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Att överleva sitt barn: En litteraturöversikt om att vara förälder till ett barn som vårdas i ett palliativt skede i hemmiljö
University West, Department of Health Sciences, Section for nursing - undergraduate level.
University West, Department of Health Sciences, Section for nursing - undergraduate level.
2018 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesisAlternative title
To survive your child : A literature overview of being a parent to a child who has palliative care in home environment (English)
Abstract [en]

Background: Palliative care is used when a disease or injury no longer can be cured. In this final stage it focuses on symptom relief and relieve suffering for the patient. Parents with a sick child with palliative care suffer in different ways and experience the situation differently. When parents experience the situation differently it is important that nurses get an understanding of the parent’s experiences in order to respond to them in the best way. Aim: The aim of this study was to highlight parent’s experiences of having a child with palliative homecare. Method: A literature overview was used as method. Five and a half qualitative articles and three and a half quantitative articles were analyzed. After the analysis it resulted in three main themes and seven sub themes. Results: The main themes of the study were: ”To experience family balance in connection with home care”, ”to experience increased parental responsibility” and ”parents needs of support”. Knowledge, communication and support were fundamental to give the child the best care for their needs but also for a good cooperation between parents and healthcare staff. Conclusion: It was found that parents experienced family balance in connection with home care. They got more time and energy to spend with the whole family which led to better relationships with relatives and friends. The parents felt that they needed support from health care professionals and realtives and communication was one important factor to ensure that the support was as good as possible.

Place, publisher, year, edition, pages
2018. , p. 29
Keywords [en]
Child, home care, palliative care, parents experience, pediatric palliative care
National Category
Nursing
Identifiers
URN: urn:nbn:se:hv:diva-12695Local ID: EXO502OAI: oai:DiVA.org:hv-12695DiVA, id: diva2:1231049
Subject / course
Nursing science
Educational program
Nursing Programme
Supervisors
Examiners
Available from: 2018-07-05 Created: 2018-07-05 Last updated: 2018-07-05Bibliographically approved

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CiteExportLink to record
Permanent link

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Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf