Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
"The only thing I wonder is when I will have surgery again": everyday life for children with right ventricle outflow tract anomalies during assessment for heart surgery
Department of Cardiology, Pediatric Heart Center, Skåne University Hospital, Lund, Lund University, Lund, (SWE).
Department of Cardiology, Pediatric Heart Center, Skåne University Hospital, Lund, Lund University, Lund, (SWE).
Department of Care Science, Faculty of Health and Society, Malmö University, Malmö (SWE).
University West, Department of Health Sciences, Section for nursing - graduate level. (LOVHH)ORCID iD: 0000-0002-4181-695x
2023 (English)In: Cardiology in the Young, ISSN 1047-9511, E-ISSN 1467-1107, Vol. 33, no 3, p. 396-401Article in journal (Refereed) Published
Abstract [en]

Many children with complex right ventricle outflow tract anomalies such as Tetralogy of Fallot, common arterial trunk, and pulmonary atresia with ventricular septal defect require repeated heart surgeries early in life, but also later throughout their lifetime, thereby emphasising the importance of careful life-long follow-up. The need for repeated heart surgeries during childhood is recognised as a heavy burden on the child. Optimising the time point for re-intervention is important, since delaying re-intervention for these children can lead to complications such as ventricular arrhythmias, heart failure, and death. To this purpose, thorough pre-operative assessment (henceforth named as assessment) including clinical examination, echocardiography, MRI, and exercise test need to be performed whenever the indication for reoperation is suspected. It is likely to believe that children who are going through this kind of assessment that may lead to heart surgery need extra support. According to previous research, children with complex heart disease fear for the possibility of surgery and the thought of future repeated heart surgery is associated with anxiety. This might have an impact on children's everyday life and in research nowadays involving children with CHD, the focus has changed from survival to how these children experience their everyday life. Earlier studies have shown that they experience physical activities limitation and feelings of isolation, but no study has yet studied how children with right ventricle outflow tract anomalies experience their everyday life. To be able to provide support, studies are needed to explore how these children experience the period from assessment to decision, as well as the months thereafter. Therefore, the aim of this study was to explore how children diagnosed with complex right ventricle outflow tract anomalies experience their heart disease and their everyday life during the assessment and after the decision on whether to perform a new cardiac surgery.

Place, publisher, year, edition, pages
2023. Vol. 33, no 3, p. 396-401
Keywords [en]
Heart surgery, children
National Category
Nursing
Research subject
NURSING AND PUBLIC HEALTH SCIENCE, Nursing science
Identifiers
URN: urn:nbn:se:hv:diva-18283DOI: 10.1017/S1047951122000907ISI: 000775661500001PubMedID: 35351230Scopus ID: 2-s2.0-85128447662OAI: oai:DiVA.org:hv-18283DiVA, id: diva2:1651983
Funder
Swedish Heart Lung Foundation
Note

This study was supported by Swedish Heart- and Lung Foundation (PL), the Pediatric Heart center at the Skåne University Hospital (BS), and Lund University (PL).

CC BY 4.0

Available from: 2022-04-14 Created: 2022-04-14 Last updated: 2024-01-12Bibliographically approved

Open Access in DiVA

fulltext(447 kB)17 downloads
File information
File name FULLTEXT01.pdfFile size 447 kBChecksum SHA-512
d130b5fb2ed7571026ba9a1b1e711099f8655cd46e9dff66f90a896192867e3ce1773f03050f9bbbb5d3879c34bdd9f82fa2b9873b08bd888388d82feede82b3
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMedScopus

Authority records

Berghammer, Malin

Search in DiVA

By author/editor
Berghammer, Malin
By organisation
Section for nursing - graduate level
In the same journal
Cardiology in the Young
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 17 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 28 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf