A phenomenological study of living with a partner affected with dementia
2016 (English)In: British Journal of Community Nursing, ISSN 1462-4753, E-ISSN 2052-2215, Vol. 21, no 1, 24-30 p.Article in journal (Refereed) PublishedText
Introduction: Caring for people affected by dementia is a collective effort that involves public health, primary care, and informal care. The third mainly comprises the efforts of spouses.Aim:This study aimed to describe spouses' experiences of living with a partner affected with dementia.
Method:The study has a descriptive phenomenological approach based on a reflective life-world perspective. Seven in-depth interviews were conducted with spouses of persons affected with dementia. The interviews were audiotaped and analysed using the procedures described by Giorgi (2009).
Findings: The essence of living with a partner affected by dementia formed a comprehensive theme: from togetherness to loneliness, which along with three descriptive categories—changes in their partner's behaviour, changes in everyday life, and a changed future—describes the phenomenon.
Conclusion:The theme 'From togetherness to loneliness' reflects the spouses' descriptions of their life-world. Daily life changed gradually in line with their partners' personality, and their role became that of a care provider rather than a spouse. Information and knowledge about dementia should be provided at an early stage. Health care has a major responsibility to meet their needs, thus ensuring that all parties are satisfied.
Place, publisher, year, edition, pages
2016. Vol. 21, no 1, 24-30 p.
dementia, spouse, loneliness, Sweden, family caregiver
Research subject NURSING AND PUBLIC HEALTH SCIENCE, Nursing science
IdentifiersURN: urn:nbn:se:hv:diva-8874DOI: 10.12968/bjcn.2016.21.1.24PubMedID: 26692133ScopusID: 2-s2.0-84957548997OAI: oai:DiVA.org:hv-8874DiVA: diva2:891827
Published Online: December 21, 20152016-01-072016-01-072016-02-26Bibliographically approved