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From narratives to numbers: Data work and patient-generated health data in consultations
University West, School of Business, Economics and IT, Division of Media and Design. (LINA)
University West, School of Business, Economics and IT, Divison of Informatics. (LINA)ORCID iD: 0000-0002-4563-0001
University of Gothenburg, Sahlgrenska Academy, Clinical Science, Sweden.
University of Gothenburg, Department of Applied IT, Sweden.
2018 (English)In: Studies in Health Technology and Informatics / [ed] Klein G.O.,Karlsson D.,Moen A.,Ugon A., IOS Press, 2018, Vol. 247, p. 491-495Conference paper, Published paper (Refereed)
Abstract [en]

This article presents preliminary findings on how the introduction of patient-generated health data (PGHD) triggers changes during patient-nurse consultations. This article builds on a two-year case study, examining the work practice at a cancer rehabilitation clinic at a Swedish Hospital using PGHD. The study focuses on how nurses’ use data, gathered by patients with a mobile phone app, during consultations. The use of PGHD introduce a change in the translation work, the work of turning rich patient descriptions and transform them into data, during the consultation for documentation and clinical decision-making. This change affects precision, questions asked and the use of visualizations as well as the patient-nurse decision making. © 2018 European Federation for Medical Informatics (EFMI) and IOS Press.

Place, publisher, year, edition, pages
IOS Press, 2018. Vol. 247, p. 491-495
Keywords [en]
Cancer rehabilitation, Data work, Patient-generated health data, PGHD, Translation
National Category
Information Systems
Research subject
SOCIAL SCIENCE, Informatics; Work Integrated Learning
Identifiers
URN: urn:nbn:se:hv:diva-12340DOI: 10.3233/978-1-61499-852-5-491PubMedID: 29678009Scopus ID: 2-s2.0-85046533800ISBN: 9781614998518 (electronic)OAI: oai:DiVA.org:hv-12340DiVA, id: diva2:1259011
Conference
40th Medical Informatics in Europe Conference, MIE 2018; The Swedish Exhibition and Congress CentreGothenburg; Sweden; 24 April 2018 through 26 April 2018
Available from: 2018-10-26 Created: 2018-10-26 Last updated: 2018-11-08Bibliographically approved

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Lindroth, TomasIslind, Anna Sigridur

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CiteExportLink to record
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