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Närståendes erfarenheter av att vårda en person med Alzheimers sjukdom
University West, Department of Health Sciences, Section for nursing - undergraduate level.
University West, Department of Health Sciences, Section for nursing - undergraduate level.
2019 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesisAlternative title
Relatives´ experiences of caring for a person with Alzheimer's disease (English)
Abstract [en]

Background: Alzheimer's disease is the most common dementia disease and affects 60-70 percent of people suffering from a dementia disease. About 100 000 people in Sweden are diagnosed with Alzheimer's disease. Managing and taking care of a person who needs a lot of support and help means that life becomes completely different than before. Support from the surroundings are therefore very important for close relatives caring for a person with Alzheimer's Disease.

Aim: The aim of this study was to explore closely related persons' experience of caring for a person with Alzheimer's disease.

Method: The method to create evidence-based nursing based on analysis of qualitative research was used. Eleven articles were obtained through the databases Cinahl and PsycINFO. From the 11 articles three themes and eight sub-themes emerged.

Results: The results showed that close relatives experienced difficulties communicating with the person in Alzheimer's disease. They felt great fear and concern about the disease and its development. Relatives breached themselves to meet the person's need for care. The close relative felt that caring for Alzheimer's disease caused them to feel isolated. Relatives found strategies that made it easier for them to care for Alzheimer's disease.

Conclusion: It was stressful to care for a person with Alzheimer's disease and the close relatives were in great need of support. The nurse must be able to meet the close relatives' feelings of anxiety, guilt and shame, especially as a close relative caring for a person with Alzheimer's disease is not always voluntary.

Abstract [sv]

Alzheimers sjukdom är den vanligaste av alla demenssjukdomar. När en person insjuknar i Alzheimers sjukdom får närstående ofta ta på sig rollen som vårdare och det är därför viktigt att ta del av deras upplevelser och erfarenheter.

Denna studie handlar om närståendes erfarenheter av att vårda en person med Alzheimers sjukdom.

Elva kvalitativa artiklar valdes till studiens resultat som resulterade i tre teman och åtta subteman.

I resultatet framkommer det att närstående har svårt att kommunicera med personen som insjuknat i Alzheimers sjukdom och när det tar lång tid att få ett svar blir närstående rädda över att personen inte längre kan prata. Närstående känner sig ensamma och isolerade från omgivningen när de vårdar en person med Alzheimers sjukdom, de väljer ändå att fortsätta vårda då de anser det vara deras plikt. Det framkommer även att närstående hittar olika metoder att avleda personen med Alzheimers sjukdom och genom att lära sig mer om sjukdomen kan de också acceptera situationen.

Det är påfrestande att vårda en person med Alzheimers sjukdom och mycket ansvar hamnar på närstående. Sjuksköterskor behöver känna till hur det är att vårda en person med Alzheimers sjukdom för att kunna hjälpa närstående som är i stort behov av stöttning.

Place, publisher, year, edition, pages
2019. , p. 20
Keywords [en]
Alzheimer's Disease, Caring, Dementia, Experiences, Relatives
National Category
Nursing
Identifiers
URN: urn:nbn:se:hv:diva-13477Local ID: EXO502OAI: oai:DiVA.org:hv-13477DiVA, id: diva2:1285805
Subject / course
Nursing science
Educational program
Nursing Programme
Supervisors
Examiners
Available from: 2019-02-12 Created: 2019-02-05 Last updated: 2019-02-12Bibliographically approved

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