Background:

Huntington's disease (HD) is a neurodegenerative disorder with a hereditary of 50 percent. In Sweden the prevalence of HD is 4,7 – 5,6 per 100 000 population. The onset of the disease starts with cognitive impairment and later on it effects the motor skills. Today there is no cure.

Aim:

The aim of this study was to describe the experience of being at risk for Huntington's disease.

Method:

The study was designed as a literature review with the aim to compare similarities and differences.

Results:

The results showed that a person living at risk for HD is affected in life before the time when the onset starts. Living at risk means that a person have to decide to take the genetic test or not. It's a decision that is hard to make but can be helpful in future questions as making a family.