Background: Amyotrophic lateral sclerosis (ALS) is a rapidly degenerating disease that changes the affected person´s life, including family and relatives. ALS creates new experiences and feelings for the person suffering from the disease but it also effects their family. Therefore it is important to identify these experiences that the persons with amyotrophic lateral sclerosis and their family will experience. As a nurse you have to understand the experiences that the affected person and their family will go through.

Aim: The aim was to illuminate how people with ALS and their relatives experience their daily life from their own perspective.

Method: This study is based on a qualitative literature-based review of scientific articles.

Results: The result is presented in five main themes; Loss of abilities, Confidence in the dark, Existential thoughts and death, The interdependence and The experience of care. They sum up the experiences that ALS causes.

Conclusion: Persons who are suffering from ALS have to change their daily life even if he or she doesn't want to. The disease effects the family who also have to change their daily life. To cope with the situation both the person with ALS and their family used strategies, such as a constructive attitude to ease their whole life.