Ändra sökning
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf
Improving heart failure care with an Experience-Based Co-Design approach: what matters to persons with heart failure and their family members?
The Jönköping Academy for Improvement of Health and Welfare, School of Health and Welfare, Jönköping University, Jönköping (SWE); Department of Internal Medicine and Geriatrics, the Highland Hospital (Höglandssjukhuset), Region Jönköping County, Eksjö (SWE).ORCID-id: 0000-0002-2760-4571
The Jönköping Academy for Improvement of Health and Welfare, School of Health and Welfare, Jönköping University, Jönköping (SWE).ORCID-id: 0000-0003-1814-4478
The Jönköping Academy for Improvement of Health and Welfare, Jönköping University, Jönköping (SWE).ORCID-id: 0000-0002-2480-1641
Högskolan Väst, Institutionen för hälsovetenskap, Avdelningen for hälsopromotion och vårdvetenskap. The Jönköping Academy for Improvement of Health and Welfare, Jönköping University, Jönköping (SWE)Department of Behavioral Science, Oslo Metropolitan University, Oslo (NOR). (LOVHH)ORCID-id: 0000-0002-7669-4702
2023 (Engelska)Ingår i: BMC Health Services Research, E-ISSN 1472-6963, Vol. 23, nr 1, s. 1-17, artikel-id 294Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Background

Heart failure is a chronic heart condition. Persons with heart failure often have limited physical capabil‑ity, cognitive impairments, and low health literacy. These challenges can be barriers to healthcare service co-design with family members and professionals. Experience-Based Co-Design is a participatory healthcare quality improve‑ment approach drawing on patients’, family members’ and professionals’ experiences to improve healthcare. The over‑all aim of this study was to use Experience-Based Co-Design to identify experiences of heart failure and its care in a Swedish cardiac care setting, and to understand how these experiences can translate into heart failure care improve‑ments for persons with heart failure and their families.

Methods

A convenience sample of 17 persons with heart failure and four family members participated in this single case study as a part of an improvement initiative within cardiac care. In line with Experienced-Based Co-Design meth‑odology, feld notes from observations of healthcare consultations, individual interviews and meeting minutes from stakeholders’ feedback events, were used to gather participants’ experiences of heart failure and its care. Refexive thematic analysis was used to develop themes from data.

Results

Twelve service touchpoints, organized within fve overarching themes emerged. The themes told a story about persons with heart failure and family members struggling in everyday life due to a poor quality of life, lack of support networks, and difculties understanding and applying information about heart failure and its care. To be recognized by professionals was reported to be a key to good quality care. Opportunities to be involved in healthcare varied, Further, participants’ experiences translated into proposed changes to heart failure care such as improved information about heart failure, continuity of care, improved relations, and communication, and being invited to be involved in healthcare.

Conclusions

Our study fndings ofer knowledge about experiences of life with heart failure and its care, trans‑lated into heart failure service touchpoints. Further research is warranted to explore how these touchpoints can be addressed to improve life and care for persons with heart failure and other chronic conditions

Ort, förlag, år, upplaga, sidor
Springer London, 2023. Vol. 23, nr 1, s. 1-17, artikel-id 294
Nyckelord [en]
Heart failure, Experience-Based Co-Design, Healthcare quality improvement, Patient and public involvement, Thematic analysis
Nationell ämneskategori
Omvårdnad
Forskningsämne
VÅRD- OCH HÄLSOVETENSKAP, Vårdvetenskap
Identifikatorer
URN: urn:nbn:se:hv:diva-19854DOI: 10.1186/s12913-023-09306-wISI: 000962498500004PubMedID: 36978125Scopus ID: 2-s2.0-85151111282OAI: oai:DiVA.org:hv-19854DiVA, id: diva2:1750381
Anmärkning

This article is licensed under a Creative Commons Attribution 4.0 International License.

FundingOpen access funding provided by Jönköping University. The authors declare that there is no specifc grant for this research from any funding agency in the public, commercial or not-for-proft sectors.

Tillgänglig från: 2023-04-13 Skapad: 2023-04-13 Senast uppdaterad: 2024-01-11

Open Access i DiVA

fulltext(1357 kB)75 nedladdningar
Filinformation
Filnamn FULLTEXT01.pdfFilstorlek 1357 kBChecksumma SHA-512
525db6809782bd0962b6877bfd046e83f9c88b4cf328e7167e2ce6ddb74ecf5009dac83f7f544531e509ce849c5acb507e42a1f5cd39937e55d0d10891931266
Typ fulltextMimetyp application/pdf

Övriga länkar

Förlagets fulltextPubMedScopus

Person

Areskoug Josefsson, Kristina

Sök vidare i DiVA

Av författaren/redaktören
Suutari, Anne-MarieThor, JohanNordin, AnnikaAreskoug Josefsson, Kristina
Av organisationen
Avdelningen for hälsopromotion och vårdvetenskap
I samma tidskrift
BMC Health Services Research
Omvårdnad

Sök vidare utanför DiVA

GoogleGoogle Scholar
Totalt: 76 nedladdningar
Antalet nedladdningar är summan av nedladdningar för alla fulltexter. Det kan inkludera t.ex tidigare versioner som nu inte längre är tillgängliga.

doi
pubmed
urn-nbn

Altmetricpoäng

doi
pubmed
urn-nbn
Totalt: 94 träffar
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf