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Parents' descriptions and experiences of young children recently diagnosed with intellectual disability
University West, Department of Social and Behavioural Studies, Division of Psychology and Organisation Studies.ORCID iD: 0000-0002-9982-8304
2010 (English)In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214, Vol. 36, no 1, 93-100 p.Article in journal (Refereed) Published
Abstract [en]

Aim: The aim of the present study was to explore the variation of parents' descriptions and experiences of their child that was recently identified to have an intellectual disability (ID). Methods: The study applied interpretative phenomenological analysis and analysis of narrative style looking at content and form of parental narratives. Data was collected from nine fathers and eight mothers through semi-structured interviews within 6 months following diagnosis. Results: Analysis revealed three factors indicating the parents' level of processing: (1) emotional expressions regarding the child - varying between limited (distanced or idealized) and balanced/affectionate; (2) experience of the disability - varying between preoccupation and acceptance; and (3) time orientation - varying in terms of flexibility and temporal focus. Conclusions: Although parents of children with ID describe negative emotions in relation to the child and the disability, most of these parents also describe positive emotions that seemed to balance the negative experiences. © 2009 The Authors. Journal compilation © 2009 Blackwell Publishing Ltd.

Place, publisher, year, edition, pages
2010. Vol. 36, no 1, 93-100 p.
Keyword [en]
Child disability; Intellectual disability; Parent; Parent perceptions; Qualitative
National Category
Psychology
Research subject
SOCIAL SCIENCE, Psychology
Identifiers
URN: urn:nbn:se:hv:diva-2582DOI: 10.1111/j.1365-2214.2009.01036.xOAI: oai:DiVA.org:hv-2582DiVA: diva2:327400
Available from: 2010-06-29 Created: 2010-06-29 Last updated: 2014-12-30Bibliographically approved

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CiteExportLink to record
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Citation style
  • apa
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  • vancouver
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  • de-DE
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  • en-US
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  • nn-NB
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  • Other locale
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