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Att vara barn i dödens väntrum: En litteraturbaserad studie
University West, Department of Health Sciences, Section for nursing - undergraduate level.
University West, Department of Health Sciences, Section for nursing - undergraduate level.
2017 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesisAlternative title
Being a child in the waiting room of the dead : A literature-based study (English)
Abstract [en]

Background One of the hardest experiences in a human life is seeing a loved one suffer from terminal illness. Despite the fact that this is a life-changing experience with extensive psychological effects, there is very little research on the subject. In order to provide the best possible care for a palliative patient and his or her family, and especially the children involved, it is necessary to study how children experience life with a dying parent. Aim The aim of this study was to describe the experience of children living with a parent in palliative care.Method The chosen method of this study was to contribute to evidence based nursing with ground in analysis of qualitative research. This method was selected because of its ability to gain a deeper understanding of the participants' experiences. A total of ten articles where selected. Following analysis, a number of main categories were identified and described. Results The results were divided into two main categories; changes in the everyday life of thechild and the emotions of the child. These two main categories were then further divided into seven sub-categories; time, life style, responsibility, need for support, sense of togetherness and the child's need for communication. The main results of the study were that children experienced that their everyday life in terms of habits and family routines changed, that time became more precious and insufficient, and that there was a clear need for information and communication both with care professionals and family members to ensure that the child could feel less afraid.Conclusion This study has contributed with knowledge about the experience of children with parents in palliative care. The main finding relevant to the nursing profession is the increased need for children to feel supported, listened to and included in the care process through information and communication adjusted to their age and situation in order to decrease fear.

Place, publisher, year, edition, pages
2017. , p. 19
Keywords [en]
Children, children’s experience, dying parent, end of life care, palliative care
National Category
Nursing
Identifiers
URN: urn:nbn:se:hv:diva-12287Local ID: EXO502OAI: oai:DiVA.org:hv-12287DiVA, id: diva2:1205067
Subject / course
Nursing science
Educational program
Nursing Programme
Supervisors
Examiners
Available from: 2018-05-16 Created: 2018-05-09 Last updated: 2018-05-16Bibliographically approved

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CiteExportLink to record
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Citation style
  • apa
  • ieee
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  • vancouver
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  • de-DE
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  • en-US
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  • nn-NO
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Output format
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