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Reasoning about truth-telling in end-of-life care of patients with acute stroke
University West, Department of Health Sciences, Section for nursing - graduate level. Skaraborg Hospital Skövde, Sweden.ORCID iD: 0000-0002-6454-9575
Ersta Sköndal University College, Stockholm, Sweden.
Ersta Sköndal University College, Stockholm, Sweden.
2016 (English)In: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989Article in journal (Refereed) Epub ahead of print
Abstract [en]

BACKGROUND: Ethical problems are a universal phenomenon but rarely researched concerning patients dying from acute stroke. These patients often have a reduced consciousness from stroke onset and thereby lack ability to convey their needs and could be described as 'incompetent' decision makers regarding their own care. OBJECTIVE: The aim of the study was to deepen the understanding of stroke team members' reasoning about truth-telling in end-of-life care due to acute stroke. RESEARCH DESIGN: Qualitative study based on individual interviews utilizing combined deductive and inductive content analysis. PARTICIPANTS AND RESEARCH CONTEXT: A total of 15 stroke team members working in stroke units of two associated county hospitals in western Sweden participated. ETHICAL CONSIDERATIONS: The study was approved by the Regional Ethics Review Board, Gothenburg, Sweden. FINDINGS: The main findings were the team members' dynamic movement between the categories 'Truth above all' and 'Hide truth to protect'. Honesty was highly valued and considered as a reason for always telling the truth, with the argument of truth as common morality. However, the carers also argued for hiding the truth for different reasons such as not adding extra burden in the sorrow, awaiting a timely moment and not being a messenger of bad news. Withholding truth could both be seen as a way of protecting themselves from difficult conversations and to protect others. DISCUSSION: The results indicate that there are various barriers for truthfulness. Interpreted from a virtue of ethics perspective, withholding of truth might also be seen as an expression of sound judgement to put the patient's best interest first. CONCLUSION: The carers may need support in the form of supervision to be given space to reflect on their experience and thereby promote ethically justified care. Here, the multi-professional team can be of great value and contribute through inter-professional sharing of knowledge.

Place, publisher, year, edition, pages
Keyword [en]
Content analysis, ethical problems, stroke team members, truth, withholding truth
National Category
Nursing Medical Ethics
Research subject
URN: urn:nbn:se:hv:diva-10327DOI: 10.1177/0969733016664974PubMedID: 27660184OAI: diva2:1057253

First Published onlineSeptember 22, 2016     

Available from: 2016-12-16 Created: 2016-12-16 Last updated: 2016-12-19Bibliographically approved

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