Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
När framtiden går förlorad: En litteraturbaserad studie om sjuksköterskors erfarenheter av vård av barn i palliativt skede
University West, Department of Health Sciences, Section for nursing - undergraduate level.
University West, Department of Health Sciences, Section for nursing - undergraduate level.
2017 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesisAlternative title
When the future is lost : A literature based study about nurses’ experiences of caring for children in a palliative stage. (English)
Abstract [en]

Background: Each year about 480 children in Sweden receive palliative care and a child’s death has a great impact on everyone involved with the child. Nurses have a responsibility to ensure that the child remains comfortable and experiences dignity until end of life. Caring for children in a palliative stage has shown to be overwhelming for nurses and there is of great importance to determine the nurses own experiences. Aim: The aim of this study was to describe nurses’ experiences of caring for children in a palliative stage. Method: The method used was a literature study with the aim to contribute to evidence based care with an analysis based on qualitative research. Twelve scientific articles were analyzed and three themes and nine subthemes emerged. Results: Relationships were created between the nurses, the children and their families. These relationships made it difficult for the nurses to maintain professional boundaries, which resulted in an emotional impact both during the care and after the child’s death. There were occasions when differences of opinion arose between the nurses and the guardians about the best interests of the child and during these circumstances the nurses needed to advocate for the child. Lack of resources and difficulties in symptom management was also challenging for the nurses during the end-of-life care. Support and additional knowledge was significant to enable further work within the area. Conclusions: Caring for children in a palliative stage is emotionally demanding which makes it difficult for nurses to remain professional. Since nurses have a responsibility to advocate for the children, differences in opinions will occur. Guardians need to be fully informed to make decisions based on the best interests of the child. There is also a need of resources, knowledge and support.

Place, publisher, year, edition, pages
2017. , p. 27
Keyword [en]
Pediatric palliative care, nurses experiences, end-of-life care, children, pediatric nursing, caring for dying children
National Category
Nursing
Identifiers
URN: urn:nbn:se:hv:diva-12262Local ID: EXO502OAI: oai:DiVA.org:hv-12262DiVA, id: diva2:1200247
Subject / course
Nursing science
Educational program
Nursing Programme
Supervisors
Examiners
Available from: 2018-04-25 Created: 2018-04-23 Last updated: 2018-04-25Bibliographically approved

Open Access in DiVA

fulltext(579 kB)13 downloads
File information
File name FULLTEXT01.pdfFile size 579 kBChecksum SHA-512
355947653c3a68c5af7749cac69306fc836feb7d7288a2e9aaeb1a1961db5faf633ca81356f02e98176da9a1224bdadde32c8fecf278e8883f9f6a574d4781a7
Type fulltextMimetype application/pdf

By organisation
Section for nursing - undergraduate level
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 13 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

urn-nbn

Altmetric score

urn-nbn
Total: 10 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf