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Sjuksköterskans erfarenheter av att vårda barn i ett palliativt skede: Med hela livet framför sig
University West, Department of Health Sciences, Section for nursing - undergraduate level.
University West, Department of Health Sciences, Section for nursing - undergraduate level.
2021 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesisAlternative title
With their whole life ahead : Nurse’s experiences of caring for children in palliative care (English)
Abstract [en]

Background: Palliative care is often associated with elderly patients and something that is given to those who have lived a long life. In 2020, 478 children died in Sweden, many of them were given, or were in need of, palliative care. Nurses have a central role in caring for these children and their families. Nurses need specific nursing and communication skills when caring for a dying child.

Aim: The aim of this study was to explore nurse’s experiences of caring for children in palliative care.

Method: This literature study was based on eleven articles with a qualitative approach, analyzed using Friberg’s five-step method.

Results: The result was based on eleven qualitative articles. After quality review and analysis, three themes emerged; Maintain professional role, Have communicative ability, and To be inneed of support. In the result it appeared that it was emotionally stressful for nurses who are caring for a child in palliative care. The nurse often developed an emotional commitment to the child, which sometimes made it difficult to stay professional. Education and knowledge emerged as important and had a great impact on the quality of care.

Conclusion: The death of a child is seen as unfair and caused the nurse unexpected feelings and grief. It was important with support from both professionals and colleagues, and to be given the ability to grieve. Caring for a child in palliative care comes with a lot of pressure for the nurse, especially in times when the child’s poor prognosis was to be discussed with the family.

Place, publisher, year, edition, pages
2021. , p. 20
Keywords [en]
Child, end-of-life care, experience, nurse, palliative
National Category
Nursing
Identifiers
URN: urn:nbn:se:hv:diva-17623Local ID: EXO502OAI: oai:DiVA.org:hv-17623DiVA, id: diva2:1605917
Subject / course
Nursing science
Educational program
Nursing Programme
Examiners
Available from: 2021-11-05 Created: 2021-10-26 Last updated: 2021-11-05Bibliographically approved

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf