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Self-care agency and perceived health among people using advanced medical technology at home
University West, Department of Nursing, Health and Culture, Division of Nursing.
University West, Department of Nursing, Health and Culture, Division of Advanced Nursing.ORCID iD: 0000-0001-8017-0998
Linköping University, Department of Medicine and Health, Faculty of Health Sciences.
University West, Department of Nursing, Health and Culture, Division of Advanced Nursing.ORCID iD: 0000-0003-3158-9981
2012 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 68, no 4, p. 806-815Article in journal (Refereed) Published
Abstract [en]

Aim.

This article reports a study of self-care agency and perceived health in a group

of people using advanced medical technology at home.

 

Background.

An increasing number of people are using medical technology for selfcare.

Few studies describe daily life in this context at an overriding level, irrespective

of the specific sort of technology. A connection between self-care, perceived health

and sense of coherence has previously been implied.

 

Methods.

A descriptive, comparative, cross-sectional quantitative design was used.

Data were collected from a questionnaire during the winter of 2009/2010. The

questionnaire addressed perceived health and daily life with medical technology.

Swedish versions of the Appraisal of Self-care Agency scale and the 13-item version

of Antonovsky’s sense of coherence scale were included.

 

Results.

The questionnaire was answered by 180 adults performing self-care at

home involving long-term oxygen, a ventilator, or peritoneal- or haemo-dialysis.

Health-related and technology-related variables in daily life were mostly highly

satisfactory. Perceived health was rated significantly lower among participants using

long-term oxygen. Sufficient sense of coherence, knowledge of how to use technology,

close contact with others and not feeling helpless contributed positively to

self-care agency. Positive contributing factors for perceived health were being satisfied

with life, having an active life and not feeling helpless, whereas age was a

negative factor.

 

Conclusion.

Daily life is manageable for people in this context. Long-term oxygen

treatment and advanced age can be regarded as risk factors for perceiving ill health.

Place, publisher, year, edition, pages
2012. Vol. 68, no 4, p. 806-815
Keywords [en]
appraisal of self-care agency scale, high-tech care, home ventilator
National Category
Nursing
Research subject
NURSING AND PUBLIC HEALTH SCIENCE, Nursing science
Identifiers
URN: urn:nbn:se:hv:diva-3133DOI: 10.1111/j.1365-2648.2011.05781.xISI: 000301426000009OAI: oai:DiVA.org:hv-3133DiVA, id: diva2:392565
Note

Article first published online: 7 JUL 2011

Available from: 2011-01-27 Created: 2011-01-27 Last updated: 2019-04-29Bibliographically approved
In thesis
1. From novice towards self-care expert : studies of self-care among persons using advanced medical technology at home 
Open this publication in new window or tab >>From novice towards self-care expert : studies of self-care among persons using advanced medical technology at home 
2010 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The use of advanced medical technology at home has increased in most industrialized countries. The overall aim of this thesis was to develop knowledge of self-care and transition and issues that influence daily life and health among persons using advanced medical technology at home.

Three qualitative studies were performed to describe the structure of self-care (I) and elucidate meanings of health-illness transition experiences among persons using long-term oxygen, or a ventila-tor, or performing blood or peritoneal dialysis (II), and to gain a deeper understanding of the meaning of living with an adult family member in this context (III). Ten interviews with adult patients (I-II) and ten with adult next of kin (III) in this context were performed and analysed with descriptive phenome-nological (I), phenomenological hermeneutical (II) and hermeneutical (III) methods. A quantitative, descriptive, comparative, cross-sectional design was used to describe and find factors that influence self-care agency and perceived health in a larger group of persons (180 patients) using the enumerated types of advanced medical technology at home (IV).

In the results, (I) self-care among persons using long-term oxygen, a ventilator, or equipment for blood or peritoneal dialysis at home was described at a generic level, independent of the specific type of technology used. The general description of self-care in this context involved prerequisites for, activities for and consequences of self-care; (II) the health-illness transition among adult persons in this context was interpreted as contentment at being part of the active and conscious process towards transcending into a new state of living, in which the individual and the technology were in tune. The successful and healthy transition experience was characterized by human growth and becoming; (III) living with a family member who is using advanced medical technology at home was interpreted as meaning rhythmical patterns of being closely connected to but also separated from him or her, and of sorrow versus reconciliation. Dependence on others was reflected in a need for support from the healthcare professionals and significant others; (IV) health-related and technology-related variables in daily life were rated as satisfactory to quite a high extent, but participants using long-term oxygen perceived their health as significantly lower compared to the other technology groups. Further, a significant difference in sense of coherence was found between users of long-term oxygen and peri-toneal dialysis. Factors that contributed to self-care agency and sense of coherence were found.

In conclusion, self-care in a high-tech home context means more than simply mastering the technology. With the goal of maintaining an active, social life, the health-illness transition involves a learning process of accepting and integrating the technology into daily life. With knowledge and support, patients and next of kin are able to assume substantial responsibility for self-care/dependent-care. Daily life seems to be manageable for patients using this kind of technology at home.  

Place, publisher, year, edition, pages
Linköping: Department of Medical and Health Sciences, Linköping University, 2010. p. 54
Series
Linköping University medical dissertations, ISSN 0345-0082 ; 1207
Keywords
Home care services, Self care, Technology, medical, Dependent-care, Health, Hermeneutics, Home dialysis, Home ventilator, Long-term oxygen, Next of kin, Phenomenology, Transition, Egenvård, Medicinsk teknik
National Category
Nursing
Research subject
NURSING AND PUBLIC HEALTH SCIENCE, Nursing science
Identifiers
urn:nbn:se:hv:diva-3174 (URN)978-91-7393-313-1 (ISBN)
Public defence
2010-12-15, Berzeliussalen, Campus US, Linköpings universitet, Linköping, 13:00 (Swedish)
Opponent
Supervisors
Available from: 2011-02-24 Created: 2011-02-02 Last updated: 2011-02-24Bibliographically approved

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Flensner, GullviSöderhamn, Olle

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