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Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS).
KU Leuven - University of Leuven, KU Leuven Department of Public Health and Primary Care, Leuven, Belgium(BEL); Centre for Person-Centred Care (GPCC), Gothenburg, Sweden; University of Gothenburg, Institute of Health and Care Sciences, Gothenburg, Sweden; University of Cape Town, Department of Paediatrics and Child Health, South Africa (ZAF).
KU Leuven School Psychology and Development in Context, KU Leuven, Leuven, Belgium (BEL); UNIBS, University of the Free State, Bloemfontein, South Africa (ZAF).
KU Leuven Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium (BEL); Center for Congenital Heart Disease, Department of Cardiology, Inselspital - Bern University Hospital, University of Bern, Bern, Switzerland (CHE).
Division of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium (BEL); KU Leuven Department of Cardiovascular Sciences, KU Leuven, Leuven, Belgium (BEL).
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2021 (English)In: American Journal of Cardiology, ISSN 0002-9149, E-ISSN 1879-1913, Vol. 145, p. 135-142Article in journal (Refereed) Published
Abstract [en]

In this international study, we (1) compared patient-reported outcomes (PROs) in adults with congenital heart disease (CHD) who had versus had not been hospitalized during the previous 12 month, (2) contrasted PROs in patients who had been hospitalized for cardiac surgery versus nonsurgical reasons, (3) assessed the magnitude of differences between the groups (i.e., effect sizes), and (4) explored differential effect sizes between countries. APPROACH-IS was a cross-sectional, observational study that enrolled 4,028 patients from 15 countries (median age 32 years; 53% females). Self-report questionnaires were administered to measure PROs: health status; anxiety and depression; and quality of life. Overall, 668 patients (17%) had been hospitalized in the previous 12 months. These patients reported poorer outcomes on all PROs, with the exception of anxiety. Patients who underwent cardiac surgery demonstrated a better quality of life compared with those who were hospitalized for nonsurgical reasons. For significant differences, the effect sizes were small, whereas they were negligible in nonsignificant comparisons. Substantial intercountry differences were observed. For various PROs, moderate to large effect sizes were found comparing different countries. In conclusion, adults with CHD who had undergone hospitalization in the previous year had poorer PROs than those who were medically stable. Researchers ought to account for the timing of recruitment when conducting PRO research as hospitalization can impact results.

Place, publisher, year, edition, pages
2021. Vol. 145, p. 135-142
Keywords [en]
patient-reported outcomes, PROs, congenital heart disease, CHD
National Category
Cardiac and Cardiovascular Systems
Research subject
NURSING AND PUBLIC HEALTH SCIENCE, Nursing science
Identifiers
URN: urn:nbn:se:hv:diva-16330DOI: 10.1016/j.amjcard.2020.12.088ISI: 000632350800012PubMedID: 33460605Scopus ID: 2-s2.0-85100102587OAI: oai:DiVA.org:hv-16330DiVA, id: diva2:1536976
Available from: 2021-03-12 Created: 2021-03-12 Last updated: 2022-03-30Bibliographically approved

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