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Närståendes upplevelser av att vårda någon med Huntingtons sjukdom: En litteraturbaserad studie
University West, Department of Health Sciences, Specialist Nursing programme.
University West, Department of Health Sciences, Specialist Nursing programme.
2015 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Relatives experiences of caring for someone with Huntington's disease (English)
Abstract [en]

Background: Between six to twelve people per 100,000 have Huntington's disease (HD). There are an estimated 1 000 people with the disease in Sweden. Relatives are those who are closest to the person with HD. As the disease progresses, the relatives often become carers for the person with HD. As a result, their own life becomes affected and life situation changes. The relatives have important information about the person with HD, which can be useful for the nurse. It is therefore important as a nurse to know what the relatives go through when they take care of a person with HD. Aim: The aim of this literature-based study is to highlight the relative's experiences of taking care of a person with HD.Method: A literature-based study was based on ten articles with a qualitative approach.Results: The analysis resulted in two themes; "loss of life as it once was" and "relatives experiences of lack of control". The nurse's should be aware that it is of importance to be able to give support, both mentally and physically to patients and their relatives. It is of importance that the nurse shows the relatives that they have an important part in the care of the person with HD, even when they are hospitalized.Conclusion: Our results indicate that the relatives often have extensive knowledge in the care of the person with HD. It also shows that there is a psychological strain to take care of a person with HD and for the most part it affects them negatively. Nurse should meet and talk to the relatives so that they feel involved in the care of the person with HD.

Place, publisher, year, edition, pages
2015. , 32 p.
Keyword [en]
experiences, needs, relatives, Huntington’s disease, relative’s perspective.
National Category
Nursing
Identifiers
URN: urn:nbn:se:hv:diva-8268Local ID: EXO502OAI: oai:DiVA.org:hv-8268DiVA: diva2:857322
Subject / course
Nursing science
Educational program
Sjuksköterskeprogrammet
Supervisors
Examiners
Available from: 2015-09-30 Created: 2015-09-28 Last updated: 2015-09-30Bibliographically approved

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf