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”Du har bara en chans att göra det rätt”: Närståendes erfarenheter av palliativ vård i hemmet
University West, Department of Health Sciences.
University West, Department of Health Sciences.
2022 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesisAlternative title
”You only have one chance to get it right” : Relative's experiences of palliative care at home. (English)
Abstract [en]

Background: Increasing numbers of patients have a desire to die in their own homes. This leads to close relatives becoming cares, sometimes whether they want or not. A nurse’s support for relatives is one of four cornerstones in palliative care, but previous research has not shown what support close relatives need.

Aim: This study aimed to describe relatives’ experiences in palliative homecare.

Method: This study was conducted through a literature search based on qualitative methods. Nine articles were analyzed in five steps according to Friberg’s qualitative content analysis for literature-based studies. Two electronic databases; Cinahl and PubMed were used for the search.

Results: The result of this study shows that close relatives experience a responsibility for the patient and that their last time in life should be good. A feeling of always having to be available was common. To experience security, it was of importance for the relatives to be well informed about the patient and that it was a continuity among the staff. Many relatives experienced a loss of privacy and put their own needs aside, which resulted in an experience of loneliness and isolation.

Conclusion: For the relatives to be able to maintain their health, both the need of the patient and the relative need to be seen by the nurse. 

Place, publisher, year, edition, pages
2022. , p. 19
Keywords [en]
Experience, Health, Home, Palliative care, Relatives.
National Category
Nursing
Identifiers
URN: urn:nbn:se:hv:diva-19016Local ID: EXO502OAI: oai:DiVA.org:hv-19016DiVA, id: diva2:1684476
Subject / course
Nursing science
Educational program
Nursing Programme
Supervisors
Examiners
Available from: 2022-08-15 Created: 2022-07-26 Last updated: 2022-08-15Bibliographically approved

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  • nn-NB
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  • Other locale
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  • html
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