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Att leva med multipel skleros: En litteraturbaserad studie
University West, Department of Health Sciences, Section for nursing - undergraduate level.
University West, Department of Health Sciences, Section for nursing - undergraduate level.
2022 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesisAlternative title
Living with multiple sclerosis. : A literature-based study (English)
Abstract [sv]

Bakgrund: Multipel skleros (MS) är en neurologisk sjukdom med ett skovvist förlopp som orsakar fysisk och psykisk funktionsnedsättning. Ett skov följs av ett ökat omvårdnadsbehov. Sjukdomen kan upplevas olika av de olika personerna och kan både ge positiva och negativa upplevelser. God omvårdnad som sjuksköterskan bidrar med är central och upplevs vara avgörande för ökad hälsa och minskat lidande.

Syfte: Syftet med examensarbetet var att undersöka personers upplevelser av att leva med MS i det vardagliga livet.

Metod: Denna litteraturbaserade studie grundades i tretton kvalitativa artiklar som fokuserade på hur personer med MS upplevde att leva med sjukdomen. Analysen av artiklarna utfördes med hjälp av en modell i fem steg.

Resultat: Genom analys skapades tre huvudteman. Resultatet visade att personer med MS upplever lidande och isolering relaterat till en förändrad roll i vardagen, bristande kunskap från omvärlden samt begränsad delaktighet i vården. Hälsa och livskvalitet kunde upplevas genom acceptans av sjukdomen samt av den nya kroppen. 

Slutsats: Personer med MS upplever en påverkad vardag ur både fysiska och psykiska aspekter. Detta orsakar ett lidande som ofta relateras till den nya kroppen. Att hitta strategier för att hantera sjukdomen kan främja hälsa trots sjukdom för den med MS. Detta kan innebära att vara delaktig, undvika isolering och erbjudas individanpassad omvårdnad. Sjuksköterskan spelar en stor roll i möjliggörandet av den upplevda hälsan trots sjukdom för personen med MS.

Abstract [en]

Background: Multiple sclerosis (MS) is a neurological disease with a course of relapses causing physical and psychological disability that affects everyday life. A relapse is followed by an increased need of care. Persons can have different experiences of the disease that can be both positive and negative. The care contributed by the nurse is central and is experienced to be crucial for enabling increased health and decreased suffering for the person with MS.

Aim: The aim of this study was to examine how persons with MS experience their daily living.

Method: This literature-based study was founded on thirteen qualitative articles that focused on how persons with MS experienced living with the disease. The analysis of the articles was based on a model in five steps.

Results: After analyzing the articles three main themes emerged. The result proved that multiple persons with MS experienced suffering and isolation related to a changed role in their everyday life, a lack of knowledge from the surrounding world and limited participation in their own care. Thus, health and quality of life could be experienced through acceptance of the disease as well as the new body despite its limitations.

Conclusion: Persons with MS experienced an affected everyday life in both physical and psychological aspects which often caused suffering. To promote health, several of them found it necessary to invent strategies for coping with the disease. This could include participation, avoiding isolation and being offered individually adapted care. The nurse played a big role in the enabling of experiencing health despite the disease for persons with MS.

Place, publisher, year, edition, pages
2022. , p. 26
Keywords [en]
activities of daily living, experience, multiple sclerosis, nursing, patient
Keywords [sv]
aktiviteter i det dagliga livet, multipel skleros, omvårdnad, patient, upplevelser.
National Category
Nursing Neurology
Identifiers
URN: urn:nbn:se:hv:diva-18203Local ID: EXO502OAI: oai:DiVA.org:hv-18203DiVA, id: diva2:1639390
Subject / course
Nursing science
Educational program
Nursing Programme
Supervisors
Examiners
Available from: 2022-03-02 Created: 2022-02-21 Last updated: 2022-03-02Bibliographically approved

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