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Illness perceptions in relation to experiences of contemporary cancer care settings among colorectal cancer survivors and their partners
University West, Department of Nursing, Health and Culture.ORCID iD: 0000-0002-2037-2114
Malmo University, Department of Care Science, Faculty of Health and Society..
University West, Department of Nursing, Health and Culture, Division of Nursing.ORCID iD: 0000-0002-7182-511X
University West, Department of Nursing, Health and Culture, Division of Nursing. University West, Department of Nursing, Health and Culture, Division of Advanced Nursing.ORCID iD: 0000-0001-7804-0342
2014 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 9, 23581Article in journal (Refereed) Published
Abstract [en]

Illness is constituted by subjective experiences of symptoms and their psychosocial consequences. Illness perceptions concern people’s lay beliefs about understandings and interpretation of a disease and expectations as to disease outcome. Our knowledge about illness perceptions and coping in relation to the cancer care context among persons with colorectal cancer (CRC) and their partners is incomplete. The aim of the present study was to explore illness perceptions in relation to contemporary cancer care settings among CRC survivors and partners. The present research focused on illness rather than disease, implying that personal experiences are central to the methodology. The grounded theory method used is that presented by Kathy Charmaz. The present results explore illness perceptions in the early recovery phase after being diagnosed and treated for cancer in a contemporary cancer care setting. The core category outlook on the cancer diagnosis when quickly informed, treated, and discharged illustrates the illness perceptions of survivors and partners as well as the environment in which they were found. The cancer care environment is presented in the conceptual category experiencing contemporary cancer care settings. Receiving treatment quickly and without waiting was a positive experience for both partners and survivors; however partners experienced the information as massive and as causing concern. The period after discharge was being marked by uncertainty and loneliness, and partners tended to experience non-continuity in care as more problematic than the survivor did. The results showed different illness perceptions and a mismatch between illness perceptions among survivors and partners, presented in the conceptual category outlook on the cancer diagnosis. One illness perception, here presented among partners, focused on seeing the cancer diagnosis as a permanent life-changing event. The other illness perception, here presented among survivors, concentrated on leaving the cancer diagnosis behind and moving forward. The importance of illness perceptions among survivors, and the differences in illness perceptions between survivors and partners, should be recognized by healthcare professionals to achieve the goals of person-centered contemporary cancer care.

Place, publisher, year, edition, pages
Co-Action Publishing , 2014. Vol. 9, 23581
Keyword [en]
Cancer care, Colorectal cancer, Grounded theory, Illness perception, Nursing, Partners
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:hv:diva-6658DOI: 10.3402/qhw.v9.23581ISI: 000339265300001Scopus ID: 2-s2.0-84904766673OAI: oai:DiVA.org:hv-6658DiVA: diva2:746866
Note

Artikelnummer 23581

Available from: 2014-09-15 Created: 2014-09-15 Last updated: 2015-12-10Bibliographically approved

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Johansson, Ann-CarolineBerndtsson, InaBrink, Eva
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