Backround Diabetes type 1 is a chronic disease that often affects children early in their life. It’s a disease that requires constant insulin treatment and control of bloodsugar to avoid the fatal complications that otherwise may occur. Previous research showed that parenting a child with diabetes type 1 is a major around the clock responsibility wich results in an unwanted transformation of the parents lives. Aim The aim of this study was to describe parents’ experiences of living with a child with type 1 diabetes. Method The method chosen for this study was to contribute to evidence-based nursing, based on analysis of qualitative research. With this method, experiences from parents living with a child with diabetes type 1 could be described. Ten qualitative articles were analysed from which three themes and nine subthemes could be described. Results The results showed that the parents experienced many strong feelings such as anxiety, fear and guilt. They were forced to carry a major responsibility over the disease and the treatment which led to a need of constant control over the child. This resulted in the parents being forced to change their everyday life. They often felt alone in their role of responsibility and described the support from healthcare professionals as inestimable. Conclusion As parents felt alone in their new role of responsibility, it’s important for the nurse to support, inform and educate the parents to create the best condition for them to handle the disease while being able to live a good life, as normal as possible.