Parents’ Experiences of Health and Needs When Supporting Their Adolescents With Cerebral PalsyDuring Transition to Adulthood
2015 (English)In: Physical & Occupational Therapy in Pediatrics, ISSN 0194-2638, E-ISSN 1541-3144Article in journal (Refereed) Epub ahead of print
ABSTRACT. Aims: Parents are the primary support providers for adolescents with disabilities,their health and wellbeing is therefore of great importance when planning foryouths’ transition into adulthood. The aim of this study was to gain a deeper understandingof how parents of adolescents with cerebral palsy (CP) experience their ownhealth and wellbeing and their needs for support during the adolescent’s transition toadulthood. Methods: An inductive qualitative approach was used, including interviewswith 15 mothers and fathers to 10 adolescents with CP aged 17–18 years. Latent contentanalysis was used for analyzing the data. Results: Themain theme “Friction blisters chafingand healing during transition” illustrates the parents’ experiences. Five sub-themesformed the parents’ experiences of concerns along with sorrow and stress in life, worriesabout what was to come, their need for support, strategies for coping, and experiencesof cohesion. Conclusions: Knowledge of parents’ experiences of their health, wellbeing,and needs provide valuable information for the planning of transition for adolescentswith disabilities. Help with parents’ sorrow, stress, and worry in daily life might be facilitatedand parental health safeguarded by a navigator who can both guide and givehands-on support.
Place, publisher, year, edition, pages
Adolescents, cerebral palsy, health andwellbeing, parents’ experiences, qualitative interviews, transition
Research subject Child and Youth studies; NURSING AND PUBLIC HEALTH SCIENCE, Public health science
IdentifiersURN: urn:nbn:se:hv:diva-9052DOI: 10.3109/01942638.2015.1101041OAI: oai:DiVA.org:hv-9052DiVA: diva2:901929