardiology, Children's National Hospital, Washington (USA).
    Martin, Gerard R
    Department of Cardiology, Children's National Hospital, Washington (USA).
    Development of an international standard set of clinical and patient-reported outcomes for children and adults with congenital heart disease: a report from the International Consortium for Health Outcomes Measurement Congenital Heart Disease Working Group.2021In: European Heart Journal - Quality of Care and Clinical Outcomes, ISSN 2058-5225, E-ISSN 2058-1742, Vol. 7, no 4, p. 354-365Article in journal (Refereed)
    Abstract [en]

    AIMS: Congenital heart disease (CHD) is the most common congenital malformation. Despite the worldwide burden to patient wellbeing and health system resource utilization, tracking of long-term outcomes is lacking, limiting the delivery and measurement of high-value care. To begin transitioning to value-based healthcare in CHD, the International Consortium for Health Outcomes Measurement aligned an international collaborative of CHD experts, patient representatives, and other stakeholders to construct a standard set of outcomes and risk-adjustment variables that are meaningful to patients.

    METHODS AND RESULTS: The primary aim was to identify a minimum standard set of outcomes to be used by health systems worldwide. The methodological process included four key steps: (i) develop a working group representative of all CHD stakeholders; (ii) conduct extensive literature reviews to identify scope, outcomes of interest, tools used to measure outcomes, and case-mix adjustment variables; (iii) create the outcome set using a series of multi-round Delphi processes; and (iv) disseminate set worldwide. The Working Group established a 15-item outcome set, incorporating physical, mental, social, and overall health outcomes accompanied by tools for measurement and case-mix adjustment variables. Patients with any CHD diagnoses of all ages are included. Following an open review process, over 80% of patients and providers surveyed agreed with the set in its final form.

    CONCLUSION: This is the first international development of a stakeholder-informed standard set of outcomes for CHD. It can serve as a first step for a lifespan outcomes measurement approach to guide benchmarking and improvement among health systems.

  • 15.
    Kjellstorp, Elin
    et al.
    University West, Department of Health Sciences, Section for nursing - undergraduate level.
    Hjärn, Sandra
    University West, Department of Health Sciences, Section for nursing - undergraduate level.
    Äldre personers upplevelser av att leva med kronisk hjärtsvikt: En litteraturbaserad studie2022Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Chronic heart failure is caused by several cardiac conditions. Heart failure can consist of forward failure and/or backward failure, which can affect the right ventricle as well as the left. The main symptoms are fatigue, dyspnea, and oedema. Modern medical treatment has improved the prognosis. Physical activity increases muscle strength, enhances quality of life, and reduces the risk of hospitalisation. Nurses need to be perceptive towards the persons’ experiences to support their health and well-being.

    Aim: The aim of this study was to describe older persons’ experiences of living with chronic heart failure.

    Method: A qualitative literature-based study was used in which 13 qualitative articles were analysed. The results were interpreted to obtain new themes.

    Results: Three main themes were discovered: “To not recognize your own body”, “To find hope and meaning” and “To maintain self-care ability”. The first main theme consisted of two subthemes: “Fatigue leads to physical limitations” and “To feel despair and fear”. The second main theme consisted of three subthemes: “To continue living”, “Motivation to self-care” and “Desire for normality”. Two subthemes emerged from the third main theme: “To need support from family” and “The importance of information and a person-centered care”.

    Conclusion: Chronic heart failure affected the persons’ lives mentally, physically, and socially.They felt alienated in terms of themselves and their bodies. Support from family and friends,and person-centered information provided by the nurse, had an important role concerning selfcare.

    Download full text (pdf)
    fulltext
  • 16.
    Ko, Jong Mi
    et al.
    The University of Texas, Department of Internal Medicine, Division of Cardiology, Southwestern Medical Center, Dallas, Texas.
    White, Kamila S
    University of Missouri, Adult Congenital Heart Disease Center, Washington University and Barnes Jewish Heart & Vascular Center, Saint Louis, Missouri.
    Kovacs, Adrienne H
    University of Toronto, Peter Munk Cardiac Centre, University Health Network, Toronto, Canada; Knight Cardiovascular Institute, Oregon Health & Science University, Portland, Oregon.
    Tecson, Kristen M
    Baylor Heart & Vascular Institute, Baylor Scott & White Research Institute, Dallas, Texas.
    Apers, Silke
    KU Leuven-University of Leuven, KU Leuven Department of Public Health and Primary Care, Leuven, Belgium.
    Luyckx, Koen
    KU Leuven-University of Leuven, School Psychology and Child and Adolescent Development, Leuven, Belgium.
    Thomet, Corina
    University of Bern, Center for Congenital Heart Disease, Inselspital-Bern University Hospital, Bern, Switzerland.
    Budts, Werner
    KU Leuven-University of Leuven, Division of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium; KU Leuven Department of Cardiovascular Sciences, Leuven, Belgium.
    Enomoto, Junko
    Department of Adult Congenital Heart Disease, Chiba Cardiovascular Center, Chiba, Japan.
    Sluman, Maayke A
    Department of Cardiology, Academic Medical Center, Amsterdam, The Netherlands.
    Wang, Jou-Kou
    National Taiwan University, School of Nursing, College of Medicine,Taipei, Taiwan.
    Jackson, Jamie L
    Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, Ohio.
    Khairy, Paul
    Université de Montréal, Adult Congenital Heart Center, Montreal Heart Institute, Montreal, Canada.
    Cook, Stephen C
    Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, Grand Rapids, Michigan.
    Subramanyan, Raghavan
    Frontier Lifeline Hospital, Dr. K. M. Cherian Heart Foundation, Chennai, India..
    Alday, Luis
    Division of Cardiology, Hospital de Niños, Córdoba, Argentina.
    Eriksen, Katrine
    Department of Cardiology, Oslo University Hospital-Rikshospitalet, Oslo, Norway.
    Dellborg, Mikael
    The Sahlgrenska Academy at University of Gothenburg, Adult Congenital Heart Unit, Sahlgrenska University Hospital/Östra, Gothenburg, Sweden; Institute of Medicine, Sweden; University of Gothenburg, Centre for Person-Centred Care (GPCC), Gothenburg, Sweden.
    Berghammer, Malin
    University West, Department of Health Sciences, Section for nursing - graduate level. University of Gothenburg, Centre for Person-Centred Care (GPCC), Gothenburg, Sweden.
    Johansson, Bengt
    Umeå University, Department of Public Health and Clinical Medicine, Umeå, Sweden.
    Mackie, Andrew S
    University of Alberta, Division of Cardiology, Stollery Children's Hospital, Edmonton, Canada.
    Menahem, Samuel
    Monash University, Monash Heart, Monash Medical Centre, Melbourne, Australia.
    Caruana, Maryanne
    Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass, Malta.
    Veldtman, Gruschen
    Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio.
    Soufi, Alexandra
    Department of Congenital Heart Disease, Louis Pradel Hospital, Hospices civils de Lyon, Lyon, France.
    Fernandes, Susan M
    Stanford University School of Medicine, Department of Pediatrics and Medicine, Divisions of Pediatric Cardiology and Cardiovascular Medicine, Palo Alto, California.
    Callus, Edward
    Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy.
    Kutty, Shelby
    University of Nebraska Medical Center/ Children's Hospital and Medical Center, Adult Congenital Heart Disease Center, Omaha, Nebraska, USA.
    Gandhi, Amarendra
    KU Leuven-University of Leuven, School Psychology and Child and Adolescent Development, Leuven, Belgium.
    Moons, Philip
    University of Gothenburg, KU Leuven Department of Public Health and Primary Care, KU Leuven-University of Leuven, Leuven, Belgium; Centre for Person-Centred Care (GPCC), Gothenburg, Sweden; University of Gothenburg, Institute of Health and Care Sciences, Gothenburg, Sweden..
    Cedars, Ari M
    The University of Texas Southwestern Medical Center, Department of Internal Medicine, Division of Cardiology, Dallas, Texas.
    Physical Activity-Related Drivers of Perceived Health Status in Adults With Congenital Heart Disease2018In: American Journal of Cardiology, ISSN 0002-9149, E-ISSN 1879-1913, Vol. 122, no 8, p. 1437-1442, article id S0002-9149(18)31423-1Article in journal (Refereed)
    Abstract [en]

