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Fatigue in individuals with multiple sclerosis: lived experiences and perceived impact in daily life
University West, Department of Nursing, Health and Culture, Division of Advanced Nursing.ORCID iD: 0000-0001-8017-0998
2005 (English)Doctoral thesis, comprehensive summary (Other academic)
Place, publisher, year, edition, pages
Linköping: Linköpings Universitet , 2005. , 63 p.
Keyword [en]
Activities of daily living, multiple sclerosis, fatigue
National Category
Nursing
Research subject
NURSING AND PUBLIC HEALTH SCIENCE, Nursing science
Identifiers
URN: urn:nbn:se:hv:diva-2964ISBN: 91-85299-31-6 (print)OAI: oai:DiVA.org:hv-2964DiVA: diva2:381760
Available from: 2011-03-03 Created: 2010-12-28 Last updated: 2014-05-08Bibliographically approved
List of papers
1. The cooling-suit: case studies of its influence on fatigue among eight individuals with multiple sclerosis.
Open this publication in new window or tab >>The cooling-suit: case studies of its influence on fatigue among eight individuals with multiple sclerosis.
2002 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, Vol. 37, no 6, 541-50 p.Article in journal (Refereed) Published
Abstract [en]

AIM OF THE STUDY: To study if the use of a cooling-suit by individuals with multiple sclerosis (MS) influenced their experience of fatigue and consequent restrictions in daily life. BACKGROUND: The majority of MS patients consider fatigue as one of their most disabling symptoms and as having a significant impact on their daily lives. Fatigue often increases in a warm environment. A cooling-suit has been reported as a practical method of cooling, but the effect on fatigue has not yet been studied. RESEARCH METHODS: Eight individuals used a cooling-suit in their own homes during a test-period. In a single case-control design, their experience of fatigue was studied before and after. Quantitative and qualitative methods were used: self-assessments using the Fatigue Impact Scale (FIS), open-ended interviews and semi-structured diaries. RESULTS: All study participants reported a reduction in fatigue during the test period. On the FIS, they scored reductions in the physical, cognitive and psycho-social dimensions of daily life. They experienced fatigue less often and for shorter periods. In their diaries and interviews they described decreased muscular strain, less sense of fatigue in relation to intake of food and positive effects on cognitive, social or affective problems related to fatigue. DISCUSSION: The cooling-suit is a practical method for cooling. It gives freedom and flexibility and can be used regardless of setting. Nurses who meet heat-sensitive individuals with MS have the opportunity to give information on cooling methods, including how to use a cooling-suit. In this pilot study we found that individuals with MS who suffered from fatigue reported a number of improvements in quality of daily life. CONCLUSIONS: The result indicates that use of a cooling-suit by individuals with MS may decrease their sense of fatigue. In this sample positive outcomes on daily life situations were reported. Further studies are needed to support these results.

Keyword
cooling, daily life, fatigue, multiple sclerosis, nursing, self-assessment, self-care
National Category
Nursing
Research subject
Nursing and public health science , Nursing science
Identifiers
urn:nbn:se:hv:diva-1771 (URN)10.1046/j.1365-2648.2002.02129.x (DOI)11879418 (PubMedID)
Available from: 2009-10-06 Created: 2009-10-02 Last updated: 2014-05-08Bibliographically approved
2. Lived experience of MS-related fatigue: a phenomenological interview study
Open this publication in new window or tab >>Lived experience of MS-related fatigue: a phenomenological interview study
2003 (English)In: International Journal of Nursing Studies, ISSN 0020-7489, E-ISSN 1873-491X, Vol. 40, no 7, 707-17 p.Article in journal (Refereed) Published
Abstract [en]

Fatigue is a major problem among individuals diagnosed with multiple sclerosis (MS), but its meaning in daily living is unclear. The aim was to describe MS-related fatigue as lived by a group of individuals diagnosed with MS. Interviews with nine individuals were analysed from a phenomenological perspective. MAIN FINDINGS: MS-related fatigue is living with a time-consuming and all absorbing phenomenon, involving the body and the whole human being. Fatigue is commonly non-constructively perceived and expressed in terms of energy loss, emotional afflictions, dependency and restrictions of life in general, however, it is also constructively perceived and involves a desire to accept life and strive for a better situation. CONCLUSION: MS-related fatigue is a comprehensive phenomenon and its relationship with self-care requires further investigation.

Place, publisher, year, edition, pages
London: Pergamon, 2003
Keyword
EPP-method; Lived body; Lived time; Self-care; Suffering
National Category
Nursing
Research subject
NURSING AND PUBLIC HEALTH SCIENCE, Nursing science
Identifiers
urn:nbn:se:hv:diva-1759 (URN)10.1016/S0020-7489(03)00010-5 (DOI)12965162 (PubMedID)
Available from: 2009-10-06 Created: 2009-10-02 Last updated: 2014-05-08Bibliographically approved
3. Reliability and validity of the Swedish version of the Fatigue Impact Scale (FIS).
Open this publication in new window or tab >>Reliability and validity of the Swedish version of the Fatigue Impact Scale (FIS).
2005 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 12, no 4, 170-180 p.Article in journal (Refereed) Published
Abstract [en]

Fatigue is a complex phenomenon that, for those not affected, is hard to understand. To achieve better assessments, caregivers need reliable and valid tools. The aim of this study was to investigate the reliability and validity of the Swedish version of the Fatigue Impact Scale (FIS) among working-aged individuals diagnosed with multiple sclerosis (MS), as well as in a comparative group randomly selected from the general population in the same geographical area. Both individuals with MS ( n =161) and individuals recruited from the general population ( n =194) participated in the study. A questionnaire was used for the data collection. The data were analysed using non-parametric statistical methods. Reliability of FIS was addressed by item-to-item and item-to-total correlations. Concurrent validity was tested for by analysing correlations between the FIS and general questions, and construct validity by investigation of differences in the FIS scores between known groups. The FIS was found to be homogenous, with item-to-total correlation coefficients of 0.42 ≤ r s ≤0.86 ( p [ABSTRACT FROM AUTHOR]

Place, publisher, year, edition, pages
Scandinavian University Press, 2005
Keyword
assessment tool, caring, daily life, energy
National Category
Nursing
Research subject
NURSING AND PUBLIC HEALTH SCIENCE, Nursing science
Identifiers
urn:nbn:se:hv:diva-2961 (URN)10.1080/11038120510031806 (DOI)
Available from: 2010-12-28 Created: 2010-12-28 Last updated: 2014-05-08Bibliographically approved
4. Fatigue in relation to perceived health: People with multiple sclerosis compared with people in the general population
Open this publication in new window or tab >>Fatigue in relation to perceived health: People with multiple sclerosis compared with people in the general population
2008 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 22, no 3, 391-400 p.Article in journal (Refereed) Published
Place, publisher, year, edition, pages
Oxford: Blackwell, 2008
Keyword
action-theory of health, cross-sectional, fatigue impact scale, nonparametric statistics, nursing car
National Category
Nursing
Research subject
NURSING AND PUBLIC HEALTH SCIENCE, Nursing science
Identifiers
urn:nbn:se:hv:diva-1524 (URN)10.1111/j.1471-6712.2007.00542.x (DOI)
Available from: 2009-05-13 Created: 2009-05-13 Last updated: 2014-05-08Bibliographically approved

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