Background: Endometriosis is a disease in which endometrial tissue grows outside theuterus. This often causes women with endometriosis a lot of pain and suffering. It takes about 10 years before women are diagnosed and there is currently no curative treatment. Aim: The aim was to describe women's experiences of living with endometriosis.

Method: This was a literature-based study based on eight qualitative scientific research articles.

Results: The results are presented in four main themes and the findings show that the women experience limitations in their everyday lives. The women had various encounters with the healthcare system but often felt that their symptoms were normalized by the health care staff and that their knowledge about the disease was low. The women had several strategies for dealingwith the disease and needed information and support to manage their situation.

Conclusion: The lack of knowledge leads to suffering among women with endometriosis. In order to provide good care and support, nurses need increased knowledge about endometriosis and how it affects women's lives.