    Data on the differential impact of physical activity on perceived health status (PHS) in a large adult congenital heart disease (ACHD) patient population are lacking. We conducted a cross-sectional assessment of 4,028 ACHD patients recruited from 24 ACHD-specialized centers in 15 countries across 5 continents to examine the association between physical activity and PHS in a large international cohort of ACHD patients. A linear analog scale of the EuroQol-5D 3 level version and the 12-item Short Form Health Survey-version 2 were used to assess self-reported health status and the Health-Behavior Scale-Congenital Heart Disease was used as a subjective measurement of physical activity type, participation, and level. Correlation analyses and Wilcoxon Rank Sum tests examined bivariate relations between sample characteristics and PHS scores. Then, multivariable models were constructed to understand the impact of physical activity on PHS. Only 30% of our sample achieved recommended physical activity levels. Physically active patients reported better PHS than sedentary patients; however, the amount of physical activity was not associated with PHS. Further statistical analyses demonstrated that specifically sport participation regardless of physical activity level was a predictor of PHS. In conclusion, the majority of ACHD patients across the world are physically inactive. Sport participation appears to be the primary physical activity-related driver of PHS. By promoting sport-related exercise ACHD specialists thus may improve PHS in ACHD patients.

  • 17.
    Kovacs, Adrienne H.
    et al.
    Equilibria Psychological Health, Toronto, Ontario (CAN).
    Luyckx, Koen
    School Psychology and Development in Context, KU Leuven–University of Leuven, Leuven (BEL); UNIBS, University of the Free State, Bloemfontein (ZAF).
    Thomet, Corina
    Center for Congenital Heart Disease, Department of Cardiology, Inselspital, Bern University Hospital, University of Bern, Bern (CHE).
    Budts, Werner
    Division of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven (BEL); KU Leuven Department of Cardiovascular Sciences, KU Leuven–University of Leuven, Leuven (BEL).
    Enomoto, Junko
    Department of Education, Toyo University, Tokyo (JPN).
    Sluman, Maayke A.
    Department of Cardiology, Academic Medical Center, Amsterdam (NLD); Department of Cardiology, Jeroen Bosch Hospital, ‘s-Hertogenbosch (NLD).
    Lu, Chun-Wei
    Department of Pediatrics, National Taiwan University Hospital, Taipei (TWN).
    Jackson, Jamie L.
    Center for Biobehavioral Health, Nationwide Children’s Hospital, Columbus, Ohio (USA).
    Khairy, Paul
    Adult Congenital Heart Center, Montreal Heart Institute, Université de Montréal, Montreal (CAN).
    Cook, Stephen C.
    IU Health Adult Congenital Heart Disease Program, IU School of Medicine, Indianapolis, Indiana (USA).
    Chidambarathanu, Shanthi
    Pediatric Cardiology, Frontier Lifeline Hospital (Dr K. M. Cherian Heart Foundation), Chennai (IND).
    Alday, Luis
    Division of Cardiology, Hospital de Niños, Córdoba (ARG).
    Estensen, Mette-Elise
    Department of Cardiology, Oslo University Hospital, Rikshospitalet, Oslo (NOR).
    Dellborg, Mikael
    Adult Congenital Heart Unit, Sahlgrenska University Hospital/Östra, Gothenburg (SWE); Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg, Gothenburg (SWE).
    Berghammer, Malin
    University West, Department of Health Sciences, Section for nursing - graduate level.
    Johansson, Bengt
    Department of Surgery and Perioperative Sciences, Umeå University, Umeå (SWE).
    Mackie, Andrew S.
    Division of Cardiology, Stollery Children’s Hospital, University of Alberta, Edmonton, Alberta (CAN).
    Menahem, Samuel
    Department of Paediatrics and School of Clinical Sciences, Monash University, Melbourne, Victoria (AUS).
    Caruana, Maryanne
    Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass (MLT).
    Veldtman, Gruschen
    Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio (USA).
    Soufi, Alexandra
    Department of Cardiac Rehabilitation, Médipôle Hôpital Mutualiste, Lyon-Villeurbanne (FRA).
    Jameson, Susan M.
    Adult Congenital Heart Program at Stanford, Lucile Packard Children’s Hospital and Stanford Health Care, Palo Alto, California (USA).
    Callus, Edward
    Clinical Psychology Service, IRCCS Policlinico San Donato, San Donato Milanese, Milan (ITA): Department of Biomedical Sciences for Health, University of Milan, Milan (ITA).
    Kutty, Shelby
    Adult Congenital Heart Disease Center University of Nebraska Medical Center/ Children’s Hospital and Medical Center, Omaha, Nebraska (USA).
    Oechslin, Erwin
    Toronto Adult Congenital Heart Disease Program, Peter Munk Cardiac Centre, University Health Network, Toronto, Ontario (CAN); University of Toronto, Toronto, Ontario,(CAN).
    Van Bulck, Liesbet
    KU Leuven Department of Public Health and Primary Care, KU Leuven–University of Leuven, Leuven (BEL); Research Foundation Flanders (FWO), Brussels (BEL).
    Moons, Philip
    KU Leuven Department of Public Health and Primary Care, KU Leuven–University of Leuven, Leuven (BEL); Centre for Person-Centered Care (GPCC), University of Gothenburg, Gothenburg (SWE); Institute of Health and Care Sciences, University of Gothenburg (SWE); Department of Paediatrics and Child Health, University of Cape Town, Cape Town (ZAF.
    Anxiety and Depression in Adults With Congenital Heart Disease2024In: Journal of the American College of Cardiology, ISSN 0735-1097, E-ISSN 1558-3597, Vol. 83, no 3, p. 430-441Article in journal (Refereed)
    Abstract [en]

    Background: A comprehensive understanding of adult congenital heart disease outcomes must include psychological functioning. Our multisite study offered the opportunity to explore depression and anxiety symptoms within a global sample.

