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Siblings of children with cancer: their experiences before and after participating in a support intervention combining education, learning and reflection
Queen Silvia Childrens Hosp, Ctr Childrens Rights, Gothenburg.
University West, Department of Nursing, Health and Culture, Division of Nursing.ORCID iD: 0000-0001-5705-5705
2012 (English)In: Pediatric Blood & CancerSpecial.  Issue: 44th Congress of the International Society of Paediatric Oncology (SIOP) 2012, London, United Kingdom, 5th–8th October, 2012, 2012, Vol. 59, no 6, p. 965-1152Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Purpose: The objective was to evaluate an intervention that combines education, learning and reflection about cancer delivered via internet and email, regarding the provision of support and prevention of illness in siblings with a brother or sister newly diagnosed with cancer. Methods: A descriptive qualitative approach was used. The intervention consisted of lectures and e-mail conversations with siblings supplemented by a personal diary, designed to encourage reflections about open questions concerning thoughts and experiences of being the sibling of a child with cancer. Fourteen siblings with a brother or sister newly diagnosed with cancer participated and were interviewed before and after the intervention. A qualitative content analysis was used for the analyses. Results: The analysis revealed the theme ‘to live as normal a life as possible’ comprising five subthemes; ‘sleeping problems’, ‘physical pain’, ‘emotional affections’ and ‘changes in the future for the whole family’. Life was affected by the child with cancer. Before the intervention the siblings mostly described how new situation led, in everyday life, to suffering, fear, feelings of insecurity and doubts about the future. After the intervention the siblings were more informed about and prepared for the cancer treatments and their sideeffects and the threat of death so close to them.Conclusion: The siblings reflected on and dealt with difficult existential questions. The intervention helped the siblings to better understand cancer, their own reactions and their family situation. This should encourage health-care professionals to acknowledge siblings and to support them when their sister or brother has been diagnosed with cancer.

Place, publisher, year, edition, pages
2012. Vol. 59, no 6, p. 965-1152
National Category
Nursing
Research subject
NURSING AND PUBLIC HEALTH SCIENCE, Nursing science
Identifiers
URN: urn:nbn:se:hv:diva-4840DOI: 10.1002/pbc.24295OAI: oai:DiVA.org:hv-4840DiVA, id: diva2:573504
Conference
44th Congress of the International Society of Paediatric Oncology (SIOP) 2012, London, United Kingdom, 5th–8th October, 2012 SIOP abstracts
Available from: 2012-11-30 Created: 2012-11-30 Last updated: 2014-05-08Bibliographically approved

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Ahlström, Britt Hedman

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