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Siblings of children with cancer - Their experiences of participating in a person-centered support intervention combining education, learning and reflection: Pre- and post-intervention interviews.
University of Gothenburg, Institute of Health and Care Sciences, Sahlgrenska Academy.
University West, Department of Nursing, Health and Culture, Division of Nursing.ORCID iD: 0000-0001-5705-5705
2014 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 18, no 3, p. 254-260Article in journal (Refereed) Published
Abstract [en]

PURPOSE: To evaluate a person-centered intervention, directed to siblings with a brother or sister newly diagnosed with cancer that combines education, learning and reflection about cancer.

METHOD: Qualitative methods with pre- and post-intervention semi-structured interviews were conducted. Fourteen siblings aged 9-22 years participated. A qualitative content analysis was carried out.

RESULTS: The result comprises of five themes: 'grasping for knowledge about cancer, 'thinking for hours and having nightmares', 'experiencing physical pain', 'being emotional in several ways', 'waiting for a normal, good life despite the uncertain future". Pre-intervention; a low level of knowledge of cancer treatments and its side effects was revealed; siblings slept poorly, lay awake thinking and had nightmares about cancer; they felt pain in different parts of their body; they felt emotional and angry and were anxious as cancer is life-threatening; in the future the sick child will finished treatment and recovered. Post-intervention; siblings described having specific knowledge, felt more informed, and that it was easier to understand the sick child's situation; they slept better, but still had a lot on their minds regarding the sick child; most siblings said they no longer experienced pain, felt better and were happier but could still get sad; in the future the sick child would be healthy, not exactly as before, but almost.

CONCLUSION: Person-centered intervention helps siblings to be more knowledgeable about the sick child's cancer, leading to a more realistic view about treatments and consequences. Further studies of person-centered interventions for siblings are important.

Place, publisher, year, edition, pages
2014. Vol. 18, no 3, p. 254-260
Keyword [en]
Cancer, Child, Content analysis, Education, Intervention, Interviews, Nursing, Person centered care, Qualitative, Sibling
National Category
Nursing
Research subject
NURSING AND PUBLIC HEALTH SCIENCE, Nursing science
Identifiers
URN: urn:nbn:se:hv:diva-5927DOI: 10.1016/j.ejon.2014.01.002ISI: 000309754300114PubMedID: 24508084Scopus ID: 2-s2.0-84899695370OAI: oai:DiVA.org:hv-5927DiVA, id: diva2:697151
Note

Available online 6 February 2014

Available from: 2014-02-17 Created: 2014-02-17 Last updated: 2017-12-06Bibliographically approved

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Ahlström, Britt Hedman

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