    Objectives: In this substudy of the APPROACH-IS (Assessment of Patterns of Patient-Reported Outcomes in Adults With Congenital Heart Disease–International Study), the authors we investigated the prevalence of elevated depression and anxiety symptoms, explored associated sociodemographic and medical factors, and examined how quality of life (QOL) and health status (HS) differ according to the degree of psychological symptoms.

    Methods: Participants completed the Hospital Anxiety and Depression Scale, which includes subscales for symptoms of anxiety (HADS-A) and depression (HADS-D). Subscale scores of 8 or higher indicate clinically elevated symptoms and can be further categorized as mild, moderate, or severe. Participants also completed analogue scales on a scale of 0 to 100 for QOL and HS. Analysis of variance was performed to investigate whether QOL and HS differed by symptom category.

    Results: Of 3,815 participants from 15 countries (age 34.8 ± 12.9 years; 52.7% female), 1,148 (30.1%) had elevated symptoms in one or both subscales: elevated HADS-A only (18.3%), elevated HADS-D only (2.9%), or elevations on both subscales (8.9%). Percentages varied among countries. Both QOL and HS decreased in accordance with increasing HADS-A and HADS-D symptom categories (P < 0.001).

    Conclusions: In this global sample of adults with congenital heart disease, almost one-third reported elevated symptoms of depression and/or anxiety, which in turn were associated with lower QOL and HS. We strongly advocate for the implementation of strategies to recognize and manage psychological distress in clinical settings. (Patient-Reported Outcomes in Adults With Congenital Heart Disease [APPROACH-IS]; NCT02150603) 

  • 18.
    Lipponen, Emilia
    et al.
    University West, Department of Health Sciences, Section for nursing - undergraduate level.
    Khasin, Faiza
    University West, Department of Health Sciences, Section for nursing - undergraduate level.
    Patienters erfarenheter av egenvårdsstöd vid hjärtsvikt: En litteraturöversikt2022Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Heart failure is a disease that affects societal costs, healthcare needs and, above all, the patient's quality of life. By highlighting patients' experiences of being cared for heart failure, an increased understanding and knowledge can be established among care staff.

    Aim:The aim was to highlight patients with heartfailure experiences of receiving support in self-care.

    Method: A literature review was conducted to highlight knowledge in the field. We reviewed qualitative and quantitative scientific articles from Cinahl and Pubmed.

    Results: The results are presented in the following themes: Knowledge, motivation, and support. As well as sub-themes about information, home environment, restrictions and barriers and commitment from healthcare staff and the surroundings.

    Conclusions: Patients with heart failure have both limitations and obstacles in heart failure. In addition, patients have a lack of self-care regarding heart failure, which led to reduced well-being. Patients needed support, knowledge, and advice to strengthen the patient's self-determination over the situation. Based on the literature review, the nurse should understand the patient's experience of self-care in heart failure in order to collaborate with the patient and be able to adapt the care to his or her individual needs. 

  • 19.
    Lévesque, Valérie
    et al.
    Université de Montréal, Montreal Heart Institute, Montreal, Canada (CAN).
    Laplante, Laurence
    Université de Montréal, Montreal Heart Institute, Montreal, Canada (CAN).
    Shohoudi, Azadeh
    Université de Montréal, Montreal Heart Institute, Montreal, Canada (CAN).
    Apers, Silke
    KU Leuven Department of Public Health and Primary Care; University of Leuven, Leuven, Belgium (BEL).
    Kovacs, Adrienne H
    Knight Cardiovascular Institute, Oregon Health & Science University, Portland, Oregon, USA (USA).
    Luyckx, Koen
    KU Leuven - University of Leuven, School Psychology and Child and Adolescent Development,Leuven, Belgium BEL); University of the Free State, UNIBS, Bloemfontein, South Africa (ZAF).
    Thomet, Corina
    University of Bern, Center for Congenital Heart Disease, Department of Cardiology, Inselspital, Bern University Hospital, Bern, Switzerland (CHE).
    Budts, Werner
    Division of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium (BEL); KU Leuven - University of Leuven, KU Leuven Department of Cardiovascular Sciences, Leuven, Belgium (BEL)..
    Enomoto, Junko
    Department of Adult Congenital Heart Disease,Cardiovascular Center, Chiba, Chiba, Japan (JPN).
    Sluman, Maayke A
    Department of Cardiology, Academic Medical Center, Amsterdam, The Netherlands (NLD); Department of Cardiology, Jeroen Bosch Hospital, Hertogenbosch, Amsterdam, the Netherlands (NLD).
    Lu, Chun-Wei
    Department of Pediatrics, National Taiwan University Hospital, Taipei, Taiwan (TWN).
    Jackson, Jamie L
    Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, OH, USA (USA).
    Cook, Stephen C
    Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, Grand Rapids, MI, USA (USA).
    Chidambarathanu, Shanthi
    Pediatric Cardiology, Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), Chennai, India (IND).
    Alday, Luis
    Monash University,Monash Medical Centre, Melbourne, Australia (AUS).
    Eriksen, Katrine
    Department of Cardiology, Oslo University Hospital–Rikshospitalet, Oslo, Norway (NOR).
    Dellborg, Mikael
    Adult Congenital Heart Unit, Sahlgrenska University Hospital/Östra, Gothenburg, Sweden; Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg, Sweden; University of Gothenburg, Centre for Person-Centred Care (GPCC), Gothenburg, Sweden.
    Berghammer, Malin
    University West, Department of Health Sciences, Section for nursing - graduate level. University of Gothenburg, Centre for Person-Centred Care (GPCC), Sweden.
    Johansson, Bengt
    Umeå University, Department of Public Health and Clinical Medicine, Umeå, Sweden.
    Mackie, Andrew S
    University of Alberta, Division of Cardiology, Stollery Children's Hospital, Edmonton, Canada (CAN).
    Menahem, Samuel
    Monash University, Monash Heart, Monash Medical Centre, Melbourne, Australia (AUS).
    Caruana, Maryanne
    Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass, Malta (MLT).
    Veldtman, Gruschen
    Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA (USA).
    Soufi, Alexandra
    Department of Congenital Heart Disease, Louis Pradel Hospital, Hospices civils de Lyon, Lyon, France (FRA).
    Fernandes, Susan M
    Department of Pediatrics and Medicine, Palo Alto, California USA (USA).
    White, Kamila S
    Washington University, Adult Congenital Heart Disease Center, USA (USA); University of Missouri, Barnes Jewish Heart & Vascular Center, Saint Louis, Missour USA (USA).
    Callus, Edward
    Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy (ITA); Università degli Studi di Milano, Department of Biomedical Sciences for Health, Milan, Italy (ITA).
    Kutty, Shelby
    University of Nebraska Medical Center, Adult Congenital Heart Disease Center, Children's Hospital and Medical Center, Omaha, NE, USA (USA).
    Brouillette, Judith
    Université de Montréal, Montreal Heart Institute, Montreal, Canada (CAN).
    Casteigt, Benjamin
    Université de Montréal, Montreal Heart Institute, Montreal, Canada (CAN).
    Moons, Philip
    KU Leuven–University of Leuven, Leuven, Belgium (BEL); University of Gothenburg, Institute of Health and Care Sciences, Gothenburg, Sweden; University of Cape Town, Department of Paediatrics and Child Health, Cape Town, South Africa (ZAF).
    Khairy, Paul
    Université de Montréal, Montreal Heart Institute, Montreal, Canada (CAN).
    Implantable Cardioverter-Defibrillators and Patient-Reported Outcomes in Adults with Congenital Heart Disease: an International Study2020In: Heart Rhythm, ISSN 1547-5271, E-ISSN 1556-3871, Vol. 17, no 5, p. 768-776Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Implantable cardioverter-defibrillators (ICDs) are increasingly used to prevent sudden deaths in the growing population of adults with congenital heart disease (CHD). Yet, little is known about their impact on patient-reported outcomes (PROs).

