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Nutrition inom den palliativa vården: upplevelser från patienter och närstående
University West, Department of Health Sciences, Section for nursing - undergraduate level.
University West, Department of Health Sciences, Section for nursing - undergraduate level.
2019 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesisAlternative title
Nutrition in palliative care : experiences from patient and relatives (English)
Abstract [en]

Background: In Sweden many people are in need of palliative care in end of life. The goal with palliative care is to create conditions to improve quality of life when disease can no longer be cured. A natural step in the dying process is that the patients stop eating and this can be difficult to handle for both the patient and their close relatives. Here, the nurse becomes a key to motivate and support.

Aim: The aim was to highlight the experience of nutrition in palliative care for patients and close relatives.

Method: A literature-based study based on analysis of nine qualitative scientific studies.

Results: Themes that emerged in the new result was A desire for extended life, A change in everyday life and Food as a consideration, and associated subthemes. Close relatives often used food as a way of showing love and nursing while patients eat to reduce the anxiety of their close relatives, they ate to please.

Conclusion: Common to the result was that both patients and close relatives experienced a reduced quality of life related to nutrition and as a reminder that death was approaching. Food was seen as a central and health promoting part of everyday life and a significant part of the social community.

Abstract [sv]

Patienter kan få behov av palliativ vård när de drabbats av en obotlig sjukdom. Detta påverkar både patienten och dess närstående. Denna studies syfte är att belysa patienters och närståendes upplevelser av nutrition inom palliativ vård. Resultatet i denna studie bygger på vårdvetenskapliga artiklar och visar att patienter och närstående upplever en önskan om att förlänga livet. Patienter och närstående ser mat som en symbol för deras hälsa och ett sätt att hålla kvar vid livet, de upplevde också en maktlöshet och förnekelse kring sjukdom och den oundvikliga döden. De upplever en förlorad gemenskap och en annorlunda inställning till mat vilket resulterade i en förändrad vardag. Mat beskrivs som omtanke, det framkommer att patienter inte äter för sin egen skull utan för att behaga närstående och för närstående är mat ett sätt att visa sin kärlek.

Resultatet visar att det kan uppstå konflikt mellan närståendes oro och patienters självbestämmande. I sjuksköterskans roll är det viktigt att förstå och respektera deras tankar och känslor för att kunna lindra lidandet.

Place, publisher, year, edition, pages
2019. , p. 27
Keywords [en]
cachexia, eating behavior, experiences, nutrition, palliative care, quality of life.
National Category
Nursing
Identifiers
URN: urn:nbn:se:hv:diva-13556Local ID: EXO502OAI: oai:DiVA.org:hv-13556DiVA, id: diva2:1289754
Subject / course
Nursing science
Educational program
Nursing Programme
Supervisors
Examiners
Available from: 2019-02-22 Created: 2019-02-19 Last updated: 2019-03-20Bibliographically approved

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