Background: Endometriosis is a chronic inflammatory disease that affects 170 million women worldwide. In Sweden there are 250.000 women who suffer from endometriosis. The disease means that the growth of tissue similar to the endometrium ends up on other tissue and organs which leads to inflammation.

Aim: The aim of this literature study was to shed light on women's experiences of living with endometriosis.

Method: The study was conducted as a qualitative literature study, based on an analysis of eleven scientific articles.

Results: The results were shown in two themes; Impact in daily life and The contact with healthcare which both provided results of women’s stories and experiences of being limited through all aspects of their lives. Handling a disease with painful symptoms and not being listened to or trusted by the healthcare system, were the main focus.

Conclusion: Women who suffer from endometriosis experience reduced quality of life and are often incapable of physical activity related to chronic pain and the feeling of inadequacy and limitations in their social life. Living with endometriosis also affects a woman's self-esteem and identity, while most women are often met with mistrust, skepticism, and misunderstandings about their problems in the healthcare system.