    OBJECTIVE: We assessed and compared PROs in adults with CHD with and without ICDs.

    METHODS: A propensity-based matching weight analysis was conducted to evaluate PROs in an international cross-sectional study of adults with CHD from 15 countries across 5 continents.

    RESULTS: A total of 3,188 patients were included: 107 with ICDs and 3,081 weight-matched controls without ICDs. ICD recipients averaged 40.1±12.4 years of age, with >95% having moderate or complex CHD. Defibrillators were implanted for primary and secondary prevention in 38.3% and 61.7%, respectively. Perceived health status, psychological distress, sense of coherence, and health behaviours did not differ significantly in patients with and without ICDs. However, ICD recipients had a more threatening view of their illness (relative % difference 8.56, P=0.011). Those with secondary compared to primary prevention indications had a significantly lower quality of life score (linear analogue scale 72.0±23.1 versus 79.2±13.0, P=0.047). Marked geographic variations were observed. Overall sense of well-being, assessed by a summary score that combines various PROs, was significantly lower in ICD recipients (versus controls) from Switzerland, Argentina, Taiwan, and USA.

    CONCLUSIONS: In an international cohort of adults with CHD, ICDs were associated with a more threatening illness perception, with a lower quality of life in those with secondary compared to primary prevention indications. However, marked geographic variability in PROs was observed.

  • 20.
    Monneret, Denis
    et al.
    Department of Metabolic Biochemistry, La Pitié Salpêtrière-Charles Foix University Hospital, Paris, France.
    Gellerstedt, Martin
    University West, School of Business, Economics and IT, Divison of Informatics. Department of Surgery, Institute of Clinical Sciences, University of Gothenburg, Scandinavian Surgical Outcomes Research Group, Sahlgrenska University Hospital, Gothenburg, Sweden.
    Bonnefont-Rousselot, Dominique
    Paris Descartes University, Faculty of Pharmacy, Department of Biochemistry, Paris, France.
    Determination of age- and sex-specific 99th percentiles for high-sensitive troponin T from patients: An analytical imprecision- and partitioning-based approach2018In: Clinical Chemistry and Laboratory Medicine, ISSN 1434-6621, E-ISSN 1437-4331, Vol. 56, no 5, p. 818-829Article in journal (Other academic)
    Abstract [en]

    Detection of acute myocardial infarction (AMI) is mainly based on a rise of cardiac troponin with at least one value above the 99th percentile upper reference limit (99th URL). However, circulating high-sensitive cardiac troponin T (hs-cTnT) concentrations depend on age, sex and renal function. Using an analytical imprecision-based approach, we aimed to determine age- A nd sex-specific hs-cTnT 99th URLs for patients without chronic kidney disease (CKD). A 3.8-year retrospective analysis of a hospital laboratory database allowed the selection of adult patients with concomitant plasma hs-cTnT (<300 ng/L) and creatinine concentrations, both assayed twice within 72 h with at least 3 h between measurements. Absence of AMI was assumed when the variation between serial hs-cTnT values was below the adjusted-analytical change limit calculated according to the inverse polynomial regression of analytical imprecision. Specific URLs were determined using Clinical and Laboratory Standards Institute (CLSI) methods, and partitioning was tested using the proportion method, after adjustment for unequal prevalences. After outlier removal (men: 8.7%; women: 6.6%), 1414 men and 1082 women with estimated glomerular filtration rate (eGFR) ≥60 mL/min/1.73 m2 were assumed as non-AMI. Partitioning into age groups of 18-50, 51-70 and 71-98 years, the hs-cTnT 99th URLs adjusted on French prevalence were 18, 33, 66 and 16, 30, 84 ng/L for men and women, respectively. Age-partitioning was clearly required. However, sex-partitioning was not justified for subjects aged 18-50 and 51-70 years for whom a common hs-cTnT 99th URLs of about 17 and 31 ng/L could be used. Based on a laboratory approach, this study supports the need for age-specific hs-cTnT 99th URLs. © 2017 Walter de Gruyter GmbH.

  • 21.
    Monneret, Denis
    et al.
    Department of Biochemistry and Molecular Biology, South Lyon Hospital Group, Hospices Civils de Lyon (HCL), 165 Chemin du Grand Revoyet, Pierre-Bénite, 69495, France.
    Gellerstedt, Martin
    University West, School of Business, Economics and IT, Divison of Informatics.
    Roche, Frédéric
    Department of Clinical and Exercise Physiology, University Hospital of Saint-Etienne, Saint-Etienne, France; EA 4607 SNA-EPIS, PRES Lyon, Saint-Etienne, France .
    Bonnefont-Rousselot, Dominique
    Department of Metabolic Biochemistry, La Pitié Salpêtrière-Charles Foix University Hospital (AP-HP), Paris, France; CNRS UMR8258, INSERM U1022, Faculty of Pharmacy, Sorbonne Paris Cité, Paris Descartes University, Paris, France.
    Outlier removal methods for skewed data: Impact on age-specific high-sensitive cardiac troponin T 99th percentiles2019In: Clinical Chemistry and Laboratory Medicine, ISSN 1434-6621, E-ISSN 1437-4331, Vol. 57, no 10, p. E244-E247Article in journal (Refereed)
  • 22.
    Moons, Philip
    et al.
    KU Leuven - University of Leuven, KU Leuven Department of Public Health and Primary Care, Leuven,(BEL); Centre for Person-Centred Care (GPCC), Gothenburg, (SWE); University of Gothenburg, Institute of Health and Care Sciences, Gothenburg, (SWE).
    Luyckx, Koen
    KU Leuven - University of Leuven, School Psychology and Child and Adolescent Development,Leuven, (BEL); University of the Free State, UNIBS, Bloemfontein, (ZAF).
    Thomet, Corina
    KU Leuven Department of Public Health and Primary Care, KU Leuven, Leuven, (BEL);University of Bern, Center for Congenital Heart Disease, Department of Cardiology, Inselspital, Bern University Hospital, Bern,(CHE).
    Budts, Werner
    Division of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, (BEL); KU Leuven - University of Leuven, KU Leuven Department of Cardiovascular Sciences, Leuven,( BEL).
    Enomoto, Junko
    Toyo University, Department of Education, Tokyo (JPN).
    Sluman, Maayke A
    Coronel Institute of Occupational Health, Amsterdam UMC, University of Amsterdam, Amsterdam (NLD); Department of Cardiology, Jeroen Bosch Hospital, Hertogenbosch, Amsterdam (NLD).
    Lu, Chun-Wei
    National Taiwan University Children’s Hospital, Adult Congenital Heart Center, Taipei (TWN).
    Jackson, Jamie L
    Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, OH (USA).
    Khairy, Paul
    Université de Montréal, Adult Congenital Heart Center, Montreal Heart Institute, Montreal (CAN).
    Cook, Stephen C
    Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, Grand Rapids, MI (USA).
    Chidambarathanu, Shanthi
    Pediatric Cardiology, Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), Chennai (IND).
    Alday, Luis
    Division of Cardiology, Hospital de Niños, Córdoba(ARG).
    Eriksen, Katrine
    Department of Cardiology, Oslo University Hospital - Rikshospitalet, Oslo (NOR).
    Dellborg, Mikael
    Adult Congenital Heart Unit, Sahlgrenska University Hospital/Östra, Gothenburg (SWE); Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg (SWE); University of Gothenburg, Centre for Person-Centred Care (GPCC), Gothenburg (SWE).
    Berghammer, Malin
    University West, Department of Health Sciences, Section for nursing - graduate level.
    Johansson, Bengt
    Umeå University, Department of Public Health and Clinical Medicine, Umeå (SWE).
    Mackie, Andrew S
    University of Alberta, Division of Cardiology, Stollery Children's Hospital, Edmonton (CAN).
    Menahem, Samuel
    Monash University, Monash Heart, Monash Medical Centre, Melbourne (AUS).
    Caruana, Maryanne
    Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass (MLT).
    Veldtman, Gruschen
    Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH (USA).
    Soufi, Alexandra
    Department of Congenital Heart Disease, Louis Pradel Hospital, Hospices civils de Lyon, Lyon (FRA).
    Fernandes, Susan M
    Adult Congenital Heart Program at Stanford, Lucile Packard Children’s Hospital and Stanford Health Care (USA).
    White, Kamila S
    Washington University, Adult Congenital Heart Disease Center, Seattle (USA); University of Missouri, Barnes Jewish Heart & Vascular Center, Saint Louis, Missouri (USA).
    Callus, Edward
    Clinical Psychology Service, IRCCS Policlinico San Donato, Milan (ITA); Università degli Studi di Milano, Department of Biomedical Sciences for Health, Milan (ITA).
    Kutty, Shelby
    University of Nebraska Medical Center, Adult Congenital Heart Disease Center, Children's Hospital and Medical Center, Omaha, NE (USA).
    Ombelet, Fouke
    KU Leuven Department of Public Health and Primary Care, KU Leuven, Leuven (BEL).
    Apers, Silke
    KU Leuven - University of Leuven, KU Leuven Department of Public Health and Primary Care, Leuven (BEL).
    Kovacs, Adrienne H
    Peter Munk Cardiac Centre, University Health Network, University of Toronto, Toronto, Ontario (CAN); Knight Cardiovascular Institute, Oregon Health & Science University, Portland,Oregon (USA).
    Physical Functioning, Mental Health, and Quality of Life in Different Congenital Heart Defects: Comparative Analysis in 3538 Patients From 15 Countries2021In: Canadian Journal of Cardiology, ISSN 0828-282X, E-ISSN 1916-7075, Vol. 37, no 2, p. 215-223, article id S0828-282X(20)30317-2Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: We compared physical functioning, mental health, and quality of life (QoL) of patients with different subtypes of congenital heart disease (CHD) in a large international sample and investigated the role of functional class in explaining the variance in outcomes across heart defects.

    METHODS: In the cross-sectional Assessment of Patterns of Patient-Reported Outcome in Adults with Congenital Heart Disease-International Study (APPROACH-IS), we enrolled 4028 adult patients with CHD from 15 countries. Diagnostic groups with at least 50 patients were included in these analyses, yielding a sample of 3538 patients (median age: 32 years; 52% women). Physical functioning, mental health, and QoL were measured with the SF-12 health status survey, Hospital Anxiety and Depression Scale (HADS), linear analog scale (LAS) and Satisfaction with Life Scale, respectively. Functional class was assessed using the patient-reported New York Heart Association (NYHA) class. Multivariable general linear mixed models were applied to assess the relationship between the type of CHD and patient-reported outcomes, adjusted for patient characteristics, and with country as random effect.

    RESULTS: Patients with coarctation of the aorta and those with isolated aortic valve disease reported the best physical functioning, mental health, and QoL. Patients with cyanotic heart disease or Eisenmenger syndrome had worst outcomes. The differences were statistically significant, above and beyond other patient characteristics. However, the explained variances were small (0.6% to 4.1%) and decreased further when functional status was added to the models (0.4% to 0.9%).

    CONCLUSIONS: Some types of CHD predict worse patient-reported outcomes. However, it appears that it is the functional status associated with the heart defect rather than the heart defect itself that shapes the outcomes.

  • 23.
    Moons, Philip
    et al.
    KU Leuven - University of Leuven, KU Leuven Department of Public Health and Primary Care, Leuven, Belgium(BEL); Centre for Person-Centred Care (GPCC), Gothenburg, Sweden; University of Gothenburg, Institute of Health and Care Sciences, Gothenburg, Sweden; University of Cape Town, Department of Paediatrics and Child Health, South Africa (ZAF).
    Luyckx, Koen
    KU Leuven School Psychology and Development in Context, KU Leuven, Leuven, Belgium (BEL); UNIBS, University of the Free State, Bloemfontein, South Africa (ZAF).
    Thomet, Corina
    KU Leuven Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium (BEL); Center for Congenital Heart Disease, Department of Cardiology, Inselspital - Bern University Hospital, University of Bern, Bern, Switzerland (CHE).
    Budts, Werner
    Division of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium (BEL); KU Leuven Department of Cardiovascular Sciences, KU Leuven, Leuven, Belgium (BEL).
    Enomoto, Junko
    Toyo University, Department of Education, Tokyo, Japan (JPN).
    Sluman, Maayke A
    University of Amsterdam, Coronel Institute of Occupational Health, Amsterdam UMC, Amsterdam, the Netherlands (NLD); Department of Cardiology, Jeroen Bosch Hospital, 's Hertogenbosch, the Netherlands (NLD).
    Wang, Jou-Kou
    National Taiwan University Hospital, Department of Pediatrics, Taipei, Taiwan (TWN).
    Jackson, Jamie L
    Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, Ohio (USA).
    Khairy, Paul
    Université de Montréal, Adult Congenital Heart Center, Montreal Heart Institute, Montreal, Canada (CAN).
    Cook, Stephen C
    Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, Grand Rapids, Michigan (USA).
    Chidambarathanu, Shanthi
    Pediatric Cardiology, Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), Chennai, India (IND).
    Alday, Luis
    Division of Cardiology, Hospital de Niños, Córdoba, Argentina (ARG).
    Oechslin, Erwin
    University of Toronto, Toronto Congenital Cardiac Center for Adults, Peter Munk Cardiac Center, University Health Network, Toronto, Canada (CAN).
    Eriksen, Katrine
    Adult Congenital Heart Disease Center, Oslo University Hospital - Rikshospitalet, Oslo, Norway (NOR).
    Dellborg, Mikael
    University of Gothenburg, Centre for Person-Centred Care (GPCC), Gothenburg, Sweden; Adult Congenital Heart Unit, Sahlgrenska University Hospital/Östra, Gothenburg, Sweden; Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg, .
    Berghammer, Malin
    University West, Department of Health Sciences, Section for nursing - graduate level. Department of Paediatrics, Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg,.
    Johansson, Bengt
    Umeå University, Department of Public Health and Clinical Medicine,Umeå, Sweden.
    Mackie, Andrew S
    University of Alberta, Division of Cardiology, Stollery Children's Hospital, Edmonton, Canada (CAN).
    Menahem, Samuel
    Monash University, Monash Heart, Monash Medical Centre, Melbourne, Australia (AUS).
    Caruana, Maryanne
    Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass, Malta (MLT).
    Veldtman, Gruschen
    Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, (USA).
    Soufi, Alexandra
    Department of Cardiac Rehabilitation, Médipôle Lyon-Villeurbanne, Lyon, France (FRA).
    Fernandes, Susan M
    Adult Congenital Heart Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care, Palo Alto, California (USA).
    White, Kamila
    Washington University, Adult Congenital Heart Disease Center (USA); University of Missouri, Barnes Jewish Heart & Vascular Center, Saint Louis, Missouri (USA).
    Callus, Edward
    Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy (ITA); Università degli Studi di Milano, Department of Biomedical Sciences for Health, Milan, Italy (ITA).
    Kutty, Shelby
    University of Nebraska, Adult Congenital Heart Disease Center Medical Center/Children's Hospital and Medical Center, Omaha, Nebraska (USA); Taussig Heart Center, Johns Hopkins School of Medicine, Baltimore, Maryland (USA).
    Apers, Silke
    KU Leuven Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium (BEL).
    Kovacs, Adrienne H
    University of Toronto, Toronto Congenital Cardiac Center for Adults, Peter Munk Cardiac Center, University Health Network, Toronto, Canada (CAN); Oregon Health & Science University, Knight Cardiovascular Institute, Portland, Oregon (USA).
    Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS).2021In: American Journal of Cardiology, ISSN 0002-9149, E-ISSN 1879-1913, Vol. 145, p. 135-142Article in journal (Refereed)
    Abstract [en]

    In this international study, we (1) compared patient-reported outcomes (PROs) in adults with congenital heart disease (CHD) who had versus had not been hospitalized during the previous 12 month, (2) contrasted PROs in patients who had been hospitalized for cardiac surgery versus nonsurgical reasons, (3) assessed the magnitude of differences between the groups (i.e., effect sizes), and (4) explored differential effect sizes between countries. APPROACH-IS was a cross-sectional, observational study that enrolled 4,028 patients from 15 countries (median age 32 years; 53% females). Self-report questionnaires were administered to measure PROs: health status; anxiety and depression; and quality of life. Overall, 668 patients (17%) had been hospitalized in the previous 12 months. These patients reported poorer outcomes on all PROs, with the exception of anxiety. Patients who underwent cardiac surgery demonstrated a better quality of life compared with those who were hospitalized for nonsurgical reasons. For significant differences, the effect sizes were small, whereas they were negligible in nonsignificant comparisons. Substantial intercountry differences were observed. For various PROs, moderate to large effect sizes were found comparing different countries. In conclusion, adults with CHD who had undergone hospitalization in the previous year had poorer PROs than those who were medically stable. Researchers ought to account for the timing of recruitment when conducting PRO research as hospitalization can impact results.

  • 24.
    Rawshani, Araz
    et al.
    University of Gothenburg, Department of Medicine, Sahlgrenska Academy.
    Larsson, Anna
    University College of Borås,The Pre-hospital Research Centre of Western Sweden, Prehospen.
    Gelang, Carita
    University College of Borås,The Pre-hospital Research Centre of Western Sweden, Prehospen.
    Lindqvist, Jonny
    University of Gothenburg, Department of Medicine, Sahlgrenska Academy.
    Gellerstedt, Martin
    University West, Department of Economics and IT, Divison of Informatics.
    Bång, Angela
    University College of Borås,The Pre-hospital Research Centre of Western Sweden, Prehospen.
    Herlitz, Johan
    University of Gothenburg, Department of Medicine, Sahlgrenska Academy.
    Characteristics and outcome among patients who dial for the EMS due to chest pain2014In: International Journal of Cardiology, ISSN 0167-5273, E-ISSN 1874-1754, Vol. 176, no 3, p. 859-865Article in journal (Refereed)
    Abstract [en]

    Objectives: This study aims to describe patients who called for the emergency medical service (EMS) due to chest discomfort, in relation to gender and age. Methods: All patients who called the emergency dispatch centre of western Sweden due to chest discomfort, between May 2009 and February 2010, were included. Initial evaluation, aetiology and outcome are described as recorded in the databases at the dispatch centre, the EMS systems and hospitals. Patients were divided into the following age groups: ≀ 50, 51-64 and ≥ 65 years. Results: In all, 14,454 cases were enrolled. Equal proportions of men (64%) and women (63%) were given dispatch priority 1. The EMS clinicians gave priority 1 more frequently to men (16% versus 12%) and older individuals (10%, 15% and 14%, respective of age group). Men had a significantly higher frequency of central chest pain (83% versus 81%); circulatory compromise (34% versus 31%); ECG signs of ischaemia (17% versus 11%); a preliminary diagnosis of acute coronary syndrome (40% versus 34%); a final diagnosis of acute myocardial infarction (14% versus 9%) and any potentially life-threatening condition (18% versus 12%). Individuals aged ≥ 65 years were given a lower priority than individuals aged 51-64 years, despite poorer characteristics and outcome. In all, 78% of cases with a potentially life-threatening condition and 67% of cases that died within 30 days of enrolment received dispatch priority 1. Mortality at one year was 1%, 4% and 18% in each individual age group. Conclusion: Men and the elderly were given a disproportionately low priority by the EMS. 

  • 25.
    Rawshani, Araz
    et al.
    University of Gothenburg, Department of Medicine, Göteborg, Sweden.
    Rawshani, Nina
    University of Gothenburg, Department of Medicine, Göteborg, Sweden.
    Gelang, Carita
    The Sahlgrenska University Hospital, Gothenburg, Sweden.
    Andersson, Jan-Otto
    The Sahlgrenska University Hospital, Gothenburg, Sweden.
    Larsson, Anna
    University of Gothenburg, Department of Medicine, Göteborg, Sweden.
    Bång, Angela
    University College of Borås, The Pre-hospital Research Centre of Western Sweden, Prehospen, Borås, Sweden.
    Herlitz, Johan
    University College of Borås, The Pre-hospital Research Centre of Western Sweden, Prehospen, Borås, Sweden.
    Gellerstedt, Martin
    University West, School of Business, Economics and IT, Divison of Law, Economics, Statistics and Politics. University West, School of Business, Economics and IT, Divison of Informatics.
    Emergency medical dispatch priority in chest pain patients due to life threatening conditions: A cohort study examining circadian variations and impact of the education2017In: International Journal of Cardiology, ISSN 0167-5273, E-ISSN 1874-1754, Vol. 236, no I June, p. 43-48Article in journal (Refereed)
    Abstract [en]

    Background and aims: We examined the accuracy in assessments of emergency dispatchers according to their education and time of the day. We examined this in chest pain patients who were diagnosed with a potentially life-threatening condition (LTC) or died within 30 days. Methods: Among 2205 persons, 482 died, 1631 experienced an acute coronary syndrome (ACS), 1914 had a LTC.Multivariable logistic regression was used to study how time of the call and the dispatcher's education were associated with the risk of missing to give priority 1 (the highest). Results: Among patients who died, a 7-fold increase in odds of missing to give priority 1 was noted at 1.00 pm, as compared with midnight. Compared with assistant nurses, odds ratio for dispatchers with no (medical) training was 0.34 (95% CI 0.14 to 0.77). Among patients with an ACS, odds ratio for calls arriving before lunch was 2.02 (95% CI 1.22 to 3.43), compared with midnight. Compared with assistant nurses, odds ratio for operators with no training was 0.23 (95% CI 0.13 to 0.40). Similar associations were noted for those with any LTC. Dispatcher's education was not associated with the patient's survival. Conclusions: In this group of patients, which experience substantial mortality and morbidity, the risk of not obtaining highest dispatch priority was increased up to 7-fold during lunchtime. Dispatch operators without medical education had the lowest risk, compared with nurses and assistant nurses, of missing to give priority 1, at the expense of lower positive predictive value. Key messages: What is already known about this subject? Use of the emergency medical service (EMS) increases survival among patients with acute coronary syndromes. It is unknown whether the efficiency – as judged by the ability to identify life-threatening cases among patients with chest pain – varies according to the dispatcher's educational level and the time of day.What does this study add? We provide evidence that the dispatcher's education does not influence survival among patients calling the EMS due to chest discomfort. However, medically educated dispatchers are at greatest risk of missing to identify life threatening cases, which is explained by more parsimonious use of the highest dispatch priority. We also show that the risk of missing life-threatening cases is at highest around lunch time.How might this impact on clinical practice? Dispatch centers are operated differently all over the world and chest discomfort is one of the most frequent symptoms encountered; we provide evidence that it is safe to operate a dispatch center without medically trained personnel, who actually miss fewer cases of acute coronary syndromes. However, non-medically trained dispatchers consume more pre-hospital resources.

  • 26.
    Rawshani, Nina
    et al.
    Sahlgrenska University Hospital, Östra Sjukhuset, Department of Emergency Medicine, Göteborg, Sweden.
    Rawshani, Araz
    University of Gothenburg, Department of Medicine, Göteborg, Sweden.
    Gelang, Carita
    University of Borås, The Pre-hospital Research Centre of Western Sweden, Prehospen, Borås, Sweden.
    Herlitz, Johan
    University of Borås, The Pre-hospital Research Centre of Western Sweden, Prehospen, Borås, Sweden.
    Bång, Angela
    University of Borås, School of Health Science, Borås, Sweden.
    Andersson, Jan-Otto
    Department of Ambulance and Prehospital Emergency Care, Skaraborg, Sweden.
    Gellerstedt, Martin
    University West, School of Business, Economics and IT, Divison of Informatics.
    Association between use of pre-hospital ECG and 30-day mortality: A large cohort study of patients experiencing chest pain2017In: International Journal of Cardiology, ISSN 0167-5273, E-ISSN 1874-1754, Vol. 248, no 1 December, p. 77-81Article in journal (Refereed)
    Abstract [en]

    Background

    In the assessment of patients with chest pain, there is support for the use of pre-hospital ECG in the literature and in the care guidelines. Using propensity score methods, we aim to examine whether the mere acquisition of a pre-hospital ECG among patients with chest pain affects the outcome (30-day mortality).

