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Upplevelsen av socialt stöd för stödgruppsanslutna kvinnor diagnostiserade med endometrios: stödjande aktörer och deras handlingar
University West, Department of Social and Behavioural Studies, Division of Psychology and Organisation Studies.
University West, Department of Social and Behavioural Studies, Division of Psychology and Organisation Studies.
2015 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
The experience of social support for the support group affiliated women diagnosed with endometriosis : The supporting agents and their actions (English)
Abstract [sv]

Endometrios är en kronisk gynekologisk sjukdom som drabbar var 10:e fertil kvinna. Det mest centrala symptomet är smärta, andra symtom är infertilitet och extrem trötthet. Endometrios påverkar alla delar i en kvinnas liv, exempelvis sociala relationer. Människor som lever med kronisk smärta utgör en utsatt grupp i samhället. Dessa utsatta människor kan tvingas in i oönskad ensamhet som de själva inte kan ta sig ur men socialt stöd kan vara en förebyggande faktor som främjar livskvalitén. Syftet med studien var att undersöka hur stödgruppsanslutna kvinnor diagnostiserade med endometrios upplevde sitt sociala stöd. En kvalitativ design valdes med internetintervjuer som metod där informanterna svarade i brevform via e-post. 13 kvinnor diagnostiserade med endometrios ingick i studien och var mellan 19 och 46 år. Vid analysen av det insamlade materialet användes en induktiv tematisk analys. De stödjande aktörer som framkommit i studien var partners, familj, vänner, arbetskamrater, vårdkontakter och personer som befunnit sig i liknande situation. Exempel på stödjande handlingar som dessa upplevts ge var

emotionellt, kognitivt, konkret och praktiskt stöd. Resultatet visade att det största stödet kom från familj och partners men det viktigaste stödet kom från sjukvården då våra informanter har en kronisk sjukdom som oftast medför svår smärta och kräver vård och medicinering, utan sjukvårdens stöd skulle de inte kunna hantera sin sjukdom. Dessa resultat var i linje med tidigare forskning om kronisk smärta från bäckenområdet och socialt stöd.

Abstract [en]

Endometriosis is a chronic gynecological disease that affects every 10th child-bearing woman. The main symptom is pain, other symptoms are infertility and extreme fatigue. Living with endometriosis affects all parts of a woman's life, such as social relationships. People living with chronic pain are a vulnerable group in society. These vulnerable people can be forced into unwanted loneliness that they themselves cannot escape from but social support can be a preventive factor that promotes human quality of life. The aim of this study was to examine what social support means for women diagnosed with endometriosis. A qualitative design was chosen with Internet interviews as a method in which the informants were asked to answer in letterform via e-mail. 13 women diagnosed with endometriosis were included in the study and they were between 19 and 46 years. In the analysis of the collected material an inductive thematic analysis was used. The supporting actors identified in the study were partners, family, friends, colleagues, health care contacts and other people who have been in similar situation. Examples of supporting actions which these provide were experienced as emotional, cognitive, concrete & practical support. The results showed that the major support comes from family and partners, but the main support comes from health care when informants have a chronic illness which often involves severe pain that requires treatment and medication, and without support from healthcare they would not be able to manage their disease. These results are consistent with previous research on chronic pelvic pain and social support.

Place, publisher, year, edition, pages
2015. , 22 p.
Keyword [en]
endometriosis, social support, chronic pain
Keyword [sv]
endometrios, socialt stöd, kronisk smärta
National Category
Psychology
Identifiers
URN: urn:nbn:se:hv:diva-7380Local ID: PSK500OAI: oai:DiVA.org:hv-7380DiVA: diva2:789159
Subject / course
Psychology
Educational program
Psykologi
Supervisors
Examiners
Available from: 2015-02-23 Created: 2015-02-18 Last updated: 2015-02-23Bibliographically approved

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