Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Att vara en åskådare: -Leva med Myalgisk Encefalomyelit/Chronic Fatigue Syndrome
University West, Department of Health Sciences, Section for nursing - undergraduate level.
University West, Department of Health Sciences, Section for nursing - undergraduate level.
2018 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesisAlternative title
To be a spectator : Live with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (English)
Abstract [en]

Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is a neurologic disease. Between 0,1-2,6% of the world’s population is estimated to have ME/CFS. Even though a lot of people are affected there is a lack of knowledge about the disease. Its symptomatology affects the whole body and is severely debilitating. It’s at utmost importance that this subject is studied so that nurses can get an increased knowledge about ME/CFS. Aim The aim was to highlight people's experiences of living with ME/CFS. Method A literature-based study based on analysis of ten qualitative scientific studies was performed. Results Four main themes and fourteen subthemes were revealed. The main themes were about changing living conditions, lack of knowledge, changes in the body and existential changes. Changes were a major part of the result and people with ME / CFS experienced that the changes could be both positive and negative. The results showed that there is a knowledge gap regarding ME / CFS, which has serious consequences for people with the diagnosis. Conclusion The conclusion of the study was that knowledge, information and support is important for people with ME / CFS. By working person-centered, the nurse can help people with ME / CFS feel better.

Place, publisher, year, edition, pages
2018. , p. 23
Keywords [en]
Experience, Knowledge, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Patient, Person-centered care
National Category
Nursing
Identifiers
URN: urn:nbn:se:hv:diva-12655Local ID: EXO502OAI: oai:DiVA.org:hv-12655DiVA, id: diva2:1230708
Subject / course
Nursing science
Educational program
Nursing Programme
Supervisors
Examiners
Available from: 2018-07-05 Created: 2018-07-04 Last updated: 2018-10-03Bibliographically approved

Open Access in DiVA

fulltext(355 kB)50 downloads
File information
File name FULLTEXT02.pdfFile size 355 kBChecksum SHA-512
2b88cf1d8d973784f8875409d611b79f19ff466be614a26ff766d40b1fe122bdfb38228c55560e07776dfce21f5b569a21e65926666814e8be6efbd339b62d39
Type fulltextMimetype application/pdf

By organisation
Section for nursing - undergraduate level
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 50 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

urn-nbn

Altmetric score

urn-nbn
Total: 105 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf