Background: Polycystic ovary syndrome (PCOS) is one of the most common endocrine disorders of women in fertile age. Many women suffer from symptoms associated with PCOS and the nurse's treatment plays an important role. 

Aim: The aim of the study was to illuminate women's experience of living with PCOS. 

Method: A literature review based on qualitative and quantitative studies was applied and analysed with Fribergs five-step model.

Results: The results show the encounter with care, physical changes, and the experience of not fitting into society's norms, which describes the women's physical and mental state and how it affects them negatively. Ignorance of the diagnosis leads to misleading information that causes women to lose confidence in care and feel distrustful. This leads to a need to seek information on one's own. A feeling of loneliness and decreased self-confidence are some negative consequences.

Conclusion: PCOS is a diagnosis that affects women. It is an important part for the nurse to have knowledge and a good approach to the woman so she gets good experience of the diagnosis to live a life with good conditions to feel good.