Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of lifeDivision of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium; KU Leuven - University of Leuven, KU Leuven Department of Cardiovascular Sciences, Leuven, (BEL).
Tokyo University, Department of Education, Tokyo, (JPN).
Coronel Institute of Occupational Health, Amsterdam UMC, University of Amsterdam, Amsterdam, (NLD); Department of Cardiology, Jeroen Bosch Hospital, Hertogenbosch, Amsterdam,(NLD).
Department of Pediatrics, National Taiwan University Hospital, Taipei, (TWN).
Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, OH, (USA).
Université de Montréal, Adult Congenital Heart Center, Montreal Heart Institute, Montreal, (CAN).
Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, Grand Rapids, MI, USA (USA).
Pediatric Cardiology, Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), Chennai, (IND).
Division of Cardiology, Hospital de Niños, Córdoba, (ARG).
University of Toronto, Toronto Congenital Cardiac Center for Adults, University Health Network, (CAN).
Department of Cardiology, Oslo University Hospital - Rikshospitalet, Oslo, (NOR).
Adult Congenital Heart Unit, Sahlgrenska University Hospital/Östra, Gothenburg, Sweden; Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg, Sweden; University of Gothenburg, Centre for Person-Centred Care (GPCC), Gothenburg, Sweden.
Umeå University, Department of Public Health and Clinical Medicine, Umeå, Sweden .
University of Alberta, Division of Cardiology, Stollery Children's Hospital, Edmonton, (CAN).
Monash University, Monash Heart, Monash Medical Centre, Melbourne, (AUS).
Department of Cardiology, Mater Dei Hospital, Malta (MLT).
Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA (USA).
Department of Congenital Heart Disease, Louis Pradel Hospital, Hospices civils de Lyon, Lyon, France (FRA).
Adult Congenital Heart Program at Stanford, Lucile Packard Children’s Hospital and Stanford Health Care, USA (USA).
Washington University, Adult Congenital Heart Disease Center, ; University of Missouri, Barnes Jewish Heart & Vascular Center, Saint Louis, Missouri USA (USA).
Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy (ITA); Università degli Studi di Milano, Department of Biomedical Sciences for Health, Milan, (ITA).
University of Nebraska Medical Center, Adult Congenital Heart Disease Center, Children's Hospital and Medical Center, Omaha, NE, USA (USA).
KU Leuven - University of Leuven, School Psychology and Child and Adolescent Development,Leuven, (BEL); University of the Free State, UNIBS, Bloemfontein, South Africa (ZAF).
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2021 (English)In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 20, no 1, p. 48-55Article in journal (Refereed) Published
Abstract [en]
Background: Previous studies have found that sense of coherence (SOC) is positively related to quality of life (QoL) in persons with chronic conditions. In congenital heart disease (CHD), the evidence is scant. Aims: We investigated (i) intercountry variation in SOC in a large international sample of adults with CHD; (ii) the relationship between demographic and clinical characteristics and SOC; (iii) the relationship between cultural dimensions of countries and SOC; and (iv) variation in relative importance of SOC in explaining QoL across the countries. Methods: APPROACH-IS was a cross-sectional, observational study, with 4028 patients from 15 countries enrolled. SOC was measured using the 13-item SOC scale (range 13â91) and QoL was assessed by a linear analog scale (range 0â100). Results: The mean SOC score was 65.5±13.2. Large intercountry variation was observed with the strongest SOC in Switzerland (68.8±11.1) and the lowest SOC in Japan (59.9±14.5). A lower SOC was associated with a younger age; lower educational level; with job seeking, being unemployed or disabled; unmarried, divorced or widowed; from a worse functional class; and simple CHD. Power distance index and individualism vs collectivism were cultural dimensions significantly related to SOC. SOC was positively associated with QoL in all participating countries and in the total sample, with an explained variance ranging from 5.8% in Argentina to 30.4% in Japan. Conclusion: In adults with CHD, SOC is positively associated with QoL. The implementation of SOC-enhancing interventions might improve QoL, but strategies would likely differ across countries given the substantial variation in explained variance. © The European Society of Cardiology 2020.
Place, publisher, year, edition, pages
2021. Vol. 20, no 1, p. 48-55
Keywords [en]
Heart defects, congenital, nursing, positive psychology, resilience, salutogenesis, sense of coherence, quality of life
National Category
Nursing Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
URN: urn:nbn:se:hv:diva-15736DOI: 10.1177/1474515120930496ISI: 000539855600001Scopus ID: 2-s2.0-85086328123OAI: oai:DiVA.org:hv-15736DiVA, id: diva2:1460333
2020-08-242020-08-242022-01-19Bibliographically approved