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  • 1.
    Alverbratt, Catrin
    et al.
    University West, Department of Health Sciences, Specialist Nursing programme.
    Berlin, Johan
    University West, Department of Social and Behavioural Studies, Division of Social Pedagogy and Sociology.
    Åström, Sture
    University West, Department of Nursing, Health and Culture, Divison of Caring Sciences, postgraduate level.
    Kauffeldt, Anders
    University West, Department of Nursing, Health and Culture, Divison of Caring Sciences, postgraduate level.
    Carlström, Eric
    University West, Department of Nursing, Health and Culture, Divison of Caring Sciences, postgraduate level.
    A New Working Method in Psychiatric Care: the impact of implementation2016In: International Journal of Public Administration, ISSN 0190-0692, E-ISSN 1532-4265, Vol. 40, no 3, p. 295-304Article in journal (Refereed)
    Abstract [en]

    An equal mix of organizational cultures is important for a successful implementation process. The aim of this study was to examine the implementation of a new working method in psychiatric hospital wards, representing different cultural characteristics. Descriptive quantitative data were collected at two hospitals (intervention and control). The results revealed one ward characterized by a mix of organizational cultures. This ward, compared with other intervention wards, showed the best results regarding patient assessed empowerment and participation. The result shows tentatively that organizational culture may have an impact on the implementation processes.

  • 2.
    Andersson, Henrik
    et al.
    University of Borås, PreHospen - Centre for Prehospital Researc Borås, Sweden; University of Borås, Faculty of Caring Science, Work Life and Social Welfare, Borås, Sweden.
    Axelsson, Christer
    University of Borås, PreHospen - Centre for Prehospital Researc Borås, Sweden; University of Borås, Faculty of Caring Science, Work Life and Social Welfare, Borås, Sweden.
    Larsson, Anna
    Ambulance Department, South Älvsborg's Hospital, Borås, Sweden.
    Bremer, Anders
    University of Borås, PreHospen - Centre for Prehospital Researc Borås, Sweden; Linnaeus University, Faculty of Health and Life Sciences, Växjö, Sweden.
    Gellerstedt, Martin
    University West, School of Business, Economics and IT, Divison of Informatics.
    Bång, Angela
    University of Borås, PreHospen - Centre for Prehospital Researc Borås, Sweden; University of Gothenburg, The Sahlgrenska Academy, Institute of Health and Care Sciences, Gothenburg, Sweden.
    Herlitz, Johan
    University of Borås, PreHospen - Centre for Prehospital Researc Borås, Sweden; University of Borås, Faculty of Caring Science, Work Life and Social Welfare, Borås, Sweden.
    Ljungström, Lars
    Skaraborg Hospital, Infection Disease Department, Skövde, Sweden.
    The early chain of care in bacteraemia patients: Early suspicion, treatment and survival in prehospital emergency care.2018In: American Journal of Emergency Medicine, ISSN 0735-6757, E-ISSN 1532-8171, Vol. 36, no 12, p. 2211-2218, article id S0735-6757(18)30279-1Article in journal (Refereed)
    Abstract [en]

    INTRODUCTION: Bacteraemia is a first stage for patients risking conditions such as septic shock. The primary aim of this study is to describe factors in the early chain of care in bacteraemia, factors associated with increased chance of survival during the subsequent 28days after admission to hospital. Furthermore, the long-term outcome was assessed.

    METHODS: This study has a quantitative design based on data from Emergency Medical Services (EMS) and hospital records.

    RESULTS: In all, 961 patients were included in the study. Of these patients, 13.5% died during the first 28days. The EMS was more frequently used by non-survivors. Among patients who used the EMS, the suspicion of sepsis already on scene was more frequent in survivors. Similarly, EMS personnel noted the ESS code "fever, infection" more frequently for survivors upon arriving on scene. The delay time from call to the EMS and admission to hospital until start of antibiotics was similar in survivors and non-survivors. The five-year mortality rate was 50.8%. Five-year mortality was 62.6% among those who used the EMS and 29.5% among those who did not (p<0.0001).

    CONCLUSION: This study shows that among patients with bacteraemia who used the EMS, an early suspicion of sepsis or fever/infection was associated with improved early survival whereas the delay time from call to the EMS and admission to hospital until start of treatment with antibiotics was not. 50.8% of all patients were dead after five years.

  • 3.
    Andersson, Liselotte
    et al.
    University West, Department of Nursing, Health and Culture.
    Jakum, Päivi
    University West, Department of Nursing, Health and Culture.
    Inte som i Gökboet: sjuksköterskors beskrivningar av omvårdnadsprocessen inom den rättspsykiatriska vården : en kvalitativ studie2009Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Forensic psyhiatric care protects the society by giving patients care to diminish risks of serious crimes. In their work the nurses use different care methods to help and support the patient in managing his or her life situation. To clarify how a group of nurses describe the nursing process in forensic psychiatric care. A qualitative study based on interviews. Six nurses were interviewed about their work in four different forensic psychiatric care units. The nursing process in is divided into four categories: evaluation, planning, implementation and assessment. The results are based on the way the interviewed nurses described the essential roles of nurse-patient relationship and structured routines in nursing process. The study also shows some specific difficulties in nursing work, for example the mental dysfunctions of patients, the level of competence among staff and the patients need for social interaction and existence beyond their specific needs.

  • 4. Axrup, K
    et al.
    Lindqvist, B
    Samuelson, Gösta
    Oral-facial-digital syndrome. A case report1971In: Odontologisk revy, ISSN 0029-8441, Vol. 22, no 2, p. 137-44Article in journal (Refereed)
  • 5.
    Bador, Kourosh
    et al.
    AGERA KBT AB, Gothenburg, Sweden.
    Kerekes, Nora
    University West, Department of Health Sciences, Section for health promotion and care sciences.
    Evaluation of an Integrated Intensive Cognitive Behavioral Therapy Treatment Within Addiction Care2019In: Journal of Behavioral Health Services & Research, ISSN 1094-3412, E-ISSN 1556-3308Article in journal (Refereed)
    Abstract [en]

    The study aimed to evaluate an integrated intensive cognitive behavioral therapy (CBT) group treatment for people with substance-related syndrome in outpatient care and to identify eventual gender differences. The study population consisted of 35 outpatients (18 male, 17 female) at a clinic in Western Sweden. The patients completed a four-month period of intensive group therapy and participated in the data collection at admission and discharge. The data were collected using the following inventories: Beck Depression and Anxiety Inventories, Rosenberg Self-Esteem Scale,Hopelessness Scale, and Trait Hope Scale. Results showed decreases in anxiety, depression and experience of hopelessness, and increases in self-esteem and hope. In females, the most dramatic improvement was measured for the anxiety and depression attributes, while in males the strongest effect was measured for hope and self-esteem. This study provides clinical evidence of the positive effects of integrated intensive CBT in outpatient care of people with substance-related syndrome.

  • 6.
    Bay, Annika
    et al.
    Umeå University, Public Health and Clinical Medicine, Umeå, Sweden.
    Berghammer, Malin
    University West, Department of Health Sciences, Section for nursing - graduate level.
    Lamas, K
    Umeå University, Nursing, Umeå, Sweden.
    Sandberg, Camilla
    Umeå University, Public Health and Clinical Medicine, Umeå, Sweden.
    Johansson, Bengt
    Umeå University, Public Health and Clinical Medicine, Umeå, Sweden.
    Facilitators and barriers for physical activity in adults with congenital heart disease2018In: European Heart Journal, ISSN 0195-668X, E-ISSN 1522-9645, Vol. 39, no suppl_1, p. 1120-1121, article id ehy566.P5433Article in journal (Refereed)
    Abstract [en]

    Background: A majority of adults with congenital heart disease (CHD) have reduced exercise capacity and do not reach the recommended level of physical activity. A physically active lifestyle is essential to maintain health and counteract acquired cardiovascular disease. This study illuminates aspects that may be relevant for performing physical activity.Purpose: To describe facilitators and barriers for physical activity in adults with CHD.Methods: Semi-structured interviews were performed individually with fourteen adults (age 19–68 years, women=7) with complex CHD. The interviews were analyzed using qualitative content analysis.Results: Aspects that may enable or inhibit physical activity were found in two domains; Facilitators and Barriers, which both consisted of four categories physical, psychological, psychosocial and environmental aspects (Table 1).

  • 7. Bergfors, P G
    et al.
    Höglund, T
    Samuelson, Gösta
    Winberg, J
    Lasarettsvecka i pediatrik : Försöksverksamhet  under grundutbildningen: [Hospital week in pediatricsExperiments in medical education].1974In: Läkartidningen, ISSN 0023-7205, E-ISSN 1652-7518, Vol. 71, no 22, p. 2237-8Article in journal (Refereed)
  • 8.
    Berghammer, Malin
    et al.
    University West, Department of Health Sciences, Section for nursing - graduate level.
    Johansson, B.
    Umea University, Department of Public Health and Clinical Medicine, Umea, Sweden.
    Mattson, E.
    Karolinska University Hospital, Department of Cardiology, Stockholm, Sweden.
    Moons, P.
    The Sahlgrenska Academy at Gothenburg University, Institute of health and caring sciences, Gothenburg, Sweden;.
    Dellborg, M.
    University of Gothenburg, Institute of medicine, Sahlgrenska Academy, Gothenburg, Sweden.
    Exploration of disagreement between the patient’s self reported limitations and limitations assessed by caregivers in adults with congenital heart disease2018In: European Heart Journal, ISSN 0195-668X, E-ISSN 1522-9645, Vol. 39, no Suppl 1, article id 2406Article in journal (Refereed)
    Abstract [en]

    Background: The New York Heart Association (NYHA) classification is applied in a wide spectrum of heart diseases including adult patients with congenital heart disease (ACHD). The NYHA-class assessment is often based on the evaluation by the caregiver, but to what extent it correlates with the patient's view of their function is not fully known.Purpose: To investigate the relation between the patient's self-reported physical limitations, symptoms, other heart defect related factors and NYHA-class assessed by the caregiver.Methods: Eligible patients (n=333, age 39.2±13.6 years) were identified and randomly selected from the national registry for CHD. All of the patients completed a standardized questionnaire measuring different PRO-domains. By combing self-reported data with registry data including NYHA-class, analyses of agreement of physical limitations were performed.Results: Almost 30% of the patients rated their limitations higher compared to the NYHA-class estimated by the caregiver. Patients with self-reported limitations and their NYHA-class underestimated by caregivers, more often reported symptoms, anxiety, lower health and worked fewer hours/week compared to other patients with CHD. There were no differences regarding sex, type of symptoms, prescribed medications, or complexity of cardiac lesion. In patients without self-reported limitations agreement with NYHA-class estimated by caregivers was 97%.Conclusion: Adult patients with CHD and self-reported limitations may not be correctly identified by the care-giver. Instruments for patient reported outcomes might improve the assessment of physical limitations and could further improve the correctness in evaluating the patient's status.

  • 9.
    Berndtsson, Ina
    University West, Department of Nursing, Health and Culture, Division of Nursing.
    Livskvalitet och sexualitet efter stomioperation2010Conference paper (Refereed)
    Abstract [sv]

    Fysiska och psykiska besvär kan påverka hälsan och i förlängningen sexualiteten. Ett exempel är patienten som har diarréer, ont i magen och förlorar vikt och energi orsakat av en inflammatorisk tarmsjukdom.  Medan att ha en cancer i colon eller rektum ger oftast inga besvärliga symtom, inte i början. Men för patienten med cancer påverkar behandlingen i form av strålning, kirurgi och cytostatika bla. sexualiteten.

    Det är viktigt att sjuksköterskan är medveten om patienten påverkas även sexuellt. Sjuksköterskan kan vanligtvis prata med patienten om privata saker som tex. avföringsvanor och om döden. Sjuksköterskan skall även ges information om sexualiteten, och frågor skall kunna ställas av patienten och eventuell partner. Sexualiteten betyder olika mycket för olika personer och vid olika tidpunkter i livet. Att negligera patientens behov om att prata om detta eller resonera som att de får någon annan ta upp om (läkaren) är inte rätt. Människan är en sexuell varelse.

  • 10.
    Berndtsson, Ina
    University West, Department of Nursing, Health and Culture, Division of Nursing.
    Sexualitet och fertilitet vid inflammatorisk tarmsjukdom2008Other (Other academic)
  • 11.
    Berndtsson, Ina
    University West, Department of Nursing, Health and Culture, Division of Nursing.
    Stoma-related complications after stoma construction in emergency surgery.2009In: 10th European congress for nurses with interest in stomacare. Portugal, Porto, June 14-17, 2009., 2009Conference paper (Refereed)
    Abstract [en]

    PURPOSE; Prospectively longitudinal study of the frequency and type of stoma-related complications after stoma construction in emergency surgery. METHOD; 153 patients were operated acutely with a colostomy, ileostomy or loop-ileostomy formation between April 2003 and March 2005 at the Sahlgrenska University Hospital in Gothenburg, Sweden. The postoperative follow up took place in the ward and another five times two years after discharge. On these occasions diameter, height and shape of the ostomy were recorded. Peristomal skin problems, necrosis, leakage due to low ostomy, stenosis, granuloma, prolapse and peristomal hernia were evaluated. Use of convexity appliance was also documented. RESULTS were based on 144 patients 85 women and 59 men with a median age of 67 (range 23-98) years. The ostomy diameter size was postoperatively on the ward median 34 (r 22-80) mm but had reduced to 25 (r 22-60) mm in two weeks. Postoperatively on the ward 31% of colostomy was oval, and 24% of the ileostomy. After 12 months was 21% of the colostomy oval. Irrespective of ostomy types the most common complication was skin problems, most frequent in those with loop ileostomy (48%) hernia was most common in patients with colostomy (26%) at 12 months of follow-up. A patient may have developed more complications such as necrosis of stomin as the cause of this even skin problems. The patients with ileostomy used convexity appliance common in 6 month (67%) and the patients with colostomy in one year (29%). CONCLUSION This study shows that while skin problems dominated in ileostomy patients (48% in loop ileostomies) peristomal hernia was the most common complication in colostomy patients (26%). Early stoma nurse assistance in the acute phase and regular postoperative follow-up subsequently is very important.

  • 12.
    Berntsson, Shala Ghaderi
    et al.
    Uppsala University, Department of Neuroscience, Neurology, University Hospital, Uppsala, Sweden.
    Landtblom, Anne-Marie
    Uppsala University, Department of Neuroscience, Neurology, University Hospital, Uppsala, Sweden, Department of Clinical and Experimental Medicine, Neurology, Medical Faculty, University of Linköping, Linköping, Sweden.
    Flensner, Gullvi
    University West, Department of Health Sciences, Section for nursing - graduate level.
    Cerebellar ataxia and intrathecal baclofen therapy: Focus on patients´ experiences2017In: PLoS ONE, ISSN 1932-6203, E-ISSN 1932-6203, Vol. 2, no 6, article id e0180054Article in journal (Refereed)
    Abstract [en]

    Elucidating patients´ experiences of living with chronic progressive hereditary ataxia and the symptomatic treatment with intrathecal baclofen (ITB) is the objective of the current study. A multicenter qualitative study with four patients included due to the rare combination of hereditary ataxia and ITB therapy was designed to elucidate participants' experiences through semi-structured interviews. The transcribed text was analyzed according to content analysis guidelines. Overall we identified living in the present/ taking one day at a time as the main theme covering the following categories: 1) Uncertainty about the future as a consequence of living with a hereditary disease; The disease; 2) Impact on life as a whole, 3) Influence on personal life in terms of feeling forced to terminate employment, 4) Limiting daily activities, and 5) ITB therapy, advantages, and disadvantages. Uncertainty about the future was the category that affected participants' personal life, employment, and daily activities. The participants' experience of receiving ITB therapy was expressed in terms of improved quality of life due to better body position and movement as well as better sleep and pain relief.

  • 13. Bjure, J
    et al.
    Fälström, S P
    Latuszek, B
    Samuelson, Gösta
    Cystisk fibros med okaraktäristisk debut: [Cystic fibrosis with uncharacteristic onset].1976In: Läkartidningen, ISSN 0023-7205, E-ISSN 1652-7518, Vol. 73, no 10, article id 870Article in journal (Refereed)
  • 14.
    Brink, Eva
    et al.
    University West, Department of Nursing, Health and Culture, Division of Health and Culture.
    Grankvist, Gunne
    University West, Department of Social and Behavioural Studies, Division of Psychology and Organisation Studies.
    Associations between depression, fatigue, and life orientation in myocardial infarction patients2006In: Journal of Cardiovascular Nursing, ISSN 0889-4655, Vol. 21, no 5, p. 407-411Article in journal (Other academic)
  • 15.
    Brink, Eva
    et al.
    University West, Department of Nursing, Health and Culture, Division of Advanced Nursing.
    Grankvist, Gunne
    University West, Department of Social and Behavioural Studies, Division of Psychology and Organisation Studies.
    Karlson, Björn W
    Sahlgrenska University, Division of Cardiology.
    Hallberg, Lillemor R M
    Halmstad University, School of Social and Health Sciences.
    Health-related quality of life in women and men one year after acute myocardial infarction2005In: Quality of Life Research, ISSN 0962-9343, E-ISSN 1573-2649, Vol. 14, no 3, p. 749-57Article in journal (Refereed)
    Abstract [en]

    The purpose of the present study was, first, to detect possible changes in health-related quality of life (HRQL) over time and, second, to predict HRQL at 1 year based on measures made 1 week and 5 months after a first-time acute myocardial infarction. There was an improvement in HRQL at 1 year, as measured by the questionnaire 36-item Medical Outcomes Study Short-Form (SF-36), for both men and women as compared with the assessment 5 months after the acute myocardial infarction. However, the pattern was somewhat different for women and men. Women mainly reported increased scores on scales reflecting better mental health, whereas men, on the whole, demonstrated higher scores in the physical health domain. Depression (HAD) and fatigue were identified as early predictors of lower HRQL at the 1-year follow-up. Our conclusion is that early assessment of fatigue and depression is worthwhile, as they may indicate decreased HRQL in men and women 1 year after first-time myocardial infarction.

  • 16. Domellöf, L
    et al.
    Eriksson, S
    Samuelson, Gösta
    Sönne, B
    Local perineal actinomycosis1974In: Acta paediatrica Scandinavica, ISSN 0001-656X, Vol. 63, no 3, p. 450-2Article in journal (Refereed)
  • 17.
    Dåderman, Anna Maria
    University West, Department of Social and Behavioural Studies, Division of Psychology and Organisation Studies. Karolinska Institutet.
    Det har blivit populärt att vara psykiskt sjuk i Kalifornien: konsekvenser av den nya lagen Three-strikes and you're out law2000In: Läkartidningen, ISSN 0023-7205, E-ISSN 1652-7518, Vol. 97, no 51-52, p. 6038-6039Article in journal (Refereed)
    Abstract [en]

    The primary goal of the new Three-strikes and you're out law, the law which first came into effect on 1994, was to protect innocent members of the community. A person convicted of his or her third conviction after two prior serious convictions under Three-strikes will typically receive a sentence of no less than 25 years to life in state prison. This law is well-known in California among criminals, especially repeat offenders and many of them left the state. The rate of homicides in the state has decreased by 50%. Many repeat offenders remained in California and continued to commit new crimes. Before Three-strikes was enacted, it was very uncommon for forensic psychiatrists to see criminals malingering symptoms of mental illness in any but the most serious of cases of murder or rape. Since the implementation of the new law, it has been found malingering to be much more common. Hundreds of patients at state mental hospitals fake insanity to avoid prison, costing taxpayers far more than the cost of incarceration in a prison. The most common types of malingers are discussed.

  • 18.
    Dåderman, Anna Maria
    et al.
    Karolinska Institutet, Stockholm University.
    Edman, Gunnar
    Department of Psychiatry, Research and Development, Danderyd’s Hospital, Danderyd, Sweden.
    Flunitrazepam abuse and personality characteristics inmale forensic psychiatric patients2001In: Psychiatry Research, ISSN 0165-1781, E-ISSN 1872-7123, Vol. 103, no 1, p. 27-42Article in journal (Refereed)
    Abstract [en]

    Sixty male non-psychotic forensic psychiatric patients, aged 16-35 years, were studied after they completed their ordinary forensic psychiatric assessment (FPA). The prevalence of flunitrazepam (FZ) abuse was investigated by using both structured and in-depth interviews with the objective of studying the relationship between the abuse and personality traits. The patient’s characteristics, DSM-IV disorders, and actual sentences were obtained by studying their files. In order to obtain measures on their personality traits, self-report inventories were administered to the patients. Eighteen out of 60 patients were FZ abusers, but only 4 of them received a diagnosis related to the FZ abuse during the ordinary FPA. In almost all cases, however, indications of the FZ abuse were found in the files. No differences in personality traits were found between the groups. The frequency of previous admissions to an FPA and actual sentences of robbery, weapons offenses, narcotic-related offenses, and other crimes, such as theft, among the FZ abusers deviated significantly from forensic non-FZ abusers. Therefore, the FZ abuse per se might be more responsible for their tendency to commit crimes characterized by danger and thrill-seeking, such as robbery, weapons offences, and theft, than personality. The most important conclusion is that assessment of FZ abuse is needed in forensic psychiatry.

  • 19.
    Dåderman, Anna Maria
    et al.
    Department of Forensic Psychiatry, Stockholm; Stockholm University, Sweden.
    Fredriksson, Björn
    Department of Forensic Psychiatry, Stockholm, Sweden.
    Kristiansson, Marianne
    Department of Forensic Psychiatry, Stockholm, Sweden.
    Nilsson, Lars-Håkan
    Department of Forensic Psychiatry, Stockholm, Sweden.
    Lidberg, Lars
    Department of Forensic Psychiatry, Stockholm, Sweden.
    Violent behavior, impulsive decision-making, and anterograde amnesia while intoxicated with Flunitrazepam and alcohol or other drugs: A case study in forensic psychiatric patients2002In: The journal of the American Academy of Psychiatry and the Law, ISSN 1093-6793, E-ISSN 1943-3662, Vol. 30, no 2, p. 238-251Article in journal (Refereed)
    Abstract [en]

    It is known that many male juvenile delinquents commit violent crimes while intoxicated with flunitrazepam (FZ), often in combination with alcohol or other drugs. We have also noted the combined abuse of FZ with, for example, alcohol in male forensic psychiatric patients. Our objective was to study violent behavior, impulsive decision making, and amnesia in male forensic psychiatric patients who were intoxicated predominantly with FZ, to increase knowledge of the abuse of FZ in vulnerable subjects. We studied five forensic psychiatric patients, all of whom were assessed in 1998. All of the subjects reported earlier reactions to FZ, including hostility and anterograde amnesia. At the time of their crimes they were all intoxicated with FZ, often in combination with alcohol or other drugs, such as amphetamine or cannabis. In contrast to their behavior based on their ordinary psychological characteristics, their crimes were extremely violent, and the subjects lacked both the ability to think clearly and to have empathy with their victims. Our observations support the view that FZ abuse can lead to serious violent behavior in subjects characterized by vulnerable personality traits, and that this effect is confounded by the concurrent use of alcohol or other drugs. It is evident that FZ causes anterograde amnesia. Previous research and the results presented herein allow us to draw the following conclusion: on the basis of the neuropsychopharmacologic properties of FZ, legal decisions, such as declaring FZ an illegal drug, are needed in countries where it is now legal.

  • 20.
    Dåderman, Anna Maria
    et al.
    The Swedish National Police Academy.
    Jonson, Carin
    Karolinska Institutet.
    Lack of psychopathic character (Rorschach) in forensic psychiatric rapists2008In: Nordic Journal of Psychiatry, ISSN 0803-9488, E-ISSN 1502-4725, Vol. 62, no 3, p. 176-185Article in journal (Refereed)
    Abstract [en]

    Previous research using Rorschach is sparse in rapists. The aim of this study of 10 violent male forensic psychiatric rapists was to describe them on a set of Rorschach variables, which are assumed to reflect psychopathic character, in order to increase our understanding of rapists. The participants were involved in a long-term psychodynamic sexual offender treatment program. They were previously assessed on dyslexia and ADHD, and the results showed an overrepresentation of these disorders in this sample. Compared with normative samples, the participants scored significantly lower on three of the Rorschach variables; Lambda, WSum6 and Afr. The participants did not meet criteria for psychopathic character. Although the generalization of the results from 10 rapists is severely limited, our results suggest helplessness in managing emotionally laden situations and hint at the problems experienced by this sample of forensic psychiatric rapists. Clinicians should be aware of the lack of psychopathic character in some rapists and that effective treatment programs should focus on training this type of rapists to be able to react appropriately to emotional stimuli.

  • 21. Dåderman, Anna Maria
    et al.
    Kristiansson, Marianne
    The National Board of Forensic Medicine, Huddinge, Sweden.
    Degree of psychopathy: implications for treatment in male juvenile delinquents2003In: International Journal of Law and Psychiatry, ISSN 0160-2527, E-ISSN 1873-6386, Vol. 26, no 3, p. 301-315Article in journal (Refereed)
    Abstract [en]

    Longitudinal studies have consistently shown that psychopathy in adulthood has its roots in childhood. The psychopathy concept described by Cleckley (1976) involves interpersonal, affective, and behavioral aspects. Moreover, children who show low levels of anxiety respond more poorly to treatment. The aim of the present study was to assess psychopathy in 56 male juvenile delinquents with conduct disorder, treated in youth correctional institutions for severe offenders. We used a modified Psychopathy Checklist-Revised (PCL-R) that has been used for young people (Forth et al., 1990). Each participant received PCL-R assessments from one rater, based on the file information and an extensive interview. Twenty-eight participants (50%) were rated by the second rater. Both the ICC and Cohens’s kappa revealed that the PCL-R ratings were reliable: the ICC(2,1) of the PCL-R total scores was 0.90, F(27, 28) = 11.70, P < .0001; Cohen’s kappa = 0.64, P < .001. The final scores on the PCL-R showed that the base rate for psychopathy (defined as a score of 30 or more) in the sample was 59% (33 of 56 juvenile delinquents). The mean PCL-R total score for all 56 participants was 29.3 (S.D. = 7.8), and ranged between 12 and 40. The high rates of psychopathy found in juvenile delinquents with conduct disorder should alert clinicians to the necessity of psychopathy scoring, and shows that high-quality treatment programs are needed. Psychopathy is not currently considered when assessing and treating young people in state-administered observational and correctional institutions for juvenile delinquents in Sweden.

  • 22.
    Dåderman, Anna Maria
    et al.
    Stockholm University.
    Kristiansson, Marianne
    The National Board of Forensic Medicine, Huddinge, Sweden.
    Psychopathy-related personality traits in male juvenile delinquents: an application of a person-oriented approach2004In: International Journal of Law and Psychiatry, ISSN 0160-2527, E-ISSN 1873-6386, Vol. 27, no 1, p. 45-64Article in journal (Refereed)
    Abstract [en]

    Some personality characteristics, such as impulsiveness, thrill seeking, and the need for change, are clearly relevant when studying psychopathy. Psychopaths are certainly avid sensation seekers. The primary aim of the present study was to identify common patterns with respect to psychopathy-related personality traits in a sample of 56 juveniles from four Swedish national correctional institutions for juvenile delinquents. Karolinska Scales of Personality (KSP), the Impulsiveness scale from the Impulsiveness–Venturesomeness–Empathy (IVE) inventory and the Total Sensation-Seeking scale from the SSS-V were used to determine personality traits. Cluster analysis was performed with SLEIPNER. Ward’s hierarchical minimum variance clustering method was used. We discovered seven clusters of participants. The mean T scores of the profiles of personality traits in the clusters (the cluster centroids) have been used to describe the clusters. Three multideviant clusters emerged, into which 31 (63%) of the classified participants could be placed. To describe the clusters, the prevalence of participants with a high degree of psychopathy (cutoff PCL-R score 27or above) was computed for each cluster and was complemented with data on previous treatment occasions and reoffending. The results indicated that psychopaths may develop different personality pattern; each cluster contained participants with high values of the PCL-R. Deviant personality is not currently considered when assessing and treating people in state administered observational and correctional institutions for juvenile delinquents in Sweden. The present results suggest that young people with psychopathy are not a homogenous group but may develop various personality traits. This should have implications for risk assessment and treatment.

  • 23.
    Dåderman, Anna Maria
    et al.
    Karolinska Institutet.
    Lidberg, Lars
    Relapse in violent crime in relation to cerebrospinal fluid monoamine metabolites (5-HIAA, HVA and HMPG) in male forensic psychiatric patients convicted of murder: a 16-year follow-up2002In: Acta Psychiatrica Scandinavica Supplementum, ISSN 0065-1591, E-ISSN 1600-5473, Vol. 412, no 106, p. 71-74Article in journal (Refereed)
    Abstract [en]

    OBJECTIVE: Our purpose was to investigate if low levels of cerebrospinal fluid (CSF)monoamine metabolites of 5-HIAA, HVA and HMPG predict relapse in violent crimes. METHOD: Relapse in crime and level of CSF monoamine metabolites (5-HIAA, HVA and HMPG) was studied in a group of 29 murderers. The follow-up was 16 years. RESULTS: Fourteen of the 29 murderers were convicted of crime; nine of them committed violent crimes; one was convicted of a new murder. The differences in mean CSF monoamine metabolites were lower in subjects who relapsed into any type of crime, but only the difference in mean CSF HVA was statistically significant. CONCLUSION: The risk to commit new murder is very small in males who earlier have been convicted of murder. Low levels of CSF HVA is associated with an increased risk for relapse in any type of crime.

  • 24. Eksmyr, R
    et al.
    Fex, G
    Jagell, S
    Johansson, B G
    Ravnskov, U
    Samuelson, Gösta
    Low molecular weight proteinuria and slight hyperlipoproteinemia in three mentally retarded brothers.1976In: Acta paediatrica Scandinavica, ISSN 0001-656X, Vol. 65, no 4, p. 521-5Article in journal (Refereed)
    Abstract [en]

    Mental retardation in combination with proteinuria and a slight hyperlipoproteinemia was found in three brothers. The increased urinary protein excretion was dominated by albumin and the low molecular weight proteins retinol-binding protein (RBP) and beta2-microglobulin, indicating the presence of proximal tubular dysfunction. However, there was no glucosuria, phosphaturia or amino aciduria and the renal concentrating and acidification capacities were normal. A kidney biopsy in one of the patients revealed morphologic evidence of glomerular damage but a normal tubular structure. A mild hyper-beta-lipoproteinemia was found in the patients but not in their healthy siblings. The cause of this syndrome, hitherto not described, is unknown.

  • 25.
    Emilsson, Maria
    et al.
    University West, Department of Health Sciences, Section for nursing - graduate level.
    Berndtsson, Ina
    University West, Department of Health Sciences, Section for nursing - graduate level.
    Gustafsson, Per A
    Linköping University, Department of Clinical and Experimental Medicine and Department of Child and Adolescent Psychiatry, Center for Social and Affective Neuroscience, Linköping , Sweden..
    Horne, Robert
    University College London, Centre for Behavioural Medicine, UCL School of Pharmacy, London , UK.
    Marteinsdottir, Ina
    Linnæus University, Department of Medicine and Optometry Faculty of Health and Life Sciences, , Kalmar , Sweden.
    Reliability and validation of Swedish translation of Beliefs about Medication Specific (BMQ-Specific) and Brief Illness Perception Questionnaire (B-IPQ) for use in adolescents with attention-deficit hyperactivity disorder.2019In: Nordic Journal of Psychiatry, ISSN 0803-9488, E-ISSN 1502-4725Article in journal (Refereed)
    Abstract [en]

    Objectives: The purpose of this study was to assess the reliability and validity of Swedish translations of the Beliefs about Medicines Questionnaire-Specific (BMQ-Specific) and Brief Illness Perception Questionnaire (B-IPQ) for use in adolescents with ADHD. Methods: Forward and backward translations of the BMQ-Specific and B-IPQ scales to Swedish were conducted and reviewed by adolescents with ADHD and professionals. The validity and reliability of both questionnaires were investigated in a cross-sectional study of 101 adolescents (13-17 years) on a long-term prescription of ADHD medication recruited from two child and adolescent psychiatric outpatient clinics in Sweden. Results: Regarding the BMQ-Specific, principal component analysis (PCA) loadings confirmed the previously defined components of Specific-Necessity and Specific-Concern. The PCA for B-IPQ revealed two components, the first one, B-IPQ Consequences, captured questions regarding perceptions of the implication of having ADHD (items 1, 2, 5, 6 and 8) and the second one, B-IPQ-Control, the perceptions of the capability to manage the ADHD disorder (items 3, 4 and 7). The Cronbach alpha coefficients for BMQ-Specific-Necessity scale was α = 0.80, for BMQ-Specific-Concern scale α = 0.75, B-IPQ Consequences α = 0.74 and for B-IPQ-Control α = 0.44. Conclusions: The present results prove the Swedish translation of BMQ-Specific and B-IPQ to be valid and reliable for utilization in adolescents with ADHD. The PCA confirmed the original components for BMQ-Specific and the recent findings of two main B-IPQ components describing emotional and cognitive implications versus the capability for self-care maintenance of ADHD.

  • 26.
    Emilsson, Maria
    et al.
    University West, Department of Health Sciences, Section for nursing - graduate level.
    Gustafsson, P.A.
    Department of Clinical and Experimental Medicine and Department of Child and Adolescent Psychiatry, Center for Social and Affective Neuroscience, Linköping University.
    Öhnström, G.
    Department of Clinical and Experimental Medicine and Department of Child and Adolescent Psychiatry, Center for Social and Affective Neuroscience, Linköping University.
    Marteinsdottir, I.
    Department of Clinical and Experimental Medicine, Center for Social and Affective Neuroscience, Linköping University.
    Beliefs regarding medication and side effects influence treatment adherence in adolescents with attention deficit hyperactivity disorder2016In: European Child and Adolescent Psychiatry, ISSN 1018-8827, E-ISSN 1435-165X, p. 1-13Article in journal (Refereed)
    Abstract [en]

    Adherence to attention deficit hyperactivity disorder (ADHD) treatment is important because, when untreated, it may have serious consequences with lifelong effects. In the case of adolescents on long-term medicine prescription, more knowledge is needed regarding adherence and factors influencing adherence, which was the purpose of this study. Adolescents (n = 101) on ADHD medication ≥6 months were administrated questionnaires at amonitoring appointment: Medication Adherence Report Scale (MARS), beliefs about medicines (BMQ) and the Brief Illness Perception Questionnaire (B-IPQ). Adherencewas high, the mean value was 88% of the maximum MARS score, and correlated positively with the "BMQ necessity-concerns differential" but negatively with "BMQ concerns"and "BMQ-side effects". Adolescents with more belief in the necessity of the medication, less concerns and less experience of side effects tended to be more adherent to medication prescription ("intentional non-adherence"),while "unintentional non-adherence" (forgetfulness) was associated with how much they perceived that their ADHD affected their lives. In a multiple regression model, the variance of MARS total (R2 = 0.21) and “intentional nonadherence” (R2 = 0.24) was explained by the “BMQ-necessity–concern differential” and “BMQ-experienced side effects”. The variance of “unintentional non-adherence” (R2 = 0.12) was explained by the “BMQ-necessity–concern differential” and “B-IPQ-consequences of ADHD”. In conclusion, adolescents on long-term medication reported good adherence, mainly influenced by more beliefs in the necessity versus concerns of the medications, less experienced side effects and more perceived consequences of ADHD. BMQ could be useful to identify risks of low adherence, which should be counteracted by partially gender-specific interventions.

  • 27. Falkmer, S
    et al.
    Samuelson, Gösta
    Sjölin, S
    Penicillaminbehandling vid Wilsons sjukdom: [Penicillamine treatment of Wilson's disease].1969In: Läkartidningen, ISSN 0023-7205, E-ISSN 1652-7518, Vol. 66, no 20, p. 2097-105Article in journal (Refereed)
  • 28. Falkmer, S
    et al.
    Samuelson, Gösta
    Sjölin, S
    Penicillamine-induced normalization of clinical signs, and liver morphology and histochemistry in a case of Wilson's disease.1970In: Pediatrics, ISSN 0031-4005, E-ISSN 1098-4275, Vol. 45, no 2, p. 260-8Article in journal (Refereed)
  • 29.
    Gauffin, Helena
    et al.
    Linköping University, Department of Neurology and Department of Clinical and Experimental Medicine, Linköping, Sweden.
    Flensner, Gullvi
    University West, Department of Nursing, Health and Culture, Division of Advanced Nursing.
    Landtblom, Anne-Marie
    Uppsala University, Department of Neuroscience, Uppsala, Sweden.
    Being parents with epilepsy: thoughts on its consequences and difficulties affecting their children2015In: Neuropsychiatric Disease and Treatment, ISSN 1176-6328, E-ISSN 1178-2021, Vol. 11, p. 1291-1298, article id NDT.S74222Article in journal (Refereed)
    Abstract [en]

    Objective: Parents with epilepsy can be concerned about the consequences of epilepsy affecting their children. The aim of this paper is to describe aspects of what it means being a parent having epilepsy, focusing the parents’ perspectives and their thoughts on having children.

    Methods:

    Fourteen adults aged 18–35 years with epilepsy and subjective memory decline took part in focus-group interviews. The interviews were conducted according to a semi-structured guideline. Material containing aspects of parenthood was extracted from the original interviews and a secondary analysis was done according to a content-analysis guideline. Interviews with two parents for the Swedish book Leva med epilepsi [To live with epilepsy] by AM Landtblom (Stockholm: Bilda ide; 2009) were analyzed according to the same method.

    Results:

    Four themes emerged: (1) a persistent feeling of insecurity, since a seizure can occur at any time and the child could be hurt; (2) a feeling of inadequacy – of not being able to take full responsibility for one’s child; (3) acknowledgment that one’s children are forced to take more responsibility than other children do; and (4) a feeling of guilt – of not being able to fulfill one’s expectations of being the parent one would like to be.

    Conclusion:

    The parents with epilepsy are deeply concerned about how epilepsy affects the lives of their children. These parents are always aware that a seizure may occur and reflect on how this can affect their child. They try to foresee possible dangerous situations and prevent them. These parents were sad that they could not always take full responsibility for their child and could not live up to their own expectations of parenthood. Supportive programs may be of importance since fear for the safety of the child increases the psychosocial burden of epilepsy. There were also a few parents who did not acknowledge the safety issue of their child – the authors believe that it is important to identify these parents and provide extra information and support to them.

  • 30.
    Gellerstedt, Martin
    et al.
    University West, Department of Economics and IT, Division of Computer Science and Informatics.
    Bengtsson, U
    Sahlgrenska University Hospital, Gothenburg, Sweden.
    Niggemann, B
    University Children’s Hospital Charité, Berlin, Germany.
    Methodological issues in the diagnostic work-up of food allergy: a real challenge.2007In: Journal of investigational allergology & clinical immunology, ISSN 1018-9068, E-ISSN 1698-0808, Vol. 17, no 6, p. 350-356Article in journal (Refereed)
    Abstract [en]

    The standard of reporting in diagnostic studies has generally been low. Fortunately, this issue has begun to be addressed in recent years through the discussion of important methodological issues in educational series, textbooks, and checklists. Double-blind, placebo-controlled, oral food challenges (DBPCFC) are considered to be the gold standard for diagnosis of food allergy. However, there is no consensus regarding how to interpret the outcome and how to define positive and negative provocations in DBPCFC. Furthermore, since most theories on the diagnosis of food allergy rely on the assumption that the DBPCFC has a high accuracy, this accuracy must be formally statistically evaluated. In this review, we discuss essential methodological issues for diagnostic accuracy studies in general and for oral food challenges in particular and discuss the importance of methodological issues as a guide for forthcoming studies of diagnostic procedures.

  • 31.
    Gellerstedt, Martin
    et al.
    University West, Department of Economics and IT, Division of Computer Science and Informatics.
    Bång, Angela
    University College of Borås, Prehospital Research Centre of Western Sweden.
    Andréasson, Emma
    University West.
    Johansson, Anna
    University West.
    Herlitz, Johan
    Sahlgrenska University Hospital,, The Prehospital Research Centre of Western Sweden, Institute of Medicine, Department of Molecular and Clinical Medicine,.
    Does sex influence the allocation of life support level by dispatchers in acute chest pain?2010In: American Journal of Emergency Medicine, ISSN 0735-6757, E-ISSN 1532-8171, Vol. 28, no 8, p. 922-7Article in journal (Refereed)
    Abstract [en]

    AIM: The aim of this study was to evaluate (a) the differences between men and women in symptom profile, allocated life support level (LSL), and presence of acute myocardial infarction (AMI), life-threatening condition (LTC), or death and (b) whether a computer-based decision support system could improve the allocation of LSL. PATIENTS: All patients in Göteborg, Sweden, who called the dispatch center because of chest pain during 3 months (n = 503) were included in this study. METHODS: Age, sex, and symptom profile were background variables. Based on these, we studied allocation of LSL by the dispatchers and its relationship to AMI, LTC, and death. All evaluations were made from a sex perspective. Finally, we studied the potential benefit of using a statistical model for allocating LSL. RESULTS: The advanced life support level (ALSL) was used equally frequently for men and women. There was no difference in age or symptom profile between men and women in relation to allocation. However, the allocation of ALSL was predictive of AMI and LTC only in men. The sensitivity was far lower for women than for men. When a statistical model was used for allocation, the ALSL was predictive for both men and women. Using a separate model for men and women respectively, sensitivity increased, especially for women, and specificity was kept at the same level. CONCLUSION: This exploratory study indicates that women would benefit most from the allocation of LSL using a statistical model and computer-based decision support among patients who call for an ambulance because of acute chest pain. This needs further evaluation.

  • 32.
    Gellerstedt, Martin
    et al.
    University West, Department of Economics and IT, Division of Computer Science and Informatics.
    Petersen, Per Hyltoft
    University of Bergen, NOKLUS, Norwegian Quality Improvement of Primary Care Laboratories, Division for General Practice.
    Partitioning reference values for several subpopulations using cluster analysis2007In: Clinical chemistry and laboratory medicine, ISSN 1434-6621, Vol. 45, no 8, p. 1026-1032Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: A crucial question when developing reference intervals is whether different subpopulations need their own reference interval or if a single joint reference interval can be used. It is reasonable to use partitioned reference intervals in situations where a single interval results in considerable variation in sensitivity between subpopulations. The aim of partitioning is to harmonize the sensitivity of the reference intervals, i.e., to make the sensitivity similar for all patients, regardless of patient characteristics. Statistical criteria to identify when partitioning is adequate have been developed over the last two decades. These criteria are applicable when considering two subpopulations, but recently a procedure for considering several subpopulations has been developed. When several subpopulations are considered, there is a possibility that some subpopulations could form a group or cluster that could share a common reference interval. However, there is no formal systematic approach to indicate how to divide these subpopulations into clusters. The aim of this study was to suggest such a systematic approach for clustering. METHODS: A clustering technique was applied to data including several subpopulations. The technique is based on measuring the distance between separated reference limits and successively pooling subpopulations divided by short distances. A cluster is defined by a group of subpopulations that are close to each other and that differ from subpopulations in another cluster. A cluster recruits new subpopulations as long as the subpopulations can be pooled without violating a partitioning criterion. CONCLUSIONS: We have suggested a procedure for partitioning a number of Gaussian (or Gaussian-transformable) subpopulations into clusters. This is the only formalized procedure indicating how to analyze several subpopulations and identify a suitable number of groups and reference intervals. Using a computer program developed for partitioning issues, the approach was easy to adopt.

  • 33.
    Gellerstedt, Martin
    et al.
    University West, Department of Economics and IT, Division of Computer Science and Informatics.
    Petersen, Per Hyltoft
    University of Bergen, Bergen, Norway.
    Partitioning reference values for several subpopulations using cluster analysis.2007In: Clinical Chemistry and Laboratory Medicine, ISSN 1434-6621, E-ISSN 1437-4331, Vol. 45, no 8, p. 1026-32Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: A crucial question when developing reference intervals is whether different subpopulations need their own reference interval or if a single joint reference interval can be used. It is reasonable to use partitioned reference intervals in situations where a single interval results in considerable variation in sensitivity between subpopulations. The aim of partitioning is to harmonize the sensitivity of the reference intervals, i.e., to make the sensitivity similar for all patients, regardless of patient characteristics. Statistical criteria to identify when partitioning is adequate have been developed over the last two decades. These criteria are applicable when considering two subpopulations, but recently a procedure for considering several subpopulations has been developed. When several subpopulations are considered, there is a possibility that some subpopulations could form a group or cluster that could share a common reference interval. However, there is no formal systematic approach to indicate how to divide these subpopulations into clusters. The aim of this study was to suggest such a systematic approach for clustering. METHODS: A clustering technique was applied to data including several subpopulations. The technique is based on measuring the distance between separated reference limits and successively pooling subpopulations divided by short distances. A cluster is defined by a group of subpopulations that are close to each other and that differ from subpopulations in another cluster. A cluster recruits new subpopulations as long as the subpopulations can be pooled without violating a partitioning criterion. CONCLUSIONS: We have suggested a procedure for partitioning a number of Gaussian (or Gaussian-transformable) subpopulations into clusters. This is the only formalized procedure indicating how to analyze several subpopulations and identify a suitable number of groups and reference intervals. Using a computer program developed for partitioning issues, the approach was easy to adopt.

  • 34.
    Gellerstedt, Martin
    et al.
    University West, School of Business, Economics and IT, Divison of Law, Economics, Statistics and Politics. University West, School of Business, Economics and IT, Divison of Informatics.
    Rawshani, Nina
    Department of Emergency Medicine, University of Gothenburg, Göteborg, Sweden.
    Herlitz, Johan
    The Pre-hospital Research Centre of Western Sweden, Prehospen, University College of Borås, Borås, Sweden, Department of Medicine, University of Gothenburg, Göteborg, Sweden.
    Bång, Angela
    The Pre-hospital Research Centre of Western Sweden, Prehospen, University College of Borås, Borås, Sweden.
    Gelang, Carita
    The Pre-hospital Research Centre of Western Sweden, Prehospen, University College of Borås, Borås, Sweden, Department of Ambulance and Prehospital Emergency Care, University of Gothenburg, Göteborg, Sweden.
    Andersson, Jan-Otto
    Department of Ambulance and Prehospital Emergency Care, Skaraborg, Sweden.
    Larsson, Anna
    The Pre-hospital Research Centre of Western Sweden, Prehospen, University College of Borås, Borås, Sweden.
    Rawshani, Araz
    Department of Medicine, University of Gothenburg, Göteborg, Sweden.
    Could prioritisation by emergency medicine dispatchers be improved by using computer-based decision support?: A cohort of patients with chest pain2016In: International Journal of Cardiology, ISSN 0167-5273, E-ISSN 1874-1754, Vol. 220, p. 734-738Article in journal (Refereed)
    Abstract [en]

    Background: To evaluate whether a computer-based decision support system could improve the allocation of patients with acute coronary syndrome (ACS) or a life-threatening condition (LTC). We hypothesised that a system of this kind would improve sensitivity without compromising specificity. Methods: A total of 2285 consecutive patients who dialed 112 due to chest pain were asked 10 specific questions and a prediction model was constructed based on the answers. We compared the sensitivity of the dispatchers' decisions with that of the model-based decision support model. Results: A total of 2048 patients answered all 10 questions. Among the 235 patients with ACS, 194 were allocated the highest prioritisation by dispatchers (sensitivity 82.6%) and 41 patients were given a lower prioritisation (17.4% false negatives). The allocation suggested by the model used the highest prioritisation in 212 of the patients with ACS (sensitivity of 90.2%), while 23 patients were underprioritised (9.8% false negatives). The results were similar when the two systems were compared with regard to LTC and 30-day mortality. This indicates that computer-based decision support could be used either for increasing sensitivity or for saving resources. Three questions proved to be most important in terms of predicting ACS/LTC, [1] the intensity of pain, [2] the localisation of pain and [3] a history of ACS. Conclusion: Among patients with acute chest pain, computer-based decision support with a model based on a few fundamental questions could improve sensitivity and reduce the number of cases with the highest prioritisation without endangering the patients.

  • 35.
    Grankvist, Gunne
    et al.
    University West, Department of Social and Behavioural Studies, Division of Psychology, Pedagogy and Sociology.
    Johnsen, Svein Åge
    Inland Norway University of Applied Sciences, Department of Psychology, Lillehammer, Norway.
    Hanss, Daniel
    Hochschule Darmstadt–University of Applied Sciences, Department of Social Sciences, Darmstadt, Germany.
    Values and willingness-to-pay for sustainability-certified mobile phones2019In: International Journal of Sustainable Development and World Ecology, ISSN 1350-4509, E-ISSN 1745-2627, Vol. 26, no 7, p. 657-664Article in journal (Refereed)
    Abstract [en]

    This study investigated whether endorsement of personal values is associated with willingness to pay more for mobile phones with an environmental or social sustainability label. Participants were students in Sweden, Norway and Germany. A self-report inventory was used to measure willingness to pay and the importance attached to values of Schwartz's circular model. In Sweden and Norway, participants were willing to pay, on average, 18% extra for a mobile phone with labels for environmental or social sustainability. In Germany, the corresponding share was 12%. To strive for self-enhancement values, that is, social status and prestige, as well as control and dominance over people and resources, was associated with a lower willingness to pay for mobile phones with labels for environmental or social sustainability in all three countries. Furthermore, women were willing to pay more than men for mobile phones with both kinds of sustainability labels. In Sweden and Norway, participants were, on average, willing to pay more for a mobile phone with a label for social sustainability compared to a mobile phone with a label for environmental sustainability. © 2019 Informa UK Limited, trading as Taylor & Francis Group.

  • 36.
    Gustafsson, Erika
    et al.
    University West, Department of Nursing, Health and Culture, Division of Advanced Nursing.
    Holm, Maritha
    University West, Department of Nursing, Health and Culture, Division of Advanced Nursing.
    Rättspsykiatrisk vård: En svängdörr? 2009Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Everyone in forensic care has some type of psychiatric disability and has carried out one or more criminal acts. The care is regulated in a number of laws. One part of the patient’s rehabilitation is the transition from closed to open care by so-called leave. A number of the patients that are on leave are sometimes readmitted to closed care for different reasons. These patients are sometimes referred to as “revolving door patients”.

    Aim: The aim was to determine different concerned personnel groups’ opinions and experiences of what is important, if a patient that is cared for according to the law of forensic care, is to be successful or unsuccessful with his/her leave.

    Method: A qualitative approach was chosen and two focus group interviews, with six participants in each group, were performed. The text was analyzed with the help of a qualitative content analysis.

    Results: Three main themes came to light that have significance as to how successful a leave is: comorbidity, how fundamental needs are taken care of and collaboration concerning the patient. 14 subthemes were found under the three main themes: correct psychiatric diagnosis, concurrent misuses, compliance in medication, social networks, employment, safe accommodation, the patient’s economy, seeing the patients needs, clear planning, knowledge and motivation, indistinct line of responsibility, collaboration prior to leave, contacts and follow-up in open care.

    Conclusion: Many functions are adequate in the care of patients within forensic care. Though there are deficiencies that need to be improved and developed. It is important that the patients participate in the care and that different authorities create individual conditions and flexible solutions if a leave is to be successful. Arranged economy is important if a leave is to be successful, as much of the patient’s everyday existence is affected. When the patient is unsuccessful with a leave, the reason could be that the patient’s real needs are not known, or not enough consideration has been taken to the patients needs when planning the leave. Inadequate public recourses sometimes contribute to patients, in forensic care, not receiving correct or sufficient measures (help), which is a problem.

  • 37. Hambraeus, L
    et al.
    Holmgren, G
    Samuelson, Gösta
    Ska äldre PKU-patienter behandlas?: [Should older patients with PKU be diet treated?].1974In: Läkartidningen, ISSN 0023-7205, E-ISSN 1652-7518, Vol. 71, no 12, p. 1183-4Article in journal (Refereed)
  • 38.
    Herrman, Margaretha
    University West, Department of Nursing, Health and Culture.
    Ta på dig mössan: om hur ungdomar förstår och förklarar förkylning2004Report (Other academic)
  • 39.
    Holmgren, Daniel
    et al.
    Department of Pediatrics, Skaraborg Hospital, Skövde, Sweden / Institute of Clinical Sciences, University of Gothenburg, Gothenburg, Sweden .
    Skyvell Nilsson, Maria
    University West, Department of Health Sciences, Section for nursing - graduate level.
    Wekell, Per
    Department of Pediatrics, NU-Hospital Group, Uddevalla, Sweden / Institute of Clinical Sciences, University of Gothenburg, Gothenburg, Sweden.
    Combining learning for educators and participants in a paediatric CPD programme2019In: BMC Medical Education, ISSN 1472-6920, E-ISSN 1472-6920, Vol. 19, no 1, article id 28Article in journal (Refereed)
    Abstract [en]

    Background: Most continuing professional development (CPD) programmes do not include an educational training module. In our country, educational practice in the areas of CPD and continuing medical education relies traditionally on conventional lectures. This is in sharp contrast to the educational research that clearly demonstrates that educational programmes emphasising adult learning methods have greater potential to change physicians'clinical practice. To investigate whether lecture-oriented educators were prepared to change their educational practice towards principles of adult learning, we decided to combine learning for educators and participants in a paediatric CPD programme.The aim of the study was to investigate educators' reflections on their learning and educational practice after they have undergone an educational skills component integrated in the implementation of a CPD learning module for paediatricians and evaluate the results from the participants' perspective.

    Methods: The objectives of the educational skills component of the learning module were developed according to adult learning theories. The learning objectives for the CPD learning module were based on a pre-course needs assessment. Evaluations were made using questionnaires.

    Results: Seven of 10 participants in the educational skills component of the learning module and all the participants, 13 paediatricians and 14 nurses, who participated in the learning module, answered the questionnaires.The results of this pilot study show that educators whose main experience of teaching was based on lectures were strengthened in their practice; they defined their competence and were prepared to move towards adult learning principles. The participants in the learning module expressed a high degree of satisfaction.

    Conclusions: We conclude that it is feasible to combine learning for educators and participants in a paediatric CPD programme and that lecture-oriented educators are prepared to change their educational practice towards principles of adult learning.

  • 40. Holmgren, G
    et al.
    Jeppson, J O
    Samuelson, Gösta
    High-voltage electrophoresis in urinary amino acid screening1970In: Scandinavian Journal of Clinical and Laboratory Investigation, ISSN 0036-5513, E-ISSN 1502-7686, Vol. 26, no 4, p. 313-318Article in journal (Refereed)
  • 41. Holmgren, G
    et al.
    Samuelson, Gösta
    Hermansson, B
    The prevalence of diabetes mellitus: a study of children and their relatives in a northern Swedish county.1974In: Clinical Genetics, ISSN 0009-9163, E-ISSN 1399-0004, Vol. 5, no 5, p. 465-8Article in journal (Refereed)
  • 42.
    Hoppe, Michael
    et al.
    Department of Gastroenterology and Hepatology , Clinical Nutrition Unit , Sahlgrenska University Hospital , Gothenburg , Sweden.
    Hulthén, Lena
    University of Gothenburg , Department of Internal Medicine and Clinical Nutrition , Sahlgrenska Academy , Gothenburg , Sweden.
    Samuelson, Gösta
    University West, Department of Health Sciences, Section for nursing - graduate level. Uppsala University , Department of Clinical Sciences/Clinical Physiology , Uppsala , Sweden..
    Is cord blood hepcidin influenced by the low-grade acute-phase response occurring during delivery?: A small-scale longitudinal study2019In: The Journal of Maternal-Fetal & Neonatal Medicine, ISSN 1476-7058, E-ISSN 1476-4954, Vol. 32, no 13, p. 2166-2172Article in journal (Refereed)
    Abstract [en]

    AIM: To measure serum hepcidin in late pregnancy and in cord blood, and to analyze relationship between hepcidin, interleukin-6 and biomarkers of fetal iron status.

    MATERIALS AND METHODS: Data from 15 uncomplicated singleton pregnancies were analyzed longitudinally in trimester 3 (T3) and at birth.

    RESULTS: In T3, S-ferritin (median 14 µg/L) and transferrin (median 4.0 g/L) indicated low iron status, whereas the median soluble transferrin receptor (sTfR) was 4.0 mg/L, ie within the reference interval. Median T3 S-hepcidin was 7.8 ng/mL. Later on in cord blood, ferritin concentration (180 µg/L) were significantly higher, transferrin concentration (1.8 g/L) were significantly lower, and both sTfR (4.7 mg/L) and S-hepcidin concentrations (30.5 ng/mL) were significantly higher than maternal T3 concentrations. At the same time, cord blood interleukin-6 indicated an activated acute-phase reaction. In T3, after logarithmic transformation, there was a significant correlation between S-hepcidin and both S-ferritin (r = 0.691) and sTfR (r = -0.825). There was also a significant correlation between S-ferritin and both sTfR (r = -0.729) and transferrin (r = 0.549) in T3.

    CONCLUSIONS: Although S-ferritin, S-hepcidin, and sTfR were correlated during pregnancy, these relationships were not apparent in umbilical cord blood. Further, cord blood interleukin-6 indicated an activated acute-phase response, and sTfR, which is known to be unaffected by inflammation, indicated a low iron status in cord blood. Thus, instead of representing an enhanced iron status, the data appear to suggest that hepcidin and ferritin in cord blood may be influenced by the low-grade acute-phase response that occurs during delivery.

  • 43. Hovey, D.
    et al.
    Lindstedt, M.
    Zettergren, A.
    Jonsson, L.
    Johansson, A.
    Melke, J.
    Kerekes, Nora
    University West, Department of Health Sciences, Section for health promotion and care sciences.
    Anckarsäter, Henrik
    Centre for Ethics, Law and Mental Health (CELAM), University of Gothenburg, Gothenburg, Sweden, Forensic psychiatry, Institute of Neuroscience and Physiology, University of Gothenburg, Ragarden, House 1, SU – East Hospital, SE-416 85 Gothenburg, Sweden, Department of Forensic Psychiatry, Institute of Neuroscience and Physiology, University of Gothenburg.
    Lichtenstein, P.
    Lundström, S.
    Westberg, L.
    Antisocial behavior and polymorphisms in the oxytocin receptor gene: findings in two independent samples2016In: Molecular Psychiatry, ISSN 1359-4184, E-ISSN 1476-5578, Vol. 21, no July, p. 983-988Article in journal (Refereed)
    Abstract [en]

    The quantitative genetic contribution to antisocial behavior is well established, but few, if any, genetic variants are established as risk factors. Emerging evidence suggests that the neuropeptide oxytocin (OXT) may modulate interpersonal aggression. We here investigated whether single-nucleotide polymorphisms (SNPs) in the OXT receptor gene (OXTR) are associated with the expression of antisocial behavior. A discovery sample, including both sexes, was drawn from the Child and Adolescent Twin Study in Sweden (CATSS; n=2372), and a sample from the Twin Study of Child and Adolescent Development (TCHAD; n=1232) was used for replication. Eight SNPs in OXTR, selected on previous associations with social and antisocial behavior, were genotyped in the participants of CATSS. Significant polymorphisms were subsequently genotyped in TCHAD for replication. Participants completed self-assessment questionnaires—Life History of Aggression (LHA; available only in CATSS), and Self-Reported Delinquency (SRD; available in both samples)—designed to capture antisocial behavior as continuous traits. In the discovery sample, the rs7632287 AA genotype was associated with higher frequency of antisocial behavior in boys, and this was then replicated in the second sample. In particular, overt aggression (directly targeting another individual) was strongly associated with this genotype in boys (P=6.2 × 10−7 in the discovery sample). Meta-analysis of the results for antisocial behavior from both samples yielded P=2.5 × 10−5. Furthermore, an association between rs4564970 and LHA (P=0.00013) survived correction in the discovery sample, but there was no association with the SRD in the replication sample. We conclude that the rs7632287 and rs4564970 polymorphisms in OXTR may independently influence antisocial behavior in adolescent boys. Further replication of our results will be crucial to understanding how aberrant social behavior arises, and would support the OXT receptor as one potential target in the treatment of aggressive antisocial behavior.

  • 44.
    Hällgren Graneheim, Ulla
    et al.
    University West, Department of Health Sciences, Section for nursing - graduate level.
    Åström, Sture
    University West, Department of Health Sciences, Section for nursing - graduate level.
    Until Death Do Us Part: Adult Relatives' Experiences of Everyday Life Close to Persons with Mental Ill-Health2016In: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 37, no 8, p. 602-608Article in journal (Refereed)
    Abstract [en]

    This study illuminates adult relatives' experiences of everyday life close to a person with mental ill-health. The study was based on nine diaries and four narrative interviews with relatives of people with mental ill-health. Data were subjected to qualitative content analysis. The participants experienced everyday life as a constant fight, for better and for worse, with psychiatric care. They were fighting for the mentally ill person's right to care; sometimes they felt resigned, but yet they had a confidence in the care. Their mission in life was to sacrifice themselves, meaning that they felt indispensable and became lonely and socially isolated. They considered their mission to last until death set them apart because they were keeping a family secret, and had great worries about the future. We conclude that relatives experience a two-folded stigma in living close to a person with mental ill-health and in becoming lonely and socially isolated.

  • 45.
    Joelsson, Britta
    et al.
    University West, Department of Health Sciences, Section for nursing - graduate level.
    Johansson, Linnéa
    University West, Department of Health Sciences, Section for nursing - graduate level.
    Samverkan mellan primärvård och specialistpsykiatri: Två sidor av samma mynt2018Independent thesis Advanced level (professional degree), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Mental illness is increasing in society. Collaboration between primary care and specialist psychiatry is ongoing. The experience is that many people with mental illness refer to different activities and being left without treatment. Good interaction is important for persons seeking mental health care to get the right help.

    Aim: to describe the primary care nurse's experience of collaboration with specialist psychiatry.

    Method: a qualitative study based on semistructured interviews of primary care nurses. The material was analyzed by qualitative content analysis.

    Results: appeared in the following categories; Collaboration characterized by differences with the subcategories Good collaboration for emergency transfers and poor accessibility and inadequate feedback between the activities. Unclear division of responsibilities with the subcategories care different assessments of the same person, Inadequate knowledge on the division of responsibilities between the professions and gray zone patient - primary care or specialist psychiatry. Last category are resource shortage and low interest in mental health with the subcategories Inadequacy and Interest and respect for psychiatry.

    Conclusion: Working according to the division of responsibilities can be an obstacle to cooperation in such a way that the nurse expires blindly from the division of responsibilities without knowing what he/she refers to. Resource shortage, in turn, leads to experiences of insufficiency of nurses. Increased knowledge of each other's activities could lead to closer cooperation and understanding of each other. The person-centered care would benefit from the fact that both instances took care of more people than they actually consider to be part of their area of responsibility.

  • 46.
    Johansson, Birgitta
    et al.
    University of Gothenburg, The Sahlgrenska Academy, Department of Clinical Neuroscience and Rehabilitation, Institute of Neuroscience and Physiology, .
    Karlsson, Jan-Olof
    University West, School of Business, Economics and IT, Divison of Informatics.
    Rönnback, Lars
    University of Gothenburg, The Sahlgrenska Academy, Department of Clinical Neuroscience and Rehabilitation, Institute of Neuroscience and Physiology, .
    Use the app-Measure mental fatigue-Take control2014In: Brain Injury, ISSN 0269-9052, E-ISSN 1362-301X, Vol. 28, no 5-6, p. 574-574Article in journal (Refereed)
    Abstract [en]

    OBJECTIVESFatigue after an acquired brain injury is common, and is characterized by limited energy reserves to accomplish ordinary daily activities. A typical characteristic of mental fatigue is that the mental exhaustion becomes pronounced during sensory stimulation or when cognitive tasks are performed for extended periods without breaks. There is a drain of mental energy upon mental activity in situations in which there is an invasion of the senses with an overload of impressions, and in noisy and hectic environments. Another typical feature is a disproportionally long recovery time needed to restore the mental energy levels after being mentally exhausted. The mental fatigue is also dependent on the total activity level as well as the nature of the demands of daily activities. For many people, there is an increased risk of doing too much and becoming even more fatigued.METHODSWe have developed an application for Windows Phone for assessment of mental fatigue. The Mental Fatigue Scale is used. The MFS is a multidimensional questionnaire containing 15 questions. The questions included in the MFS are based on symptoms described following longitudinal studies of patients with TBI, brain tumours, infections or inflammations in the nervous system, vascular brain diseases, and other brain disorders. The app also includes information about mental fatigue.   RESULTSThis application can help people determine the level of mental fatigue and it can also serve to provide an overall picture of the severity of the condition, and detect changes in mental fatigue over time. The scores will be added up and the results will be presented in the form of a rating scale and a diagram. People can then see their results for one week ago, one month ago or a whole year ago. Today, the most important recommendations are to adapt to the energy available by doing one thing at a time, resting regularly and not overdoing things. However, this is challenging for most people and it may take a long time, even years, to adapt to a sustainable level. It may also be difficult for the person to learn by himself/herself and it can take several years of considerable struggle, frustration, despair and depression, to find the right balance between rest and activity. This app can help people to be aware of mental fatigue. If they connect the results to daily activities, the app may also help them to be more aware about what may alleviate and what may make mental fatigue worse. CONCLUSIONSWith regular assessment of mental fatigue, this app may give feedback and support in order to achieve an enduring balance between activities and rest.

    The application can be downloaded without cost: http://www.windowsphone.com/en-us/store/app/mental-fatigue/87d4cb88-c9b5-4ac9-9a92-b63a5d8f4d82

  • 47. Jonsell, Ragnar
    et al.
    Samuelson, Gösta
    Winberg, Jan
    Kompendium i intravenös vätsketerapi för barn1974Book (Other academic)
  • 48.
    Kerekes, Nora
    et al.
    University West, Department of Health Sciences, Section for health promotion and care sciences.
    Brändström, Sven
    Washington University School of Medicine, Clinical Associate of the Center for Well-Being, St. Louis, MO, United States.
    Nilsson, Thomas
    University of Gothenburg, Centre for Ethics, Law and Mental Health (CELAM), Institute of Neuroscience and Physiology, Gothenburg, Sweden.
    Imprisoning Yoga: Yoga Practice May Increase the Character Maturity of Male Prison Inmates.2019In: Frontiers in Psychiatry, ISSN 1664-0640, E-ISSN 1664-0640, Vol. 10, article id 406Article in journal (Refereed)
    Abstract [en]

    Background: A specific personality profile, characterized by low character maturity (low scores on the self-directedness and cooperativeness character dimensions) and high scores on the novelty seeking temperament dimension of the temperament and character inventory (TCI), has been associated with aggressive antisocial behavior in male prison inmates. It has also been shown that yoga practiced in Swedish correctional facilities has positive effects on the inmates' well-being and on risk factors associated with criminal recidivism (e.g., antisocial behavior). In this study, we aimed to investigate whether the positive effect of yoga practice on inmates' behaviors could be extended to include eventual changes in their personality profile. Methods: Male prison inmates (N = 111) in Sweden participated in a randomized controlled 10-week long yoga intervention trial. Participants were randomly assigned to either a yoga group (one class a week; n = 57) or a control group (free of choice weekly physical activity; n = 54). All the inmates completed the TCI questionnaire before and after the intervention period as part of an assessment battery. Results: After the 10-week-long intervention period male inmates scored significantly lower on the novelty seeking and the harm avoidance and significantly higher on the self-directedness dimensions of the TCI. There was a significant medium strong interaction effect between time and group belonging for the self-directedness dimension of character favoring the yoga group. Conclusion: A 10-week-long yoga practice intervention among male inmates in Swedish correctional facilities increased the inmates' character maturity, improving such abilities as their capability to take responsibility, feel more purposeful, and being more self-acceptant-features that previously were found to be associated with decreased aggressive antisocial behavior.

  • 49.
    Khorram-Manesh, Amir
    et al.
    Göteborgs universitet .
    Berlin, Johan
    University West, Department of Social and Behavioural Studies, Division of Social Pedagogy and Sociology. University West, Department of Social and Behavioural Studies, Division of Social Work and Social Pedagogy.
    Carlström, Eric
    Göteborgs universitet .
    Two Validated Ways of Improving the Ability of Decision-Making in Emergencies: Results from a Literature Review2016In: Bulletin of Emergency and Trauma, ISSN 2322-2522, Vol. 4, no 4, p. 186-196Article in journal (Refereed)
    Abstract [en]

    The aim of the current review wasto study the existing knowledge about decision-making and to identify and describe validated training tools.A comprehensive literature review was conducted by using the following keywords: decision-making, emergencies, disasters, crisis management, training, exercises, simulation, validated, real-time, command and control, communication, collaboration, and multi-disciplinary in combination or as an isolated word. Two validated training systems developed in Sweden, 3 level collaboration (3LC) and MacSim, were identified and studied in light of the literature review in order to identify how decision-making can be trained. The training models fulfilled six of the eight identified characteristics of training for decision-making.Based on the results, these training models contained methods suitable to train for decision-making.

  • 50.
    Ko, Jong Mi
    et al.
    The University of Texas, Department of Internal Medicine, Division of Cardiology, Southwestern Medical Center, Dallas, Texas.
    White, Kamila S
    University of Missouri, Adult Congenital Heart Disease Center, Washington University and Barnes Jewish Heart & Vascular Center, Saint Louis, Missouri.
    Kovacs, Adrienne H
    University of Toronto, Peter Munk Cardiac Centre, University Health Network, Toronto, Canada; Knight Cardiovascular Institute, Oregon Health & Science University, Portland, Oregon.
    Tecson, Kristen M
    Baylor Heart & Vascular Institute, Baylor Scott & White Research Institute, Dallas, Texas.
    Apers, Silke
    KU Leuven-University of Leuven, KU Leuven Department of Public Health and Primary Care, Leuven, Belgium.
    Luyckx, Koen
    KU Leuven-University of Leuven, School Psychology and Child and Adolescent Development, Leuven, Belgium.
    Thomet, Corina
    University of Bern, Center for Congenital Heart Disease, Inselspital-Bern University Hospital, Bern, Switzerland.
    Budts, Werner
    KU Leuven-University of Leuven, Division of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium; KU Leuven Department of Cardiovascular Sciences, Leuven, Belgium.
    Enomoto, Junko
    Department of Adult Congenital Heart Disease, Chiba Cardiovascular Center, Chiba, Japan.
    Sluman, Maayke A
    Department of Cardiology, Academic Medical Center, Amsterdam, The Netherlands.
    Wang, Jou-Kou
    National Taiwan University, School of Nursing, College of Medicine,Taipei, Taiwan.
    Jackson, Jamie L
    Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, Ohio.
    Khairy, Paul
    Université de Montréal, Adult Congenital Heart Center, Montreal Heart Institute, Montreal, Canada.
    Cook, Stephen C
    Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, Grand Rapids, Michigan.
    Subramanyan, Raghavan
    Frontier Lifeline Hospital, Dr. K. M. Cherian Heart Foundation, Chennai, India..
    Alday, Luis
    Division of Cardiology, Hospital de Niños, Córdoba, Argentina.
    Eriksen, Katrine
    Department of Cardiology, Oslo University Hospital-Rikshospitalet, Oslo, Norway.
    Dellborg, Mikael
    The Sahlgrenska Academy at University of Gothenburg, Adult Congenital Heart Unit, Sahlgrenska University Hospital/Östra, Gothenburg, Sweden; Institute of Medicine, Sweden; University of Gothenburg, Centre for Person-Centred Care (GPCC), Gothenburg, Sweden.
    Berghammer, Malin
    University West, Department of Health Sciences, Section for nursing - graduate level. University of Gothenburg, Centre for Person-Centred Care (GPCC), Gothenburg, Sweden.
    Johansson, Bengt
    Umeå University, Department of Public Health and Clinical Medicine, Umeå, Sweden.
    Mackie, Andrew S
    University of Alberta, Division of Cardiology, Stollery Children's Hospital, Edmonton, Canada.
    Menahem, Samuel
    Monash University, Monash Heart, Monash Medical Centre, Melbourne, Australia.
    Caruana, Maryanne
    Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass, Malta.
    Veldtman, Gruschen
    Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio.
    Soufi, Alexandra
    Department of Congenital Heart Disease, Louis Pradel Hospital, Hospices civils de Lyon, Lyon, France.
    Fernandes, Susan M
    Stanford University School of Medicine, Department of Pediatrics and Medicine, Divisions of Pediatric Cardiology and Cardiovascular Medicine, Palo Alto, California.
    Callus, Edward
    Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy.
    Kutty, Shelby
    University of Nebraska Medical Center/ Children's Hospital and Medical Center, Adult Congenital Heart Disease Center, Omaha, Nebraska, USA.
    Gandhi, Amarendra
    KU Leuven-University of Leuven, School Psychology and Child and Adolescent Development, Leuven, Belgium.
    Moons, Philip
    University of Gothenburg, KU Leuven Department of Public Health and Primary Care, KU Leuven-University of Leuven, Leuven, Belgium; Centre for Person-Centred Care (GPCC), Gothenburg, Sweden; University of Gothenburg, Institute of Health and Care Sciences, Gothenburg, Sweden..
    Cedars, Ari M
    The University of Texas Southwestern Medical Center, Department of Internal Medicine, Division of Cardiology, Dallas, Texas.
    Physical Activity-Related Drivers of Perceived Health Status in Adults With Congenital Heart Disease2018In: American Journal of Cardiology, ISSN 0002-9149, E-ISSN 1879-1913, Vol. 122, no 8, p. 1437-1442, article id S0002-9149(18)31423-1Article in journal (Refereed)
    Abstract [en]

    Data on the differential impact of physical activity on perceived health status (PHS) in a large adult congenital heart disease (ACHD) patient population are lacking. We conducted a cross-sectional assessment of 4,028 ACHD patients recruited from 24 ACHD-specialized centers in 15 countries across 5 continents to examine the association between physical activity and PHS in a large international cohort of ACHD patients. A linear analog scale of the EuroQol-5D 3 level version and the 12-item Short Form Health Survey-version 2 were used to assess self-reported health status and the Health-Behavior Scale-Congenital Heart Disease was used as a subjective measurement of physical activity type, participation, and level. Correlation analyses and Wilcoxon Rank Sum tests examined bivariate relations between sample characteristics and PHS scores. Then, multivariable models were constructed to understand the impact of physical activity on PHS. Only 30% of our sample achieved recommended physical activity levels. Physically active patients reported better PHS than sedentary patients; however, the amount of physical activity was not associated with PHS. Further statistical analyses demonstrated that specifically sport participation regardless of physical activity level was a predictor of PHS. In conclusion, the majority of ACHD patients across the world are physically inactive. Sport participation appears to be the primary physical activity-related driver of PHS. By promoting sport-related exercise ACHD specialists thus may improve PHS in ACHD patients.

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