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A phenomenological study of living with a partner affected with dementia
The Community of Tanum, Department for Home Care, Tanumshede.
The Community of Lysekil, Department for Home Care, Lysekil.
University West, Department of Nursing, Health and Culture, Division of Nursing.ORCID iD: 0000-0003-0305-8649
2016 (English)In: British Journal of Community Nursing, ISSN 1462-4753, E-ISSN 2052-2215, Vol. 21, no 1, 24-30 p.Article in journal (Refereed) PublishedText
Abstract [en]

Introduction: Caring for people affected by dementia is a collective effort that involves public health, primary care, and informal care. The third mainly comprises the efforts of spouses.Aim:This study aimed to describe spouses' experiences of living with a partner affected with dementia.

Method:The study has a descriptive phenomenological approach based on a reflective life-world perspective. Seven in-depth interviews were conducted with spouses of persons affected with dementia. The interviews were audiotaped and analysed using the procedures described by Giorgi (2009).

Findings: The essence of living with a partner affected by dementia formed a comprehensive theme: from togetherness to loneliness, which along with three descriptive categories—changes in their partner's behaviour, changes in everyday life, and a changed future—describes the phenomenon.

Conclusion:The theme 'From togetherness to loneliness' reflects the spouses' descriptions of their life-world. Daily life changed gradually in line with their partners' personality, and their role became that of a care provider rather than a spouse. Information and knowledge about dementia should be provided at an early stage. Health care has a major responsibility to meet their needs, thus ensuring that all parties are satisfied.

Place, publisher, year, edition, pages
2016. Vol. 21, no 1, 24-30 p.
Keyword [en]
dementia, spouse, loneliness, Sweden, family caregiver
National Category
Research subject
URN: urn:nbn:se:hv:diva-8874DOI: 10.12968/bjcn.2016.21.1.24PubMedID: 26692133ScopusID: 2-s2.0-84957548997OAI: diva2:891827

Published Online: December 21, 2015

Available from: 2016-01-07 Created: 2016-01-07 Last updated: 2016-02-26Bibliographically approved

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