Personer med fibromyalgis erfarenheter av möten med vårdpersonal: En kamp för bekräftelse
Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesisAlternative title
Persons with fibromyalgia's experiences of encounters with health care professionals : A struggle for confirmation (English)
Background: Fibromyalgia is a disease characterized by chronic pain, dizziness and sleep disturbances. It is an invisible disease with visible symptoms and no known cause nor cure. While the knowledge and acceptance of the disease has increased these patients to some degree still have to face skepticism, distrust and lack of understanding from health care professionals, family, and society. This forces the patient to spend precious energy altering their actions and appearances to convince others of the legitimacy of their symptoms. The process of getting a diagnosis can be long and strenuous which for many patients can lead to the development of depression and anxiety.
Aim: The purpose of this study was to describe persons with fibromyalgia's experiences of encounters with health care professionals. Method: A literature-based study based on eleven qualitative studies.
Results: Three main themes were identified; A struggle for legitimacy, the importance of understanding and frustrating meetings. The subthemes describe I am not being believed, The symptoms are invisible, Diagnosis - the false relief, Lack of support from healthcare professionals, The good meeting, Lacking commitment, Knowledge deficiency and Lack of effective treatment. Conclusion: Patients with fibromyalgia are to some extent met with skepticism, poor knowledge about the disease and lack of commitment, which cause unnecessary suffering for these patients. A good encounter involving emotional support, commitment from health professionals and a functioning dialog is seen as important to the patients and can counteract unnecessary suffering.
Place, publisher, year, edition, pages
2015. , 21 p.
Attitude, communication, fibromyalgia, legitimacy, patient experience
IdentifiersURN: urn:nbn:se:hv:diva-8763Local ID: EXO502OAI: oai:DiVA.org:hv-8763DiVA: diva2:877442
Subject / course