Anhörigas upplevelser av palliativ vård i hemmet: En litteraturbaserad studie med grund i kvalitativ forskning
Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesisAlternative title
Relatives’ experiences of palliative care at home (English)
Background: The demand to receive palliative care at home is increasing. Relatives are often involved in palliative home care, and are forced to take on a large responsibility. The nurse carries the responsibility for the education of the relatives in caring for the patient, and it’s an advantage if the nurse possesses knowledge of how relatives experience the situation when palliative care takes place at home.
Aim: The aim of this study was to illuminate relatives’ experiences of palliative care at home.
Method: A literature-based study based on ten qualitative studies. Results: It was found that relatives need more support and help when caring takes place in the home. The relatives experience both positive and negative feelings but they’re mostly characterized by negative strain in their daily lives. A feeling that many relatives experience is that they are in never ending duty, and that they are neither seen or heard by the nurses. The availability of nurses created a sense of relief for the relatives and they felt as if they were participating when they received relieving support in their daily lives.
Conclusion: As a nurse these are difficult situations to be confronted with since these are people in a large life crisis that we meet. In this study the authors have found that it’s important for relatives that the nurse is competent in how to meet the relatives, to show respect and trust, and to let the relatives take their place and get the participating they wish to have.
Place, publisher, year, edition, pages
2015. , 17 p.
Nurses availability, Palliative home care, Participation, Relatives experiences, Strain
IdentifiersURN: urn:nbn:se:hv:diva-8548Local ID: EXO502OAI: oai:DiVA.org:hv-8548DiVA: diva2:860236
Subject / course