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Individualized blended care for patients with colorectal cancer: the patient's view on informational support.
Department of Computer Science, Reykjavik University, Reykjavik, Iceland (ISL).ORCID iD: 0000-0002-4563-0001
University West, School of Business, Economics and IT, Division of Media and Design. (LINA)ORCID iD: 0000-0001-8427-0961
University West, School of Business, Economics and IT, Divison of Law, Economics, Statistics and Politics. Region Västra Götaland, NU Hospital Group, Trollhättan, Sweden. (LINA)ORCID iD: 0000-0002-0493-8974
University West, Department of Health Sciences, Section for nursing - graduate level. (LINA)ORCID iD: 0000-0001-8291-7223
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2021 (English)In: Supportive Care in Cancer, ISSN 0941-4355, E-ISSN 1433-7339, Vol. 29, p. 3061-3067Article in journal (Refereed) Published
Abstract [en]

PURPOSE: The number of colorectal cancer patient survivors is increasing. Information and support during and after treatment are requested by patients, but questions remain on what to provide. The aim of this study was to understand what informational needs colorectal cancer patients and survivors have, with a focus on the potential support given by patient peers and the use of blended care.

METHODS: A qualitative study using focus groups was conducted with patients diagnosed at the same hospital at least one year prior to the initiation of the study. The focus group interviews were transcribed verbatim and analyzed using deductive content analysis.

RESULTS: The need for informational support varied over time and depended on individual patient characteristics. Timing was crucial and patients requested options of blended care and informational support after treatment cessation. The patients felt alone after treatment and requested assistance in communication with their next-of-kin. They also identified the value of peer support, especially to contextualize knowledge provided by healthcare.

CONCLUSION: This study showed a need for focus on individualized informational support. Blended care through integrating communication with peers online could be one way to support patients, both to enable shared decision-making as well as to provide person-centered care.

Place, publisher, year, edition, pages
2021. Vol. 29, p. 3061-3067
Keywords [en]
Blended Care, Cancer, Colon cancer, Communication, Information, Patient information, Patient satisfaction
National Category
Nursing Information Systems, Social aspects
Research subject
Work Integrated Learning
Identifiers
URN: urn:nbn:se:hv:diva-16011DOI: 10.1007/s00520-020-05810-5ISI: 000577045900002PubMedID: 33044626Scopus ID: 2-s2.0-85092493781OAI: oai:DiVA.org:hv-16011DiVA, id: diva2:1501418
Available from: 2020-11-17 Created: 2020-11-17 Last updated: 2022-01-18Bibliographically approved

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Islind, Anna SigridurJohansson, VictoriaVallo Hult, HelenaAlsén, PiaGellerstedt, Martin

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Islind, Anna SigridurJohansson, VictoriaVallo Hult, HelenaAlsén, PiaGellerstedt, Martin
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Division of Media and DesignDivison of Law, Economics, Statistics and PoliticsSection for nursing - graduate levelDivison of Informatics
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Supportive Care in Cancer
NursingInformation Systems, Social aspects

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