    Methods

    The association between pre-hospital ECG and 30-day mortality was studied in the overall cohort (n = 13151), as well as in the one-to-one matched cohort with 2524 patients not examined with pre-hospital ECG and 2524 patients examined with pre-hospital ECG.

    Results

    In the overall cohort, 21% (n = 2809) did not undergo an ECG tracing in the pre-hospital setting. Among those who had pain during transport, 14% (n = 1159) did not undergo a pre-hospital ECG while 32% (n = 1135) of those who did not have pain underwent an ECG tracing. In the overall cohort, the OR for 30-day mortality in patients who had a pre-hospital ECG, as compared with those who did not, was 0.63 (95% CI 0.05-0.79; p &lt; 0.001). In the matched cohort, the OR was 0.65 (95% CI 0.49-0.85; p &lt; 0.001). Using the propensity score, in the overall cohort, the corresponding HR was 0.65 (95% CI 0.58-0.74).

    Conclusion

    Using propensity score methods, we provide real-world data demonstrating that the adjusted risk of death was considerably lower among the cases in whoma pre-hospital ECG was used. The PH-ECG is underused among patients with chest discomfort and the mere acquisition of a pre-hospital ECG may reduce mortality.

  • 27.
    Steffen, Marie
    University West, Department of Health Sciences, Section for nursing - undergraduate level.
    Kvinnors upplevelser av livet efter en hjärtinfarkt: En litteraturbaserad studie2022Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background Cardiovascular diseases is one of the biggest public health problems in the world. In Sweden, a myocardial infarction effects both men and women. There is a lack of research on women’s experiences of life after a myocardial infarction. 

    Aim The aim of this literature-based study was to describe women’s experiences of life after a myocardial infarction.

    Method The literature was searched in the databases Cinahl and PsycInfo. A five-step model for the analysis of ten qualitative articles was performed. The analysis generated three main Categories and seven subcategories.

    Results The results in this literature-based study shows that women who have suffered from a myocardial infarction experience anxiety afterwards. The women sought the most support from family and relatives. The results also showed that women who had a positive attitude to make lifestyle changes were more likely to recover compared to those who had a more negative attitude. Overall, women had a positive attitude towards rehabilitation after a myocardial infarction.

    Conclusion Nurses need to have in-depth knowledge about women´s experiences suffered from a myocardial infarction to be able to understand and support women on a caring nursing level. A holistic approach by means that the whole person is taking account beyond the disease contributes to a person- centered care. This approach of nurses supports individually tailored care based on the woman’s unique situation.

  • 28.
    Yousef, Alham
    et al.
    University West, Department of Health Sciences.
    Koluman, Rebecca
    University West, Department of Health Sciences.
    Patienters upplevelse av sin livskvalitet efter hjärtinfarkt: En litteraturbaserad studie2022Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Myocardial infarction is caused by an ischemic condition in the heart muscle. Cardiovsacular diseases is one of Swedens largest public health disease were approximatley 12% of the population is affected. The survival rates are increasing in Sweden due to information and preventive care. The health-related quality of life are affected for those surviving.

    Aim: The aim of the study was to describe patients' experiences of their life quality post myocardial infarction.

    Method: A qualitative literature-based study were used in order to answer the aim of the study. A total of ten representative studies were analyzed and interpreted to obtain themes.

    Results: The result was compiled by three main themes and nine sub-themes. Main symptoms reported post myocardial infarction were fatigue, reduced physical capacity and mental state, uncertainty and affected autonomy.

    Conclusion: Patient’s lifequality were affected due to physical- and psychologial limitations caused by myocardial infarction. The need for information in order to find coping strategies were seen as a necessity by the patients. Acknowledgement and individual supportive care by healthcare providers were considered essential in order to offer person-centered care for those affected.

    Download full text (pdf)
    fulltext
  • 29.
    Östman-Smith, Ingegerd
    et al.
    Gothenburg University, Division of Paediatrics, Department of Clinical Sciences, Sahlgrenska Academy.
    Wisten, Aase
    Sunderby Hospital, Luleå, Department of Internal Medicine.
    Nylander, Eva
    Linköping University, Department of Clinical Physiology/CVM, Faculty of Health Science.
    Bratt, Ewa-Lena
    Gothenburg University, Division of Paediatrics, Department of Clinical Sciences, Sahlgrenska Academy.
    de-Wahl Granelli, Anne
    Gothenburg University, Division of Paediatrics, Department of Clinical Sciences, Sahlgrenska Academy.
    Oulhaj, Abderrahim
    University of Oxford, OPTIMA, Department of Physiology, Anatomy and Genetics.
    Ljungström, Erik
    Lund University, Department of Cardiology, University Hospita.
    Electrocardiographic amplitudes: a new risk factor for sudden death in hypertrophic cardiomyopathy.2010In: European Heart Journal, ISSN 0195-668X, E-ISSN 1522-9645, Vol. 31, no 4, p. 439-449Article in journal (Refereed)
    Abstract [en]

    AIMS: Assessment of ECG-features as predictors of sudden death in adults with hypertrophic cardiomyopathy (HCM).

    METHODS AND RESULTS: ECG-amplitude sums were measured in 44 normals, 34 athletes, a hospital-cohort of 87 HCM-patients, and 29 HCM-patients with sudden death or cardiac arrest (HCM-CA). HCM-patients with sudden death or cardiac arrest had substantially higher ECG-amplitudes than the HCM-cohort for limb-lead and 12-lead QRS-amplitude sums, and amplitude-duration products (P = 0.00003-P = 0.000002). Separation of HCM-CA from the HCM-cohort is obtained by limb-lead QRS-amplitude sum >or=7.7 mV (odds ratio 18.8, sensitivity 87%, negative predictive value (NPV) 94%, P < 0.0001), 12-lead amplitude-duration product >or=2.2 mV s (odds ratio 31.0, sensitivity 92%, NPV 97%, P < 0.0001), and limb-lead amplitude-duration product >or=0.70 mV s (odds ratio 31.5, sensitivity 93%, NPV 96%, P < 0.0001). Sensitivity in HCM-patients <40 years is 90, 100, and 100% for those ECG-variables, respectively. Qualitative analysis showed correlation with cardiac arrest for pathological T-wave-inversion (P = 0.0003), ST-depression (P = 0.0010), and dominant S-wave in V(4) (P = 0.0048). A risk score is proposed; a score >or=6 gives a sensitivity of 85% but a higher positive predictive value than above measures. Optimal separation between HCM-CA <40 years and athletes is obtained by a risk score >or=6 (odds ratio 345, sensitivity 85%, specificity 100%, P < 0.0001).

    CONCLUSION: Twelve-lead ECG is a powerful instrument for risk-stratification in HCM.

1 - 29 of 29
CiteExportLink to result list
Permanent link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf